CHILDBEARING DECISIONS AND PARENTING AMONG PERSONS WITH RHEUMATIOD ARTHRITIS

养育子女是成年人的主要角色之一。RA患者可能 由于治疗或父母的要求， 疾病父母可能会发现，父母的行为改变或不改变 由于行动能力或能量的限制，他们的期望得到了证实。 因此，RA对养育子女的影响，通过决定不 追求怀孕或对育儿行为的影响可能会有巨大的 对RA患者及其子女的影响。本研究将探讨 类风湿性关节炎对生育决策、养育行为和 结果。UCSF RA小组的成员将被问及 生育决定;那些有孩子的人将被问到 养育行为和养育角色中断。生育决定 将在一个额外的数据集，UCSF哮喘小组， 与UCSF RA Panel的数据进行比较。将从RA收集数据 小组成员通过年度电话访谈。评估影响的项目 RAS对生育决策、养育行为、应对行为、 父母角色的调整，父母的心理调整， 补充说将收集有关儿童心理社会适应的信息 从家长和教师，分析将解决三个主要领域：1） RA对生育决定的影响，与这些相关的因素 决定，以及这些决定的心理影响; 2） 类风湿性关节炎对父母养育行为的影响及其相关因素 影响; 3）由于RA限制对父母行为的影响 父母角色困扰对父母和儿童心理社会的影响 加强结构性改革这项研究的结果将有助于确定 RA对生育决策的影响，RA对父母养育行为的影响， 有效和无效的应对父母行为的方法 由于RA的限制，以及生育决定的影响， 父母教养行为对儿童心理调适的局限性 患有RA的父母及其子女。这些数据将提供有价值的 为临床医生，辅导员和教育工作者提供信息，以提高他们的 与类风湿性关节炎患者接触，提供孕前咨询， 协助适应为人父母和生育的挑战。 该项目的数据将大大提高生活质量， RA患者及其家人。

Parenting is one of the major adult roles. Individuals with RA may be reluctant to have children because of treatments or demands of the disease. Parents may find that parenting behaviors change or do not confirm to their expectations because of mobility or energy limitations. Thus, effects of RA on parenting on parenting through decisions not to pursue pregnancy or effects on parenting behaviors may have a tremendous effect on individuals with RA and their children. This study will examine the impact of RA on childbearing decision, parenting behavior, and outcomes. Members of the UCSF RA Panel will be questioned about childbearing decisions; those who have had children will be asked bout parenting behaviors and parenting role disruption. Childbearing decisions will be examined in an additional data set, the UCSF Asthma Panel, for comparison to data from the UCSF RA Panel. Data will be collected from RA Panel members via annual telephone interviews. Items to assess the impact of RAS on childbearing decisions, parenting behavior, coping behaviors, parental role adjustment, and parents' psychological adjustment will be added. Information on children's psychosocial adjustment will be collected from parents and teachers, Analyses will address thre major areas: 1) the impact of RA on childbearing decisions, factors associated with those decisions, and the psychological effects of those decisions; 2) the effects of RA on parenting behavior and factors associated with those effects; and 3) the impact of limitations on parenting behavior due to RA and parental role distress on parents' and children's psychosocial adjustment. The findings from this study will help to define the impact of RA on childbearing decisions, the impact of RA on parenting behaviors, effective and ineffective ways of coping with parenting behavior limitations due to RA, and the effect of childbearing decisions and limitations in parenting behavior on the psychological adjustment of parents with RA and their children. These data will provide valuable information for clinicians, counselors, and educators to enhance their contacts with individuals with RA, provide pre-conception counseling, and assist with adaptation to parenthood and the challenges of childbearing. The data from this project will greatly enhance the quality of life of individuals with RA and their families.