Culturally Responsive Support Programming for Black Caregivers of Persons with Dementia

项目摘要/摘要 患有阿尔茨海默病和/或相关痴呆症(ADRD)的老年人的黑人家庭照顾者有 与先前存在的健康状况和压力有关的死亡风险增加。有针对性的、以社区为基础的健康 帮助黑人ADRD照顾者有效管理自己的健康并使用他们首选的 应对方式，或管理压力的认知和行为努力，可以改善他们的整体健康， 被认为有能力为有ADRD(自我效能)的人提供护理，并增加了他们 将体验到照顾的好处。拟议的K01研究科学家发展奖旨在 培训一名具有定性方法专业知识的初级护士科学家如何有效地使用纵向研究 旨在开发和测试一项基于社区的临床试验，以改善Black ADRD的健康结果 照顾者。通过描述Black ADRD使用的适应性应对策略之间的关系 照顾者和自我报告的结果，包括：1)照顾中的自我效能感，2)感知的回报，3) 总体健康，可以确定一个适当的模式，它将有效地塑造 干预。由现任和前任黑人ADRD照顾者组成的焦点小组将进一步告知 干预设计。最后，将对拟议干预措施进行试点，以评估进程成果。 例如招聘成功、提供电话支持干预的能力以及 衡量研究结果。这项研究解决了开发的文化响应性干预措施的临床空白。 为黑人ADRD照顾者提供支持，并支持高级培训，这将导致第一阶段疗效测试 干预。

PROJECT SUMMARY/ ABSTRACT Black family caregivers of older adults with Alzheimer’s disease and/or related dementias (ADRD), have an increased mortality risk related to pre-existing health conditions and stress. Targeted, community-based health interventions that help Black ADRD caregivers to effectively manage their own health and use their preferred ways of coping, or cognitive and behavioral efforts to manage stress, can improve their overall health, perceived ability to provide care for a person with ADRD (self-efficacy), and increases the likelihood that they will experience benefits from caregiving. The proposed K01 Research Scientist Development Award aims to train a junior nurse scientist with expertise in qualitative methods how to effectively use longitudinal study designs to develop and test a community-based clinical trial that will improve health outcomes for Black ADRD caregivers. By describing the relationships between the adaptive coping strategies used by Black ADRD caregivers and self-reported outcomes including: 1) self-efficacy in caregiving, 2) perceived rewards, and 3) overall health, an appropriate model may be identified that will effectively shape the structure of an intervention. Focus groups comprised of current and former Black ADRD caregivers will further inform the intervention design. Finally, a pilot of the proposed intervention will take place to evaluate process outcomes such as success with recruitment, ability to deliver a telephonically supported intervention, and ability to measure study outcomes. This study addresses a clinical void in culturally responsive interventions developed for Black ADRD caregivers and supports advanced training that will lead to Stage I efficacy testing of the intervention.