Multimedia Program for Families Impacted by the Challenges of Childhood TBI

为受童年创伤性脑损伤挑战影响的家庭提供多媒体计划

• 批准号: 8058203
• 负责人: Ann E Glang
• 金额: $ 20万
• 依托单位: OREGON CENTER FOR APPLIED SCIENCE, INC.
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-04-01 至 2012-09-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8058203
• 关键词: Address; Affect; Americas; Automobiles; Behavioral; Bicycling; Brain; Brain Injuries; Caring; Cause of Death; Characteristics; Child; Childhood; Cognitive; Collaborations; Communication; Decision Trees; Development; Devices; Educational Materials; Educational process of instructing; Elements; Emotional; Evaluation; Family; Family Caregiver; Family Relationship; Family member; Firearms; Foundations; Goals; Home environment; Impaired cognition; Incentives; Individual; Injury; Insurance Carriers; Internet; Interview; Knowledge; Knowledge acquisition; Lawyers; Learning; Libraries; Life; Literature; Measures; Medical; Medical Care Costs; Modeling; Motorcycles; Multimedia; Online Systems; Outcome; Parents; Phase; Problem Solving; Process; Provider; Rehabilitation therapy; Reporting; Research; Resources; Sales; Services; Social Work; Study Subject; Surveys; Survivors; Techniques; Testing; Thinking; Training; Training Programs; Traumatic Brain Injury; United States; Visit; advocacy organizations; aged; base; cognitive change; cognitive function; commercial application; commercialization; community setting; design; disability; evaluation/testing; evidence base; experience; falls; improved; interactive multimedia; life time cost; model design; programs; prototype; psychosocial; randomized trial; skill acquisition; skills; social; technological innovation; tool; usability

DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is reported to be the leading cause of death and disability for children aged 1 to 19 in the United States. Each year in the United States, approximately 30,000 children and youth experience significant disability from TBI as a result of collisions (i.e., automobile, motorcycle, and bicycle), falls, recreational injuries, and firearm incidents. TBI often results in significant and permanent alterations in social, behavioral, physical, and cognitive functioning. Understanding these changes and developing skills for managing the challenges associated with them are essential for long-term positive outcomes for survivors of TBI and their families. The goal of this project is to create a comprehensive educational and training resource for families and caregivers of children with TBI, emphasizing effective strategies for managing the three most common TBI challenges: cognitive, behavioral, and social disabilities. The Phase I project will focus on understanding cognitive changes and on environmental, compensatory, and communication strategies that can mitigate the impact of these changes on daily life. The efficacy of the Phase I prototype program will be evaluated in a within subject pretest-to-posttest study (N=40). Phase II development will expand content to include: (a) educational units on mechanisms of injury and the physical impact on the brain, (b) the effects of TBI on physical, behavioral and psychosocial functioning, (c) strategies for addressing behavioral and psychosocial challenges, and (d) a repeat-visit function. The completed Phase II program will be evaluated in a large-scale randomized trial. PUBLIC HEALTH RELEVANCE: Traumatic brain injury is a leading cause of death and disability in children aged 1-19 in the United States. Each injury is unique, and many result in thinking, learning, emotional, and behavioral complications. Families are ill-equipped to handle these changes. This program offers training regarding the cognitive, behavioral, and social challenges of childhood TBI with the web-based convenience of allowing "anytime/anywhere" learning.

描述（由申请人提供）： 据报道，创伤性脑损伤 (TBI) 是美国 1 至 19 岁儿童死亡和残疾的主要原因。在美国，每年约有 30,000 名儿童和青少年因碰撞（即汽车、摩托车和自行车）、跌倒、休闲伤害和枪支事故而遭受 TBI 严重残疾。 TBI 通常会导致社交、行为、身体和认知功能发生显着且永久性的改变。了解这些变化并培养应对相关挑战的技能对于 TBI 幸存者及其家人的长期积极成果至关重要。 该项目的目标是为 TBI 儿童的家庭和护理人员创建全面的教育和培训资源，强调应对三个最常见的 TBI 挑战的有效策略：认知、行为和社交障碍。第一阶段项目将侧重于了解认知变化以及可以减轻这些变化对日常生活影响的环境、补偿和沟通策略。第一阶段原型计划的功效将在受试者内的前测到后测研究（N = 40）中进行评估。第二阶段的开发将扩大内容，包括：（a）关于损伤机制和对大脑的物理影响的教育单元，（b）TBI对身体、行为和心理社会功能的影响，（c）解决行为和心理社会挑战的策略，以及（d）重复访问功能。已完成的二期计划将在大规模随机试验中进行评估。 公共卫生相关性：创伤性脑损伤是美国 1-19 岁儿童死亡和残疾的主要原因。每一种伤害都是独特的，许多伤害会导致思维、学习、情感和行为方面的并发症。家庭没有能力应对这些变化。该计划提供有关儿童 TBI 的认知、行为和社交挑战的培训，并提供基于网络的便利性，允许“随时随地”学习。