Genetic Privacy and Identity in Community Settings - GetPreCiSe
社区环境中的遗传隐私和身份 - GetPreCiSe
基本信息
- 批准号:10256016
- 负责人:
- 金额:$ 105.17万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2016
- 资助国家:美国
- 起止时间:2016-05-16 至 2024-06-30
- 项目状态:已结题
- 来源:
- 关键词:AddressAdvertisingAffectAgeAll of Us Research ProgramAmericanAreaArtificial IntelligenceArtsBehaviorBig DataCCL4 geneCaliforniaCaringClinicalClinical ResearchCommunitiesConceptionsConflict (Psychology)DataData CollectionData ProtectionData SecurityDepositionDevelopmentElectronic Health RecordEngineeringEnvironmentEuropean UnionFamilyFilmGenderGeneticGenetic IdentityGenetic ModelsGenetic PrivacyGenetic studyGenomicsGrowthHealthImaginationIndividualInfrastructureInternationalInternetInvestigationKnowledgeLaw EnforcementLawsLegalLinkLiteratureMedicalMethodsModelingNational Human Genome Research InstituteNewspapersParticipantPerceptionPoliciesPrivacyProviderPublic DomainsPublicationsRaceRadioRegulationResearchResearch PersonnelRiskRoleSeedsServicesSocial NetworkSocial SciencesSocietiesTechnologyTelevisionTestingTimeTrainingUnited StatesUnited States National Institutes of HealthUse of New TechniquesVisualWorkbasebehavior influencebehavioral economicsblockchaincohortcommunity settingcomputerized data processingdata accessdata privacydata sharingdesignethical legal social implicationgenetic informationgenetic testinggenomic datainnovationinsightinterestlegal implicationminimal riskmultidisciplinarymultimodalitynew technologynewsnext generationsexsocialsocial media
项目摘要
Genetic Privacy and Identity in Community Settings (GetPreCiSe), is an NHGRI Center of Excellence in ELSI
Research (CEER) that, in its first four years, established an environment for multi-disciplinary study that produced
innovative ways of studying genetic privacy and identity. Specifically, the center 1) parsed the concept of genetic
privacy into its often conflated constituent components, including: the “right to be let alone,” control and
governance of data, and concerns about downstream uses of data; 2) documented and critically assessed the
privacy practices of direct to consumer genetic testing (DTC-GT) companies; 3) examined how and why people
trade off personal privacy for other social goods and services; 4) used new techniques to explore how film,
television, and social media reflect and affect public perceptions of genetic privacy; and 5) refined understanding
of the risk that people will be re-identified from their genomic information. During this time, many developments
raised new issues of privacy and identity for genetics. First is the growth of DTC-GT, which generates genetic
information used to trace ancestry, acquire health information, find relatives, uncover parentage, and pursue law
enforcement investigations, among other activities. Second, laws and regulations governing data privacy and
security, particularly with respect to genomics, are changing rapidly in the U.S. and abroad. These often conflict
and present new challenges as genomic data move across state and international borders. Third, the creation
of ever larger cohorts, such as the NIH’s All of Us Research Program, raises further dilemmas because some or
all of the genomic and other data participants provide will be made available to investigators working in a variety
of settings and subject to different regulatory regimes. Moreover, participants in these studies may receive
research results, which could be deposited in their electronic health records, making this data subject to clinical
regulation and compelling action by clinical providers who may not have the knowledge or infrastructure to
respond. Thus, as our understanding of genomics increases, so, too, do its multifarious roles and implications
for individuals, families, and society evolve. Given the evolving landscape, in its next four years GetPreCiSe will
address three complementary specific aims: 1) Apply multimodal methods to characterize how social practices
affect, and are affected by, evolving notions of genetic privacy and identity and increased availability of data, 2)
Characterize how emerging legal and regulatory frameworks influence genomic privacy and identity in the US
and abroad, and 3) Engineer and evaluate new technologies and quantitative frameworks that have potential to
intrude on, but also protect, genetic privacy and identity. Recognizing that genetic data processing opportunities
and threats are evolving, GetPreCiSe is designed to be a multi-disciplinary center, focused on training the next
generation of ELSI researchers, with sufficient agility to respond to emerging issues. We anticipate these aims
will need to be refined, and possibly pivoted, over the next four years and so stand ready to seed new
investigations into emerging issues and compose new teams for investigation as needed.
