Brain Injury Support and Strategies for Families Impacted by Childhood TBI

针对受童年 TBI 影响的家庭的脑损伤支持和策略

• 批准号: 9314267
• 负责人: Ann E Glang
• 金额: $ 60.38万
• 依托单位: ASSISTECH SYSTEMS, LLC
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-04-01 至 2019-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9314267
• 关键词: Accident and Emergency department; Achievement; Address; Affect; Age; Architecture; Area; Behavior; Behavior Control; Behavioral; Brain Injuries; Caring; Cause of Death; Characteristics; Child; Child Rearing; Childhood; Cognition; Cognitive; Development; Educational Materials; Elements; Evaluation; Family; Focus Groups; Goals; Group Interviews; Health; Hospitalized Adolescent; Hospitals; Incentives; Instruction; Insurance Carriers; Internet; Interview; Knowledge; Knowledge acquisition; Libraries; Literature; Measures; Mediating; Medical Care Costs; Modeling; Modification; Narration; Notification; Online Systems; Outcome; Parents; Pediatric Hospitals; Phase; Physical Function; Planning Theory; Positioning Attribute; Problem Solving; Process; Provider; Randomized Controlled Trials; Rehabilitation therapy; Research; Resources; Self Efficacy; Self-Direction; Services; Social Work; Social support; Sports; Testing; TimeLine; Training; Training Activity; Traumatic Brain Injury; United States; Vehicle crash; aged; base; behavior change; cognitive change; cognitive function; commercialization; computer design; computer program; cost; design; disability; evidence base; experience; falls; improved; improved outcome; interest; pediatric traumatic brain injury; physical abuse; programs; prototype; public health relevance; satisfaction; screening; skill acquisition; skills; social; social skills; theories; tool; web site; web-based tool

 DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is a leading cause of death and disability for children aged 1-19 in the United States. More than 60,000 children and adolescents are hospitalized annually in the U.S. after sustaining moderate-severe brain injuries from motor vehicle crashes, falls, sports, and physical abuse; more than 600,000 are seen in hospital emergency rooms and released. TBI often results in significant and permanent alterations in social, behavioral, physical, and cognitive functioning. Understanding these changes and developing skills to manage the challenges associated with them are essential for long-term positive outcomes for children with TBI and their families. The goal of this project is o produce the Traumatic Brain Injury Positive Strategies (TIPS) program, a comprehensive educational and training resource to help families improve their knowledge and skills in supporting a child with TBI experiencing cognitive, behavioral, and social challenges. The online product will include: (a) the TBI Resource Center, an extensive library of educational materials, information, and resources about childhood TBI, and (b) the Training Center, which will provide training in a range of evidence-based strategies within a problem-solving framework. Phase I of this project produced and evaluated prototype content, for the Training Center, including two Supporting Cognition modules and a Problem-Solving Basics module. The prototype was evaluated with 47 parents of children ages 5-18 with TBI. Significant results from the within-subject evaluation demonstrated gains in parents' self-efficacy, general TBI knowledge, and knowledge application. In Phase II, we will develop (a) an assessment module to identify key areas of parent concern, (b) additional training modules addressing cognitive, behavioral, and social domains, (c) the TBI Resource Center, and (d) functionality for hospital website integration. To promote knowledge and skill acquisition, the program will integrate evidence-based instructional design elements with video-based modeling, taking full advantage of the web's interactive capabilities. The program will be developed using an iterative process with an advisory board of rehabilitation professionals from three collaborating children's hospitals. We will determine the efficacy of the TIPS program in a randomized controlled trial with 216 parents of children with TBI. Program feasibility will be demonstrated by the achievement of significant program effects, a high level of program usage, and a high degree of user satisfaction.

 描述（由申请人提供）：创伤性脑损伤（TBI）是美国1-19岁儿童死亡和残疾的主要原因。在美国，每年有超过60，000名儿童和青少年因车祸、福尔斯、运动和身体虐待而遭受中度至重度脑损伤后住院治疗;超过600，000人在医院急诊室就诊并出院。TBI通常会导致社会，行为，身体和认知功能的显著和永久性改变。了解这些变化并发展技能来应对与之相关的挑战，对于TBI儿童及其家庭的长期积极成果至关重要。 该项目的目标是制定创伤性脑损伤积极策略（TIPS）计划，这是一个全面的教育和培训资源，旨在帮助家庭提高他们的知识和技能，以支持TBI儿童经历认知，行为和社会挑战。在线产品将包括：（a）创伤性脑损伤资源中心，这是一个关于儿童创伤性脑损伤的教育材料、信息和资源的广泛图书馆，以及（B）培训中心，它将在解决问题的框架内提供一系列循证战略方面的培训。该项目的第一阶段为培训中心制作并评估了原型内容，包括两个辅助认知模块和一个解决问题的基础模块。该原型与47名5-18岁TBI儿童的父母进行了评估。受试者内评估的显著结果表明，父母的自我效能感，一般TBI知识和知识应用的收益。 在第二阶段，我们将开发（a）一个评估模块，以确定家长关注的关键领域，（B）额外的培训模块，解决认知，行为和社会领域，（c）TBI资源中心，以及（d）医院网站集成的功能。为了促进知识和技能的获取，该计划将整合基于证据的教学设计元素与基于视频的建模，充分利用网络的交互能力。该计划将使用迭代过程与来自三家合作儿童医院的康复专业人士咨询委员会一起开发。 我们将在一项随机对照试验中确定TIPS计划的有效性，该试验有216名TBI儿童的父母。计划的可行性将通过实现显著的计划效果、高水平的计划使用率和高程度的用户满意度来证明。