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Culturally Responsive Support Programming for Black Caregivers of Persons with Dementia

为痴呆症患者的黑人护理人员提供文化响应支持计划

基本信息

批准号：
10055002
负责人：
Sheria Grice Robinson-Lane
金额：
$ 12.86万
依托单位：
UNIVERSITY OF MICHIGAN AT ANN ARBOR
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-08-15 至 2025-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10055002
关键词：
Address Age Alzheimer&apos s Disease Area Behavior Therapy Behavioral Belief Cardiovascular Diseases Caregiver support Caregivers Caring Chronic Chronic Disease Clinical Clinical Trials Cognitive Cognitive Therapy Communities Custom Data Dementia Dementia caregivers Development Diabetes Mellitus Disease Elderly Evaluation Family Family Caregiver Feedback Focus Groups Fostering Geography Health Incidence Intervention Longitudinal Studies Marketing Measures Mentored Research Scientist Development Award Minority Modeling Nurses Outcome Outcome Study Participant Patient Recruitments Patient Self-Report Personal Satisfaction Persons Physical Function Plant Roots Play Population Process Qualitative Methods Quality of life Research Research Design Rewards Risk Role Sampling Scientist Self Care Self Efficacy Self Management Shapes Social support Spirituality Stress Structure Surveys Telephone Testing Time Training United States National Institutes of Health Work base care recipients caregiving chronic pain community based participatory research coping cost design disability effective intervention efficacy testing experience improved information gathering intervention effect mortality risk physical conditioning premature programs psychological distress psychosocial racial and ethnic recruit response satisfaction stress management success therapy design trend

项目摘要

PROJECT SUMMARY/ ABSTRACT Black family caregivers of older adults with Alzheimer’s disease and/or related dementias (ADRD), have an increased mortality risk related to pre-existing health conditions and stress. Targeted, community-based health interventions that help Black ADRD caregivers to effectively manage their own health and use their preferred ways of coping, or cognitive and behavioral efforts to manage stress, can improve their overall health, perceived ability to provide care for a person with ADRD (self-efficacy), and increases the likelihood that they will experience benefits from caregiving. The proposed K01 Research Scientist Development Award aims to train a junior nurse scientist with expertise in qualitative methods how to effectively use longitudinal study designs to develop and test a community-based clinical trial that will improve health outcomes for Black ADRD caregivers. By describing the relationships between the adaptive coping strategies used by Black ADRD caregivers and self-reported outcomes including: 1) self-efficacy in caregiving, 2) perceived rewards, and 3) overall health, an appropriate model may be identified that will effectively shape the structure of an intervention. Focus groups comprised of current and former Black ADRD caregivers will further inform the intervention design. Finally, a pilot of the proposed intervention will take place to evaluate process outcomes such as success with recruitment, ability to deliver a telephonically supported intervention, and ability to measure study outcomes. This study addresses a clinical void in culturally responsive interventions developed for Black ADRD caregivers and supports advanced training that will lead to Stage I efficacy testing of the intervention.

项目总结/摘要患有阿尔茨海默病和/或相关痴呆症（ADRD）的老年人的黑人家庭照顾者，与先前存在的健康状况和压力有关的死亡风险增加。有针对性的社区保健干预措施，帮助黑人ADRD护理人员有效地管理自己的健康，并使用他们的首选应对压力的方法，或管理压力的认知和行为努力，可以改善他们的整体健康，为ADRD（自我效能）患者提供护理的感知能力，并增加他们将从生育中受益。K 01研究科学家发展奖旨在培训一名具有定性方法专业知识的初级护理科学家如何有效地使用纵向研究旨在开发和测试一项基于社区的临床试验，以改善黑人ADRD的健康结局照顾者通过描述黑人ADRD的适应性应对策略之间的关系，照顾者和自我报告的结果，包括：1）自我效能在照顾，2）感知奖励，和3）为了确保整体健康，可以确定一个适当的模型，该模型将有效地塑造一个干预由现任和前任黑人ADRD护理人员组成的焦点小组将进一步告知干预设计最后，将对拟议的干预措施进行试点，以评估进程成果例如成功招募、提供电话支持干预的能力以及衡量研究成果。这项研究解决了一个临床空白，在文化上响应的干预措施，并支持高级培训，这将导致第一阶段的疗效测试，干预