FASD and Socio-Cognitive Habilitation in the Community: The MILE Program

现已证实，产前酒精暴露与一系列负面后果有关。 被描述为胎儿酒精谱系障碍(FASD)，其中胎儿酒精综合征(FAS)只是 最严重和最容易诊断的。尽管有终身的认知、功能和行为残疾 与这些障碍相关的是，还没有经过经验验证的方法来教育和 可在社区和教育环境中使用的行为干预。要提高可用性， 在这种服务中，本申请建议将一种方法的临床试验结果转化为 从社会认知环境到社区环境。该协议的两个组件被发现是 在初始试验中有效，并将在更广泛的社区中独立评估有效性 布景。它们是：护理者教育/培训和数学互动学习体验(MALL) 程序。为了评估护理者教育和培训的远程学习模式，我们将合作 虚拟现实助手公司及其面向教育的网站www.do2learn.com。两名护理者 模块，1)了解FASD并倡导您的孩子，以及2)行为规范以及 所有支持性成果衡量标准都将以远程学习的形式提供，这一方法 60个询问相关信息的家庭的干预与标准护理和研讨会模式的比较 他们孩子的功能问题。为了评估MILL辅导计划的有效性，60个家庭 3至9岁的儿童将参加三个随机分配的条件之一，一个社区- 翻译MILL计划和两个对照组，以中心为基础和家长教育。社区 包括辅导服务、课后计划和娱乐计划在内的合作伙伴已被招募到 调整里程计划以及支持材料和课程以适应其设置。为了…的目的 结果评估和参与合作数据库，所有儿童都将被诊断为Fas 或在Fas中心诊所的pFas，并由研究人员测试。社区咨询委员会将提供 支持调查人员将方法翻译到社区网站以及设计和实施 A培训-将在第四年实施培训者计划，以使这项研究的结果得到广泛的推广 可供使用且容易接近。

Prenatal alcohol exposure has been demonstrated to be associated with a range of negative outcomes, now described as the fetal alcohol spectrum disorders (FASD) of which fetal alcohol syndrome (FAS) is only the most severe and easily diagnosed. Despite the life-long cognitive, functional, and behavioral disabilities associated with these disorders, there have been no empirically validated methods for educational and behavioral intervention available for use in community and educational settings. To increase the availability of such services, the current application proposes to translate the results of a clinical trial of a method for socio-cognitive habitationto community settings. Two components of this protocol were found to be efficacious in the initial trials and will be evaluated independently for effectiveness in the broader community setting. These are: Caregiver Education/Training and the MILE (Math Interactive Learning Experience) Program. To evaluate a distance learning model for caregiver education and training, we will collaborate with Virtual Reality Aides, Inc and their educational-oriented website, www.do2learn.com. Two Caregiver Modules, 1) Understanding FASD and Advocating for Your Child, and 2) Behavioral Regulation, as well as all supporting outcome measures will be made available in a distance-learning format and this method of intervention compared with standard care and a Workshop model in 60 families requesting information about their children's functional problems. To evaluate the effectiveness of the MILE tutoring program, 60 families with children 3 to 9 years will participate in one of three randomly-assigned conditions, a community- translation of the MILE program and two contrast groups, Center-based, and parent education. Community partners including tutoring services, after school programs and recreation programs have been recruited to adapt the MILE program and supporting materials and curriculm to their settings. For the purposes of outcome evaluation and participation in the Collaborative Database, all children will be diagnoses with FAS or pFAS in the FAS Center Clinic and tested by study staff. A Community Advisory Board will provide support to the investigators in translating methods to the community sites and in designing and implementing a Train-the Trainer program to be carried out in Year 4 in order to make the results of this research widely available and easily accessible.