The Caregiving Trajectory for Community-Dwelling Mexican-American Elders

社区居住的墨西哥裔美国老年人的护理轨迹

基本信息

批准号：
8099676
负责人：
Bronwynne Cadwalader Evans
金额：
$ 42.32万
依托单位：
ARIZONA STATE UNIVERSITY-TEMPE CAMPUS
依托单位国家：
美国
项目类别：
财政年份：
2008
资助国家：
美国
起止时间：
2008-08-01 至 2013-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8099676
关键词：
Accounting Acculturation Activities of Daily Living Address Admission activity Adult Advisory Committees Age Americas Area Behavior Caregiver Burden Caregivers Caring Case Study Censuses Characteristics Cognitive Communities Country Deterioration Elderly Emotional Enrollment Ensure Ethnic Origin Ethnic group Event Eye Family Family member Gender German population Gerontology Goals Health Healthcare Hispanics Home Nursing Care Home environment Household Impaired cognition Individual Institutionalization Intervention Interview Knowledge Lead Life Life Cycle Stages Life Expectancy Light Literature Measurement Measures Mental Depression Methods Mexican Americans Minority Nature Nursing Homes Occupations Participant Pattern Perception Phase Population Population Heterogeneity Populations at Risk Price Protocols documentation Questionnaires Race Reporting Research Research Design Risk Role Sampling Science Sleeplessness Societies Socioeconomic Status Time TimeLine United States National Academy of Sciences Variant aged base care giving burden caregiving cognitive function cohort cost demographics design disability ethnic minority population experience functional decline functional status geriatric depression health disparity indexing instrumental activity of daily living minority health neglect patient home care patient oriented prevent social therapy design vigilance

项目摘要

DESCRIPTION (provided by applicant): Caregiving burden among Hispanic caregivers is a little understood and growing problem. As a result, research to address caregiver burden and prevent institutionalization in these populations is critical. It is estimated that there are over 42 million Hispanics in the U.S. and the cohort over age 65 is expected to grow faster than any other racial or ethnic group, tripling in number by 2050. Thirteen percent of Hispanic households currently provide care to an adult aged 50 or older whose life expectancy will increase to 87 years by 2050, surpassing all other ethnic groups. Given this dramatic shift in demographics, a burgeoning number of Hispanic families will be placed in a caregiving role. The purpose of this proposed study is to investigate the burden of caregiving in this at-risk population by describing the level, circumstances, and consequences of caregiver burden/strain, and determining the impact of cultural and contextual variables on caregiving and caregiver gain, along with factors that lead to nursing home admission. This proposed project is a longitudinal mixed methods descriptive study designed to intensively explore the natural course of caregiving, caregiving burden and strain, caregiver gain, and admission to nursing homes among Mexican-American families. One hundred ten caregiver-care recipient cases will be enrolled and followed for 15 months. Interviews and standardized questionnaires will be completed at baseline and every 10 weeks, with an additional measurement point if nursing home admission occurs. We will compare and contrast transitions and turning points in the caregiving trajectory (taking into account acculturation, the nature of the caregiver-care recipient relationship, gender, functional and cognitive status, and depression); identify factors that support caregiving; and determine what factors are most important in delaying institutionalization. The core component will be a case-oriented approach, that is, an intensive, qualitatively-driven, study of cases with an eye toward configurations of similarities and differences. A simultaneous, complementary, quantitatively-driven variable-oriented component will look for broad patterns across cases and enable the drawing of inferences based on these broad patterns. These approaches will be integrated throughout the analytic and interpretive phases of the study. This in-depth, systematic research into the caregiving trajectory should prove useful in designing interventions that are timed to occur simultaneously with known crisis points and help keep elders at home or to help families acknowledge when formal nursing home care should be sought. PROJECT NARRATIVE Using life course perspective, this longitudinal, descriptive, mixed methods study is designed to explore the natural course of caregiving, caregiving burden and strain, caregiver gain, and admission to nursing homes among 110 Mexican-American families. The core component will be a case-oriented approach, that is, an intensive, qualitatively-driven, study of cases with an eye toward configurations of similarities and differences. A simultaneous, complementary, quantitatively-driven variable-oriented component will look for broad patterns across cases and enable the drawing of inferences based on these broad patterns. We will compare and contrast transitions and turning points in the caregiving trajectory (taking into account acculturation, the nature of the caregiver-care recipient relationship, gender, functional and cognitive status, and depression); identify factors that support caregiving; and determine what factors are most important in delaying nursing home admission.

描述（由申请人提供）：西班牙裔护理人员之间的护理负担有些理解和越来越多的问题。结果，解决护理人员负担并防止这些人群制度化的研究至关重要。据估计，在美国有超过4200万西班牙裔美国人，预计65岁以上的队列将比其他任何种族或族裔的增长快，到2050年，数量增加了三倍。目前，十三岁的西班牙裔家庭为50岁以上的成年人提供护理，其预期寿命将增加到2050年，到2050年，占地87岁，占据了所有其他民族。鉴于人口统计学的这种戏剧性转变，将会担任迅速发展的西班牙裔家庭。这项拟议的研究的目的是通过描述照顾者负担/压力的水平，情况和后果，确定文化和上下文变量对护理和照料者的收益的影响，以及导致护理家庭入学的因素，来调查这种高危人群中的护理负担。该提出的项目是一项纵向混合方法描述性研究，旨在深入探讨墨西哥裔美国人家庭中疗养院的自然护理，护理负担和压力，护理人员的收益以及疗养院的录取。将招募一百个十个照顾者护理人员案件，并遵循15个月。访谈和标准化问卷将在基线和每10周完成一次，如果发生疗养院入学，将有一个额外的测量点。我们将在护理轨迹中比较和对比过渡和转折点（考虑到适应性，照顾者护理人员关系的性质，性别，功能和认知状况以及抑郁症）；确定支持护理的因素；并确定哪些因素在延迟制度化方面最重要。核心组成部分将是一种面向病例的方法，即，是一种密集的，定性驱动的方法，研究了朝着相似性和差异配置的案例研究。同时的，互补的，定量驱动的以变量为导向的组件将在案例中寻找广泛的模式，并基于这些广泛的模式来绘制推论。这些方法将在研究的整个分析和解释阶段进行整合。对护理轨迹的这项深入的，系统的研究应被证明在设计与已知危机点同时进行的干预措施时有用，并有助于将长者留在家中，或者帮助家人确认应寻求正式的疗养院护理。这种纵向，描述性的混合方法研究旨在探讨110名墨西哥裔美国人家庭中养老院的自然培训，旨在探讨这项纵向，描述性的混合方法研究的项目叙述，旨在探索自然的护理，照料负担和压力，看护人的收益以及入学。核心组成部分将是一种面向病例的方法，即，是一种密集的，定性驱动的方法，研究了朝着相似性和差异配置的案例研究。同时的，互补的，定量驱动的以变量为导向的组件将在案例中寻找广泛的模式，并基于这些广泛的模式来绘制推论。我们将在护理轨迹中比较和对比过渡和转折点（考虑到适应性，照顾者护理人员关系的性质，性别，功能和认知状况以及抑郁症）；确定支持护理的因素；并确定哪些因素在延迟疗养院入学时最重要。