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Ethical Challenges in Lead Poisoning Prevention Research

铅中毒预防研究中的伦理挑战

基本信息

批准号：
6946943
负责人：
NANCY E KASS
金额：
$ 20.87万
依托单位：
JOHNS HOPKINS UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2002
资助国家：
美国
起止时间：
2002-09-30 至 2007-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/6946943
关键词：
behavioral /social science research tag clinical research communication community disease /disorder prevention /control environmental exposure environmental health ethics health education health science research human subject interview lead poisoning low socioeconomic status

项目摘要

DESCRIPTION (provided by applicant) Recent media attention on ethical, social, legal issues of CLP prevention research highlights the need for continuous and effective dialogue between communities and environmental health (EH) researchers about the aims, design, challenges, progress, and findings of research and ways to address these issues in the conduct and translation of research. The proposed project focuses on community involvement, capacity building, education, and empowerment in the context of CLP research conducted by the Kennedy Krieger Institute (KKI) and Johns Hopkins Bloomberg School of Public Health (JHBSPH). Specific aims are: 1) To build on existing infrastructure for sustained dialogue between EH researchers and community by creating a Community Board, building community capacity for research, and increasing researchers 'awareness of community values, priorities, knowledge; 2) to conduct with community involvement in-depth interviews, focus groups and surveys, assessing, community knowledge/attitudes/perceptions about EH research and CLP research in particular, EH researchers' knowledge/attitudes/perceptions about the community; and 3) to create educational materials with community related to EH research and CLP studies, including educational materials/programs for community related to four CLP studies; (b) developing educational materials/programs for researchers to address gaps in their knowledge and understanding of community, its needs, concerns, culture, and points of view about research; and (c) evaluating the process of developing and implementing the educational materials and their community impact. The project, targeted to the E. Baltimore Empowerment Zone, engages residents, community organizations, and individuals with expertise in bioethics, health education, community mediation, and the application of social marketing techniques to the development of innovative educational materials, to improve health and environmental justice. The investigators hypothesize that our approach can produce models for education of diverse communities and EH scientists.

描述（由申请人提供）最近媒体对 CLP 预防研究的伦理、社会和法律问题的关注凸显了社区和环境健康 (EH) 研究人员之间就研究的目标、设计、挑战、进展和结果以及在研究的进行和转化中解决这些问题的方法进行持续有效对话的必要性。拟议项目的重点是肯尼迪克里格研究所 (KKI) 和约翰霍普金斯大学彭博公共卫生学院 (JHBSPH) 进行的 CLP 研究背景下的社区参与、能力建设、教育和赋权。具体目标是： 1) 通过创建社区委员会、建设社区研究能力以及提高研究人员对社区价值观、优先事项和知识的认识，建立 EH 研究人员与社区之间持续对话的现有基础设施； 2) 在社区参与下进行深入访谈、焦点小组和调查，评估社区对 EH 研究和 CLP 研究的知识/态度/看法，特别是 EH 研究人员对社区的知识/态度/看法； 3) 与社区一起制作与 EH 研究和 CLP 研究相关的教育材料，包括与四项 CLP 研究相关的社区教育材料/项目； (b) 为研究人员制定教育材料/方案，以解决他们对社区、其需求、关切、文化和研究观点的知识和理解方面的差距； (c) 评估教材的制定和实施过程及其社区影响。该项目针对东巴尔的摩赋权区，吸引居民、社区组织和在生物伦理学、健康教育、社区调解以及应用社会营销技术开发创新教育材料方面具有专业知识的个人参与，以改善健康和环境正义。研究人员假设我们的方法可以为不同社区和 EH 科学家的教育建立模型。