Using CBPR to design & Pilot a Physical Activity Program for Youth with ASD

使用CBPR进行设计

• 批准号: 7426671
• 负责人: RICHARD K FLEMING
• 金额: $ 19.24万
• 依托单位: UNIV OF MASSACHUSETTS MED SCH WORCESTER
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-07-10 至 2010-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7426671
• 关键词: Address; Adolescence; Adolescent; Affect; Age; Age-Years; American; Americas; Applied Research; Area; Asperger Syndrome; Attention; Autistic Disorder; Behavior; Behavioral; Bicycling; Boston; Caring; Centers for Disease Control and Prevention (U.S.); Child; Child Care; Childhood; Class; Cognitive; Collaborations; Commit; Communities; Comorbidity; Data; Depth; Development; Developmental Disabilities; Disabled Children; Disabled Persons; Effectiveness; Epidemic; Evaluation; Evidence based program; Exhibits; Faculty; Family; Family Practice; Focus Groups; Hand; Health; Health Benefit; Health Promotion; Health Services Research; Healthcare; Hour; Human; Individual; Interview; Investigation; Life; Marshal; Maternal and Child Health; Methodology; Motivation; Motor; National Health and Nutrition Examination Survey; Nature; Not Otherwise Specified; Numbers; Obesity; Outcome; Pan Genus; Parents; Persons; Pervasive Development Disorder; Physical activity; Population; Population Programs; Process; Psyche structure; Public Health; Public Policy; Publishing; Qualifying; Quality of life; Range; Rate; Reporting; Research; Research Personnel; Risk; Sampling; Schools; Services; Sports; Standards of Weights and Measures; Stimulus; Supervision; Surgeon; Surveys; Television; Testing; Time; United States; United States Dept. of Health and Human Services; Universities; Work; Youth; age related; aged; autism spectrum disorder; base; community based participatory research; day; design; desire; disability; health disparity; improved; knowledge base; medical schools; member; nervous system disorder; outreach; peer; prevent; professor; programs; research to practice; sedentary; skateboarding; skills; social; social skills

DESCRIPTION (provided by applicant): Children in the U.S. exhibit low levels of physical activity, and their time spent in sedentary behavior is on the rise. Inactivity represents a major health issue because it is a significant contributor to a national obesity epidemic that is now affecting children. Children with autism spectrum disorder (ASD) are as inactive as their typically-developing peers. ASD affects a child's ability to communicate, form social relationships, and respond appropriately to environmental stimuli, all of which present barriers to their participation in physical activity, particularly in the community. The main objective of this project is to use the Community-Based Participatory Research (CBPR) approach to develop and test a program to promote engagement in physical activity and its related health and social benefits in children and adolescents with ASD. A university-community CBPR partnership will be formed. Members will work collaboratively to identify research questions and design and test a physical activity program for this population. This project will deepen the scientific knowledge base about using CBPR to promote physical activity and health outcomes in ASD. Specific aims are to: 1) formalize a collaborative university-community partnership that is equal, respectful, and mutually beneficial to its members; 2) utilize the CBPR approach to develop a community-based physical activity program for children with ASD aged 6-18; 3) test the feasibility of implementing the program in the community and collecting valid and reliable data; and 4) evaluate the viability and effectiveness of the CBPR approach as a means of involving a community of children and adolescents with ASD, and their parents, in developing and piloting a community- based program. Specific aims 1 and 2 will be accomplished in Year 1; aims 3 and 4 in Year 2. Focus groups, surveys, key informant interviews and observation will comprise a formative evaluation in Year 1. Development of the physical activity program by the end of Year 1 will rely on the full collaboration of university and community partners. Program priorities will be defined, with the paramount objective being engagement of children (and families) in a range of health-promoting physical activities in a social community context. The program will be piloted in Year 2 as a small scale, exploratory investigation with a sample of 20 children and adolescents. Rigorous internal and external evaluation of the CBPR process (Aim 4) will be conducted by a CBPR expert as well as an external evaluator. PUBLIC HEALTH RELEVANCE The US Dept of Health and Human Services has emphasized the importance of physical activity for promoting health. One group of children, those with Autism Spectrum Disorders (ASD), represents a unique population who's social, cognitive, and motor limitations may be associated with low physical activity. Developing health promotion programs for children with ASD requires an in depth understanding of their needs, especially if opportunities for physical activity are to be accessible and sustainable. Community-Based Participatory Research (CBPR) is ideally suited to such an endeavor, particularly in the ways it can facilitate involvement of families of children with ASD.

描述（由申请人提供）：美国儿童的体力活动水平较低，而且他们久坐的时间正在增加。缺乏运动是一个重大的健康问题，因为它是导致目前正在影响儿童的全国性肥胖流行的一个重要因素。患有自闭症谱系障碍 (ASD) 的儿童与正常发育的同龄人一样缺乏运动。自闭症谱系障碍（ASD）会影响儿童的沟通能力、形成社会关系以及对环境刺激做出适当反应的能力，所有这些都会阻碍他们参与体育活动，尤其是在社区中。该项目的主要目标是利用基于社区的参与性研究 (CBPR) 方法来开发和测试一项计划，以促进患有自闭症谱系障碍的儿童和青少年参与体育活动及其相关的健康和社会效益。将建立大学-社区 CBPR 伙伴关系。成员将合作确定研究问题，并为该人群设计和测试体育活动计划。该项目将深化有关使用 CBPR 促进自闭症谱系障碍 (ASD) 身体活动和健康结果的科学知识基础。具体目标是： 1）正式建立对其成员平等、尊重和互利的大学与社区合作伙伴关系； 2) 利用CBPR方法为6-18岁自闭症谱系障碍儿童制定社区体育活动计划； 3）测试方案在社区实施的可行性并收集有效可靠的数据； 4) 评估 CBPR 方法的可行性和有效性，作为让自闭症谱系障碍儿童和青少年社区及其父母参与制定和试点社区计划的一种手段。具体目标 1 和 2 将在第一年实现；第二年的目标 3 和 4。焦点小组、调查、关键知情者访谈和观察将构成第一年的形成性评估。第一年年底之前体育活动计划的制定将依赖于大学和社区合作伙伴的充分合作。将确定计划的优先事项，最重要的目标是让儿童（和家庭）参与社会社区背景下的一系列促进健康的体育活动。该计划将在第二年以 20 名儿童和青少年为样本进行小规模探索性调查试点。 CBPR 专家和外部评估员将对 CBPR 流程（目标 4）进行严格的内部和外部评估。公共卫生相关性 美国卫生与公众服务部强调了身体活动对于促进健康的重要性。一组患有自闭症谱系障碍 (ASD) 的儿童代表了一个独特的群体，他们的社交、认知和运动受限可能与体力活动不足有关。为患有自闭症谱系障碍的儿童制定健康促进计划需要深入了解他们的需求，特别是如果要获得和可持续的体育活动机会。基于社区的参与性研究 (CBPR) 非常适合这种努力，特别是它可以促进自闭症儿童家庭的参与。