社区环境中的遗传隐私和身份(GetPreCiSe)是NHGRI在ELSI的卓越中心
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
数据更新时间:{{ journalArticles.updateTime }}
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
数据更新时间:{{ journalArticles.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ monograph.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ sciAawards.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ conferencePapers.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ patent.updateTime }}
ELLEN WRIGHT CLAYTON其他文献
ELLEN WRIGHT CLAYTON的其他文献
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
{{ truncateString('ELLEN WRIGHT CLAYTON', 18)}}的其他基金
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
性少数群体的遗传隐私和身份:GetPrISM
- 批准号:
10005405 - 财政年份:2019
- 资助金额:
$ 105.17万 - 项目类别:
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
性少数群体的遗传隐私和身份:GetPrISM
- 批准号:
9803955 - 财政年份:2019
- 资助金额:
$ 105.17万 - 项目类别:
LawSeq: Building a Sound Legal Foundation for Translating Genomics into Clinical Application
LawSeq:为基因组学临床应用奠定良好的法律基础
- 批准号:
9104777 - 财政年份:2016
- 资助金额:
$ 105.17万 - 项目类别:
Genetic Privacy and Identity in Community Settings - GetPreCiSe
社区环境中的遗传隐私和身份 - GetPreCiSe
- 批准号:
10436969 - 财政年份:2016
- 资助金额:
$ 105.17万 - 项目类别:
Genetic Privacy and Identity in Community Settings - GetPreCiSe
社区环境中的遗传隐私和身份 - GetPreCiSe
- 批准号:
9274368 - 财政年份:2016
- 资助金额:
$ 105.17万 - 项目类别:
Genetic Privacy and Identity in Community Settings - GetPreCiSe
社区环境中的遗传隐私和身份 - GetPreCiSe
- 批准号:
9982627 - 财政年份:2016
- 资助金额:
$ 105.17万 - 项目类别:
Genetic Privacy and Identity in Community Settings - GetPreCiSe
社区环境中的遗传隐私和身份 - GetPreCiSe
- 批准号:
10675441 - 财政年份:2016
- 资助金额:
$ 105.17万 - 项目类别:
Returning Research Results of Pediatric Genomic Research to Participants
将儿科基因组研究的研究结果返回给参与者
- 批准号:
8240780 - 财政年份:2011
- 资助金额:
$ 105.17万 - 项目类别:
Returning Research Results of Pediatric Genomic Research to Participants
将儿科基因组研究的研究结果返回给参与者
- 批准号:
8337379 - 财政年份:2011
- 资助金额:
$ 105.17万 - 项目类别:
Religion and Genomics: Navigating Pathways and Perspectives of Patient Care
宗教与基因组学:患者护理的路径和视角
- 批准号:
7484855 - 财政年份:2008
- 资助金额:
$ 105.17万 - 项目类别:
相似国自然基金
小型类人猿合唱节奏的功能假说——宣
示社会关系(Social bond
advertising) ——验证研究
- 批准号:
- 批准年份:2025
- 资助金额:10.0 万元
- 项目类别:省市级项目
相似海外基金
SaTC: CORE: Medium: Increasing user autonomy and advertiser and platform responsibility in online advertising
SaTC:核心:中:增加在线广告中的用户自主权以及广告商和平台责任
- 批准号:
2318290 - 财政年份:2024
- 资助金额:
$ 105.17万 - 项目类别:
Continuing Grant
Marketing meaninglessness: critical anthropology of transnational advertising agencies
营销无意义:跨国广告公司的批判人类学
- 批准号:
2724869 - 财政年份:2024
- 资助金额:
$ 105.17万 - 项目类别:
Studentship
Collaborative Research: SaTC: CORE: Medium: Understanding and Combatting Impersonation Attacks and Data Leakage in Online Advertising
协作研究:SaTC:核心:媒介:理解和打击在线广告中的冒充攻击和数据泄露
- 批准号:
2247516 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Continuing Grant
Innovation in Manufacturing to benefit the Marketing & Advertising Industry
制造创新有利于营销
- 批准号:
10064566 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Collaborative R&D
The Impact of Programmatic Advertising on Market Competition
程序化广告对市场竞争的影响
- 批准号:
23K18786 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Grant-in-Aid for Research Activity Start-up
A Dynamic Analysis of Advertising Interactive Techniques to Gain the Consumer Engagement
获得消费者参与的广告互动技术的动态分析
- 批准号:
23K01642 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Enabling profitable digital advertising for British SMEs with AI-powered multichannel ads brokerage service
通过人工智能驱动的多渠道广告经纪服务,为英国中小企业实现盈利的数字广告
- 批准号:
10070962 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Collaborative R&D
Cross-Platform Advertising Accountability
跨平台广告责任
- 批准号:
10071299 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Collaborative R&D
Improving the accountability of dark advertising on digital platforms
提高数字平台上暗广告的问责制
- 批准号:
IE230100647 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Early Career Industry Fellowships
An AI/ML-powered insight and improvement tool to help bricks and mortar Mission-Led Business (MLBs) to improve advertising, marketing and business performance
一款由 AI/ML 驱动的洞察和改进工具,可帮助实体任务主导型企业 (MLB) 改善广告、营销和业务绩效
- 批准号:
10067255 - 财政年份:2023
- 资助金额:
$ 105.17万 - 项目类别:
Collaborative R&D