权益分类	功能权益	普通用户	{{item.name}}会员
{{category.name}}	{{benefitItem.name}}

Autism Registry

自闭症登记处

基本信息

批准号：
8020769
负责人：
GREGORY G SIMON
金额：
$ 84.24万
依托单位：
KAISER FOUNDATION HEALTH PLAN OF WASHINGTON
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-09-24 至 2013-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8020769
关键词：
Address Adolescent Affect Age Algorithms Autistic Disorder Behavior Belief Birth Certificates California Caring Censuses Child Childhood Clinical Clinical Research Collection Communication Communities Comorbidity Complementary and alternative medicine Complex Computerized Medical Record Data Databases Development Diagnosis Diagnostic Disease Economics Effectiveness Enrollment Family Family member Future Genetic Materials Goals Health Health Planning Health system Healthcare Impairment Incidence Information Services Investigation Medical Mental Health Methods Neurodevelopmental Disorder Online Systems Parents Participant Patients Perception Pharmaceutical Preparations Pharmacogenomics Population Population Heterogeneity Prevalence Preventive Procedures Process Protocols documentation Registries Research Research Design Research Infrastructure Research Personnel Research Proposals Resources Sampling Services Site Social Interaction Structure Surveys System Testing Time Treatment Effectiveness Treatment Efficacy Variant autism spectrum disorder case finding comparative effectiveness cost effectiveness research experience health related quality of life interest life time cost population based repository research study response service intervention service utilization sex willingness

项目摘要

Autism is common, often devastating, and expensive Autism spectrum disorders (ASDs) are a heterogeneous group of complex neurodevelopmental disorders with eariy childhood onset that are characterized by impairments in communication, social interaction, and repetitive behavior (1). ASDs can have devastating impacts on the development ofthe affected child and her/his family and community. While there is considerable controversy about whether the incidence of ASD is increasing, the most recent estimates suggest that the disorder affects 1% of children (2, 3). A recent comprehensive economic analysis in the US estimated the lifetime per capita incremental societal cost of autism as $3.2 million, and the lifetime cost for all currently affected children in the U.S. as approximately $35 billion (4).

自闭症是常见的，往往是毁灭性的，昂贵的自闭症谱系障碍（ASD）是一组复杂的神经发育障碍，具有早期儿童发病，其特征是沟通，社会互动和重复行为的障碍（1）。自闭症可能对受影响儿童及其家庭和社区的发展产生破坏性影响。虽然关于ASD的发病率是否正在增加存在相当大的争议，但最近的估计表明，该疾病影响1%的儿童（2，3）。美国最近的一项综合经济分析估计，自闭症的终身人均增量社会成本为3.2美元。百万美元，美国目前所有受影响儿童的终身成本约为350亿美元（4）。