Multimedia Program for Families Impacted by the Challenges of Childhood TBI

描述（由申请人提供）：据报道，创伤性脑损伤（TBI）是美国1至19岁儿童死亡和残疾的主要原因。在美国，每年大约有30,000名儿童和青少年因碰撞（即汽车，摩托车和自行车），跌倒，娱乐伤害和枪支事故而遭受严重的TBI残疾。创伤性脑损伤通常会导致社会、行为、身体和认知功能的显著和永久性改变。了解这些变化并培养管理与之相关的挑战的技能对于创伤性脑损伤幸存者及其家人的长期积极结果至关重要。该项目的目标是为TBI儿童的家庭和照顾者创建一个全面的教育和培训资源，强调有效的策略来管理三种最常见的TBI挑战：认知、行为和社会残疾。第一阶段项目将侧重于理解认知变化，以及能够减轻这些变化对日常生活影响的环境、补偿和沟通策略。第一阶段原型项目的有效性将在受试者前测后测研究中进行评估（N=40）。第二阶段的开发将扩大内容，包括：(a)关于损伤机制和对大脑的身体影响的教育单元，(b)创伤性脑损伤对身体、行为和社会心理功能的影响，(c)应对行为和社会心理挑战的策略，以及(d)复诊功能。完成的II期项目将在一项大规模随机试验中进行评估。

DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is reported to be the leading cause of death and disability for children aged 1 to 19 in the United States. Each year in the United States, approximately 30,000 children and youth experience significant disability from TBI as a result of collisions (i.e., automobile, motorcycle, and bicycle), falls, recreational injuries, and firearm incidents. TBI often results in significant and permanent alterations in social, behavioral, physical, and cognitive functioning. Understanding these changes and developing skills for managing the challenges associated with them are essential for long-term positive outcomes for survivors of TBI and their families. The goal of this project is to create a comprehensive educational and training resource for families and caregivers of children with TBI, emphasizing effective strategies for managing the three most common TBI challenges: cognitive, behavioral, and social disabilities. The Phase I project will focus on understanding cognitive changes and on environmental, compensatory, and communication strategies that can mitigate the impact of these changes on daily life. The efficacy of the Phase I prototype program will be evaluated in a within subject pretest-to-posttest study (N=40). Phase II development will expand content to include: (a) educational units on mechanisms of injury and the physical impact on the brain, (b) the effects of TBI on physical, behavioral and psychosocial functioning, (c) strategies for addressing behavioral and psychosocial challenges, and (d) a repeat-visit function. The completed Phase II program will be evaluated in a large-scale randomized trial. PUBLIC HEALTH RELEVANCE: Traumatic brain injury is a leading cause of death and disability in children aged 1-19 in the United States. Each injury is unique, and many result in thinking, learning, emotional, and behavioral complications. Families are ill-equipped to handle these changes. This program offers training regarding the cognitive, behavioral, and social challenges of childhood TBI with the web-based convenience of allowing "anytime/anywhere" learning.