Is high-school screening for hereditary haemochromatosis acceptable and feasible?

高中遗传性血色病筛查是否可接受且可行？

• 批准号: nhmrc : 491224
• 负责人: Dr Lyndal Bond
• 金额: $ 48.58万
• 依托单位: Murdoch Childrens Research Institute
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Project Grants
• 财政年份: 2008
• 资助国家: 澳大利亚
• 起止时间: 2008-01-01 至 2011-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/high-school-screening-acceptable-feasible/98302
• 关键词: screening; hereditary; haemochromatosis; acceptable; feasible

Hereditary haemochromatosis (HH) is a preventable adult onset genetic iron overload disorder. In this research project we will offer senior high school students the opportunity to be tested for their risk of developing HH. Testing will be by a painless cheek brush test. Using questionnaires and interviews we will assess the psychological impact on the students. We will also assess whether those who are at increased risk of HH take steps to prevent disease.

遗传性血色沉着症(HH)是一种可预防的成人遗传性铁超载疾病。在这个研究项目中，我们将为高中生提供机会来测试他们患HH的风险。测试将通过无痛的脸颊刷子测试。采用问卷调查和访谈的方式，对学生的心理影响进行评估。我们还将评估那些HH风险增加的人是否采取了预防疾病的措施。