Hearing Loss and Quality of Life of Children and Youth

儿童和青少年的听力损失和生活质量

• 批准号: 7371873
• 负责人: Donald Lee Patrick
• 金额: $ 42.27万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-03-06 至 2010-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7371873
• 关键词: Activities of Daily Living; Adolescence; Affect; Age; Anxiety; Arizona; Child; Childhood; Clinical; Clinical Trials; Cognitive; Colorado; Communication; Communities; Condition; Consultations; Counseling; Cues; Cultural Backgrounds; Data; Depth; Development; Device or Instrument Development; Educational Status; Elements; Environment; Ethnic Origin; Evaluation; Focus Groups; Goals; Grant; Healthy People 2010; Hearing; Hearing Impaired Persons; Human Development; Individual; Intervention; Interview; Language; Life; Literature; Measurement; Measures; Mental Depression; Methods; Modeling; Needs Assessment; New Mexico; Parents; Perceived quality of life; Personal Satisfaction; Persons; Placement; Program Evaluation; Property; Psychometrics; Publishing; Qualitative Research; Quality of life; Questionnaires; Randomized; Range; Readability; Reading; Recreation; Recruitment Activity; Reporting; Research; Research Personnel; Resources; Review Literature; Sample Size; Sampling; Schools; Site; Social Development; Speech Development; Surgeon; Testing; Treatment/Psychosocial Effects; United States Dept. of Health and Human Services; Update; Validation; Vision; Washington; Well in self; Work; Youth; base; cost; critical developmental period; day; design; experience; hearing impairment; innovation; instrument; novel; programs; response; skills; theories; tool; young adult

DESCRIPTION (provided by applicant): Goal: We will develop and test hearing-loss specific quality-of-life (QoL) modules designed to be sensitive to environmental and psychosocial effects of hearing loss with the goal of developing a novel, multidimensional tool for use in evaluating interventions. Aims: 1. identify key QoL issues and develop QoL items specific to children and youth with hearing loss by conducting in-depth interviews and focus groups with youth ages 11-18 years and with parents of children ages 5-10 years ; 2. validate the cross-sectional measurement properties of hearing-loss specific QoL modules using classical and item-response theory methods; 3. explore association of degree of D/HH with QoL and known or expected correlates, using a clustered sample design and 4. revise the draft youth- and parent-report D/HH Modules using validation results and to disseminate the new D/HH Modules Significance: Hearing loss in early life carries broadly recognized implications for the development of speech, language, and communication skills. Consequently, interpersonal relationships and social development are affected, influencing a child's sense of well-being. Measures that reflect this fundamental construct are needed for use in needs assessment, research, program design and program evaluation. Innovation: We intend to build a theoretically-driven QoL measure using a needs-based approach that actively involves parents and youth who represent a range of hearing losses and cultural backgrounds. Methods and Analysis: Study 1: In-depth interviews to the point of redundancy with a minimum of 30 deaf youth ages 11-18 years and a minimum of 30 parents of children ages 5-10 years with range of hearing loss and ethnicity. Focus groups with parents and young adults will augment in-depth interviews. Cognitive debriefing, adaptation of items into video form, and readability analyses will be conducted to produce test modules. Study 2: Validation sample of 500 youth who are in D/HH programs in day schools and their parents\guardians, 90 youth and their parent\guardians who are in D/HH residential schools will be recruited to complete test instrument(s) and other questionnaires taking a maximum of 45 minutes. Classical and item-response theory methods will be used for scale development. Instrument reliability and construct validity will be tested. Initial dissemination will occur in school districts and treatment facilities participating in the project in Washington, Colorado, and Arizona. Instruments will be available on DVD at minimum cost. Investigators: An interdisciplinary team of experienced instrument developers, clinicians familiar with options for management of hearing loss, and investigators actively involved in programs to enrich community resources for those with hearing loss will collaborate to recruit, study, present and publish results and disseminate resulting instruments.

描述（由申请人提供）：目标：我们将开发和测试听力损失特定的生活质量（QoL）模块，该模块旨在对听力损失的环境和心理社会影响敏感，目标是开发一种用于评估干预措施的新型多维工具。目的：1.通过对11-18岁的青少年和5-10岁儿童的父母进行深入访谈和焦点小组，确定关键的生活质量问题，并制定针对听力损失儿童和青少年的生活质量项目; 2.使用经典和项目反应理论方法验证听力损失特定QoL模块的横截面测量特性; 3.探索关联的程度D/HH与生活质量和已知或预期的相关性，使用聚类样本设计和4。使用验证结果修订青少年和家长报告的D/HH模块草案，并传播新的D/HH模块意义：生命早期的听力损失对言语、语言和沟通技能的发展具有广泛公认的影响。因此，人际关系和社会发展受到影响，影响儿童的幸福感。需要在需求评估、研究、方案设计和方案评价中采用反映这一基本结构的措施。创新：我们打算使用基于需求的方法建立一个理论驱动的QoL测量，该方法积极涉及代表一系列听力损失和文化背景的父母和青少年。方法和分析：研究1：对至少30名年龄在11-18岁之间的聋哑青年和至少30名年龄在5-10岁之间的听力损失和种族的儿童的父母进行了深入访谈。与父母和年轻人的焦点小组将加强深入访谈。认知汇报，改编成视频形式的项目，和可读性分析将进行制作测试模块。研究2：将招募500名在走读学校参加D/HH方案的青少年及其父母\监护人、90名在D/HH寄宿学校参加D/HH方案的青少年及其父母\监护人的验证样本，以完成最多45分钟的测试工具和其他问卷。经典和项目反应理论方法将用于量表开发。工具的信度和结构效度将进行测试。最初的传播将在华盛顿、科罗拉多和亚利桑那州参与该项目的学区和治疗设施进行。将以最低价格提供DVD。研究者：一个由经验丰富的仪器开发人员、熟悉听力损失管理方案的临床医生和积极参与为听力损失患者丰富社区资源的项目的调查人员组成的跨学科团队将合作招募、研究、展示和发布结果，并传播由此产生的仪器。