Using CBPR to design & Pilot a Physical Activity Program for Youth with ASD

使用CBPR进行设计

• 批准号: 7426671
• 负责人: RICHARD K FLEMING
• 金额: $ 19.24万
• 依托单位: UNIV OF MASSACHUSETTS MED SCH WORCESTER
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-07-10 至 2010-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7426671
• 关键词: Address; Adolescence; Adolescent; Affect; Age; Age-Years; American; Americas; Applied Research; Area; Asperger Syndrome; Attention; Autistic Disorder; Behavior; Behavioral; Bicycling; Boston; Caring; Centers for Disease Control and Prevention (U.S.); Child; Child Care; Childhood; Class; Cognitive; Collaborations; Commit; Communities; Comorbidity; Data; Depth; Development; Developmental Disabilities; Disabled Children; Disabled Persons; Effectiveness; Epidemic; Evaluation; Evidence based program; Exhibits; Faculty; Family; Family Practice; Focus Groups; Hand; Health; Health Benefit; Health Promotion; Health Services Research; Healthcare; Hour; Human; Individual; Interview; Investigation; Life; Marshal; Maternal and Child Health; Methodology; Motivation; Motor; National Health and Nutrition Examination Survey; Nature; Not Otherwise Specified; Numbers; Obesity; Outcome; Pan Genus; Parents; Persons; Pervasive Development Disorder; Physical activity; Population; Population Programs; Process; Psyche structure; Public Health; Public Policy; Publishing; Qualifying; Quality of life; Range; Rate; Reporting; Research; Research Personnel; Risk; Sampling; Schools; Services; Sports; Standards of Weights and Measures; Stimulus; Supervision; Surgeon; Surveys; Television; Testing; Time; United States; United States Dept. of Health and Human Services; Universities; Work; Youth; age related; aged; autism spectrum disorder; base; community based participatory research; day; design; desire; disability; health disparity; improved; knowledge base; medical schools; member; nervous system disorder; outreach; peer; prevent; professor; programs; research to practice; sedentary; skateboarding; skills; social; social skills

DESCRIPTION (provided by applicant): Children in the U.S. exhibit low levels of physical activity, and their time spent in sedentary behavior is on the rise. Inactivity represents a major health issue because it is a significant contributor to a national obesity epidemic that is now affecting children. Children with autism spectrum disorder (ASD) are as inactive as their typically-developing peers. ASD affects a child's ability to communicate, form social relationships, and respond appropriately to environmental stimuli, all of which present barriers to their participation in physical activity, particularly in the community. The main objective of this project is to use the Community-Based Participatory Research (CBPR) approach to develop and test a program to promote engagement in physical activity and its related health and social benefits in children and adolescents with ASD. A university-community CBPR partnership will be formed. Members will work collaboratively to identify research questions and design and test a physical activity program for this population. This project will deepen the scientific knowledge base about using CBPR to promote physical activity and health outcomes in ASD. Specific aims are to: 1) formalize a collaborative university-community partnership that is equal, respectful, and mutually beneficial to its members; 2) utilize the CBPR approach to develop a community-based physical activity program for children with ASD aged 6-18; 3) test the feasibility of implementing the program in the community and collecting valid and reliable data; and 4) evaluate the viability and effectiveness of the CBPR approach as a means of involving a community of children and adolescents with ASD, and their parents, in developing and piloting a community- based program. Specific aims 1 and 2 will be accomplished in Year 1; aims 3 and 4 in Year 2. Focus groups, surveys, key informant interviews and observation will comprise a formative evaluation in Year 1. Development of the physical activity program by the end of Year 1 will rely on the full collaboration of university and community partners. Program priorities will be defined, with the paramount objective being engagement of children (and families) in a range of health-promoting physical activities in a social community context. The program will be piloted in Year 2 as a small scale, exploratory investigation with a sample of 20 children and adolescents. Rigorous internal and external evaluation of the CBPR process (Aim 4) will be conducted by a CBPR expert as well as an external evaluator. PUBLIC HEALTH RELEVANCE The US Dept of Health and Human Services has emphasized the importance of physical activity for promoting health. One group of children, those with Autism Spectrum Disorders (ASD), represents a unique population who's social, cognitive, and motor limitations may be associated with low physical activity. Developing health promotion programs for children with ASD requires an in depth understanding of their needs, especially if opportunities for physical activity are to be accessible and sustainable. Community-Based Participatory Research (CBPR) is ideally suited to such an endeavor, particularly in the ways it can facilitate involvement of families of children with ASD.

描述(由申请者提供)：美国儿童的体力活动水平较低，他们花在久坐行为上的时间正在增加。缺乏运动是一个主要的健康问题，因为它是目前影响儿童的全国肥胖症流行的重要因素。患有自闭症谱系障碍(ASD)的儿童和他们典型发育的同龄人一样不活跃。自闭症影响儿童的交流、社会关系和对环境刺激做出适当反应的能力，所有这些都对他们参与体育活动构成障碍，特别是在社区中。该项目的主要目标是使用基于社区的参与性研究(CBPR)方法来开发和测试一项计划，以促进ASD儿童和青少年参与体育活动及其相关的健康和社会效益。将形成大学-社区CBPR伙伴关系。成员将通力合作，确定研究问题，并为这一群体设计和测试体育锻炼计划。该项目将深化关于使用CBPR促进ASD的体力活动和健康结果的科学知识基础。具体目标是：1)正式形成大学-社区合作伙伴关系，对其成员平等、尊重和互惠；2)利用CBPR方法为6-18岁的ASD儿童制定基于社区的体育活动计划；3)测试在社区实施该计划的可行性并收集有效和可靠的数据；以及4)评估CBPR方法作为一种手段的可行性和有效性，以使患有ASD的儿童和青少年及其父母参与制定和试行基于社区的计划。具体的目标1和2将在1年级完成；目标3和4将在2年级完成。焦点小组、调查、主要信息者访谈和观察将包括1年级的形成性评估。在1年级结束前，体育活动计划的发展将依赖于大学和社区合作伙伴的充分合作。将确定方案优先事项，最重要的目标是让儿童(和家庭)参与在社会社区背景下开展的一系列促进健康的体育活动。该计划将在第二年试行，作为一项小规模的探索性调查，抽样20名儿童和青少年。一名CBPR专家和一名外部评估员将对CBPR进程(目标4)进行严格的内部和外部评价。公共卫生相关性美国卫生与公众服务部强调了体育活动对促进健康的重要性。有一组儿童，那些患有自闭症谱系障碍(ASD)的儿童，代表了一个独特的群体，他们的社交、认知和运动限制可能与缺乏体力活动有关。为患有自闭症的儿童制定健康促进计划需要深入了解他们的需求，特别是如果要获得和可持续的体力活动机会。基于社区的参与性研究(CBPR)非常适合这样的努力，特别是在它可以促进患有自闭症儿童的家庭参与方面。