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Religion and Genomics: Navigating Pathways and Perspectives of Patient Care

宗教与基因组学：患者护理的路径和视角

基本信息

批准号：
7484855
负责人：
ELLEN WRIGHT CLAYTON
金额：
$ 3.19万
依托单位：
VANDERBILT UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2008
资助国家：
美国
起止时间：
2008-03-05 至 2009-02-28
项目状态：
已结题

项目摘要

DESCRIPTION (provided by applicant): Individuals' religious beliefs and practices can be implicated and challenged as they deal with the consequences of advances in genomics. While many people can reconcile these two bodies of knowledge, others are made uneasy or distressed by this new science in ways that affect their personal and political choices. For the past two years with the support of the Center for the Study of Religion and Culture at Vanderbilt, faculty, staff, and graduate students at Vanderbilt University and Meharry Medical College, one of the nation's most distinguished historically black medical schools, have been working together to understand the role religion plays as clinicians - genetic counselors, nurses, and physicians, - clergy, and patients deal with learning about genetic contributions to disease in the clinical setting. Our work in this area has been both conceptual and empirical, with each inquiry informing and enriching the other. Other scholars around the country have been exploring this critical intersection as well. We seek funding in this application for a pre-conference meeting and an invited conference to bring our group together with investigators involved in transdisciplinary projects around the country as well as local participants from the clinic, the church, and the public. Our purpose is to identify: 1) What is currently understood about the role religion plays in individuals' response to genetic information; 2.) What is currently understood about the role religion plays in shaping clinicians' and clergy's efforts to assist patients and parishioners when dealing with genetic information; and 3) What resources are needed to assist patients, clinicians, and clergy. We anticipate that the outcomes of our work together will be a richer understanding of these issues, a series of publications directed toward clinicians and clergy, and collaborations for future explorations.

描述（由申请人提供）：个人的宗教信仰和实践在应对基因组学进步的后果时可能会受到牵连和挑战。虽然许多人可以调和这两种知识体系，但其他人却对这门新科学感到不安或苦恼，从而影响了他们的个人和政治选择。过去两年，在范德比尔特宗教与文化研究中心的支持下，范德比尔特大学和梅哈里医学院（美国历史上最杰出的黑人医学院之一）的教职员工和研究生一直在共同努力，了解宗教在临床医生（遗传咨询师、护士和医生）、神职人员和患者在临床环境中了解遗传对疾病的影响时所扮演的角色。我们在这一领域的工作既是概念性的，又是实证性的，每项调查都为对方提供信息并丰富对方。全国各地的其他学者也一直在探索这个关键的交叉点。我们在此申请中寻求资金举办会前会议和邀请会议，以使我们的小组与参与全国各地跨学科项目的研究人员以及来自诊所、教会和公众的当地参与者聚集在一起。我们的目的是确定：1）目前人们对宗教在个人对遗传信息的反应中所扮演的角色的理解是什么； 2.) 目前对宗教在临床医生和神职人员处理遗传信息时协助患者和教区居民的努力中所发挥的作用有何了解； 3) 需要哪些资源来帮助患者、临床医生和神职人员。我们预计，我们共同努力的结果将是对这些问题有更丰富的理解，一系列针对临床医生和神职人员的出版物，以及未来探索的合作。