Hearing Loss and Quality of Life of Children and Youth

目标：我们将开发和测试旨在敏感的听力损失特定生活质量(QOL)模块 听力损失的环境和心理社会影响，目的是开发一种新的， 用于评估干预措施的多维工具。 目标：1.确定关键的生活质量问题，并制定专门针对听力损失儿童和青少年的生活质量项目 对11-18岁的青少年和儿童的父母进行深入访谈和焦点小组 年龄5-10岁；2.验证听力损失特定生活质量的横断面测量特性 模型使用经典和项目反应理论方法；3.探索D/HH程度与 生活质量与已知或预期的相关性，使用整群抽样设计和4.修订青年选秀-和 使用验证结果的家长报告D/HH模块并传播新的D/HH模块 意义：早期听力损失对儿童的发育有广泛的影响。 演讲、语言和沟通技巧。因此，人际关系和社会 发展受到影响，影响儿童的幸福感。反映这一基本原则的措施 建筑需要用于需求评估、研究、方案设计和方案评估。 创新：我们打算使用基于需求的方法来构建理论驱动的QOL衡量标准 积极让代表各种听力损失和文化背景的父母和青年参与进来。 方法与分析：研究1：深度访谈至至少30名聋人的冗余度 11-18岁的青少年和至少30名5-10岁听力损失儿童的父母 和种族。家长和年轻人组成的焦点小组将加强深度采访。认知 将进行汇报，将项目改编成视频形式，并进行可读性分析，以产生测试 模块。研究2：对500名参加日制学校D/HH项目的青年及其 将招募D/HH寄宿学校的父母\监护人、90名青少年及其父母\监护人 完成测试仪(S)等问卷，最长用时45分钟。古典和 量表的编制将采用项目反应理论方法。量表的信度和结构效度 将会受到考验。初步传播将在参与该活动的学区和治疗设施进行 在华盛顿、科罗拉多州和亚利桑那州的项目。仪器将以最低价格以DVD形式提供。 调查人员：由经验丰富的仪器开发人员、熟悉以下方面的临床医生组成的跨学科团队 听力损失管理的选择，以及调查人员积极参与丰富社区的计划 为听力损失患者提供的资源将合作招聘、研究、展示和发布成果，并 传播由此产生的工具。

Goal: We will develop and test hearing-loss specific quality-of-life (QoL) modules designed to be sensitive to environmental and psychosocial effects of hearing loss with the goal of developing a novel, multidimensional tool for use in evaluating interventions. Aims: 1. identify key QoL issues and develop QoL items specific to children and youth with hearing loss by conducting in-depth interviews and focus groups with youth ages 11-18 years and with parents of children ages 5-10 years ; 2. validate the cross-sectional measurement properties of hearing-loss specific QoL modules using classical and item-response theory methods; 3. explore association of degree of D/HH with QoL and known or expected correlates, using a clustered sample design and 4. revise the draft youth- and parent-report D/HH Modules using validation results and to disseminate the new D/HH Modules Significance: Hearing loss in early life carries broadly recognized implications for the development of speech, language, and communication skills. Consequently, interpersonal relationships and social development are affected, influencing a child's sense of well-being. Measures that reflect this fundamental construct are needed for use in needs assessment, research, program design and program evaluation. Innovation: We intend to build a theoretically-driven QoL measure using a needs-based approach that actively involves parents and youth who represent a range of hearing losses and cultural backgrounds. Methods and Analysis: Study 1: In-depth interviews to the point of redundancy with a minimum of 30 deaf youth ages 11-18 years and a minimum of 30 parents of children ages 5-10 years with range of hearing loss and ethnicity. Focus groups with parents and young adults will augment in-depth interviews. Cognitive debriefing, adaptation of items into video form, and readability analyses will be conducted to produce test modules. Study 2: Validation sample of 500 youth who are in D/HH programs in day schools and their parents\guardians, 90 youth and their parent\guardians who are in D/HH residential schools will be recruited to complete test instrument(s) and other questionnaires taking a maximum of 45 minutes. Classical and item-response theory methods will be used for scale development. Instrument reliability and construct validity will be tested. Initial dissemination will occur in school districts and treatment facilities participating in the project in Washington, Colorado, and Arizona. Instruments will be available on DVD at minimum cost. Investigators: An interdisciplinary team of experienced instrument developers, clinicians familiar with options for management of hearing loss, and investigators actively involved in programs to enrich community resources for those with hearing loss will collaborate to recruit, study, present and publish results and disseminate resulting instruments.