Hearing Loss and Quality of Life of Children and Youth

儿童和青少年的听力损失和生活质量

• 批准号: 7564573
• 负责人: Donald Lee Patrick
• 金额: $ 7.44万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-03-06 至 2010-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7564573
• 关键词: Activities of Daily Living; Adolescence; Affect; Age; Anxiety; Arizona; Child; Childhood; Clinical; Clinical Trials; Cognitive; Colorado; Communication; Communities; Condition; Consultations; Counseling; Cues; Cultural Backgrounds; Data; Depth; Development; Device or Instrument Development; Educational Status; Elements; Environment; Ethnic Origin; Evaluation; Focus Groups; Goals; Grant; Healthy People 2010; Hearing; Hearing Impaired Persons; Human Development; Individual; Intervention; Interview; Language; Life; Literature; Measurement; Measures; Mental Depression; Methods; Modeling; Needs Assessment; New Mexico; Parents; Perceived quality of life; Personal Satisfaction; Persons; Placement; Program Evaluation; Property; Psychometrics; Publishing; Qualitative Research; Quality of life; Questionnaires; Randomized; Range; Readability; Reading; Recreation; Recruitment Activity; Reporting; Research; Research Personnel; Resources; Review Literature; Sample Size; Sampling; Schools; Site; Social Development; Speech Development; Surgeon; Testing; Treatment/Psychosocial Effects; United States Dept. of Health and Human Services; Update; Validation; Vision; Washington; Well in self; Work; Youth; base; cost; critical developmental period; day; design; experience; hearing impairment; innovation; instrument; novel; programs; response; skills; theories; tool; young adult

Goal: We will develop and test hearing-loss specific quality-of-life (QoL) modules designed to be sensitive to environmental and psychosocial effects of hearing loss with the goal of developing a novel, multidimensional tool for use in evaluating interventions. Aims: 1. identify key QoL issues and develop QoL items specific to children and youth with hearing loss by conducting in-depth interviews and focus groups with youth ages 11-18 years and with parents of children ages 5-10 years ; 2. validate the cross-sectional measurement properties of hearing-loss specific QoL modules using classical and item-response theory methods; 3. explore association of degree of D/HH with QoL and known or expected correlates, using a clustered sample design and 4. revise the draft youth- and parent-report D/HH Modules using validation results and to disseminate the new D/HH Modules Significance: Hearing loss in early life carries broadly recognized implications for the development of speech, language, and communication skills. Consequently, interpersonal relationships and social development are affected, influencing a child's sense of well-being. Measures that reflect this fundamental construct are needed for use in needs assessment, research, program design and program evaluation. Innovation: We intend to build a theoretically-driven QoL measure using a needs-based approach that actively involves parents and youth who represent a range of hearing losses and cultural backgrounds. Methods and Analysis: Study 1: In-depth interviews to the point of redundancy with a minimum of 30 deaf youth ages 11-18 years and a minimum of 30 parents of children ages 5-10 years with range of hearing loss and ethnicity. Focus groups with parents and young adults will augment in-depth interviews. Cognitive debriefing, adaptation of items into video form, and readability analyses will be conducted to produce test modules. Study 2: Validation sample of 500 youth who are in D/HH programs in day schools and their parents\guardians, 90 youth and their parent\guardians who are in D/HH residential schools will be recruited to complete test instrument(s) and other questionnaires taking a maximum of 45 minutes. Classical and item-response theory methods will be used for scale development. Instrument reliability and construct validity will be tested. Initial dissemination will occur in school districts and treatment facilities participating in the project in Washington, Colorado, and Arizona. Instruments will be available on DVD at minimum cost. Investigators: An interdisciplinary team of experienced instrument developers, clinicians familiar with options for management of hearing loss, and investigators actively involved in programs to enrich community resources for those with hearing loss will collaborate to recruit, study, present and publish results and disseminate resulting instruments.

目标：我们将开发和测试设计灵敏的听力损失特定生活质量（QoL）模块