REPOSITORY SERVICES FOR THE NICHD DATA AND SPECIMEN HUB (DASH)

NICHD 数据和样本中心 (DASH) 的存储服务

• 批准号: 10706290
• 负责人: OGUZ MANDACI
• 金额: $ 3.93万
• 依托单位: FISHER BIOSERVICES, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-26 至 2023-09-25
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10706290
• 关键词: Architecture; Archives; Biological Specimen Banks; Communication; Data; Data Collection; Ensure; Equipment and supply inventories; FAIR principles; Funding; Human; National Institute of Child Health and Human Development; Participant; Process; Research; Research Personnel; Residual state; Resources; Services; Ships; Site; Specimen; data archive; data de-identification; data dissemination; data sharing; design; diverse data; flexibility; repository; research study; secondary analysis

The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) has supported collection of data and biospecimens from participants in numerous research studies. These well-characterized data and some associated specimens are valuable scientific resources that were generated with public funds. NICHD established the Data and Specimen Hub (DASH) as a data and specimen sharing mechanism that enables investigators to organize, store, and mine de-identified data from NICHD funded research studies for secondary research use. In some cases, DASH also provides access to residual biospecimens associated with studies that have research data archived in the NICHD DASH. The NICHD DASH was created to provide a validated site to promote dissemination of data and specimens from NICHD-funded studies for secondary analysis. DASH’s flexible architecture is designed to archive diverse data types and formats from NICHD’s broad portfolio in a manor that promotes FAIR data sharing principles: findability, accessibility, interoperability, and reusability. Scope This task order will provide services to enable the NICHD Data and Specimen Hub, DASH, to provide an interface access to residual biospecimen data housed at the NICHD Human Biospecimen Repository. This access will provide the DASH requestor information on available biospecimen inventories stored at the Repository. This task order will also ensure that necessary communications between the NICHD Repository and DASH remain ongoing, to codify process concerning the numerous shipment requests, and to expedite shipment requests.

尤尼斯·肯尼迪·施莱佛国家儿童健康和人类发展研究所（NICHD）支持从许多研究的参与者那里收集数据和生物标本。 这些特征鲜明的数据和一些相关标本是利用公共资金产生的宝贵科学资源。 NICHD建立了数据和标本中心（DASH），作为数据和标本共享机制，使研究人员能够组织，存储和挖掘来自NICHD资助的研究研究的去识别数据，用于二次研究。 在某些情况下，DASH还提供与NICHD DASH中存档的研究数据相关的残留生物标本的访问。 创建NICHD DASH是为了提供一个经过验证的网站，以促进NICHD资助研究的数据和标本的传播，以进行二次分析。 DASH的灵活架构旨在将NICHD广泛产品组合中的各种数据类型和格式归档，以促进公平数据共享原则：可查找性，可访问性，互操作性和可重用性。 范围 本任务订单将提供服务，使NICHD数据和标本中心DASH能够提供对NICHD人体生物标本储存库中剩余生物标本数据的接口访问。 该访问将向DASH请求者提供关于存储库中存储的可用生物样本库存的信息。 该任务指令还将确保NICHD存储库和DASH之间的必要通信保持持续，以编码有关众多装运请求的流程，并加快装运请求。