Self-Management Technology for Asthmatic Teens (STAT)

哮喘青少年自我管理技术 (STAT)

• 批准号: 7537075
• 负责人: Gerardine Wurzburg
• 金额: $ 14.89万
• 依托单位: STATE OF THE ART, INC.
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-08-07 至 2009-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7537075
• 关键词: Address; Adherence; Adolescence; Adolescent; Adult; Affect; Age; Agreement; Arts; Asthma; Car Phone; Caregivers; Caring; Cellular Phone; Centers for Disease Control and Prevention (U.S.); Child; Childhood; Chronic; Chronic Disease; Communication; Communities; Comorbidity; Complement; Complex; Condition; Daily; Data; Decision Making; Depth; Development; Discipline; Disease; Disease Management; Effectiveness; Electronic Mail; Elements; Emergency Situation; Ensure; Evaluation; Facilities and Administrative Costs; Failure; Family; Feedback; Focus Groups; Frequencies; Health; Health Care Costs; Individual; Information and Communication Theory; Instruction; Internet; Intervention Studies; Interview; Knowledge; Learning; Licensing; Life; Link; Marketing; Mediation; Medical; Methods; Monitor; Motivation; Multimedia; Names; Online Systems; Outcome; Ownership; Parents; Performance; Pharmaceutical Preparations; Phase; Public Health; Quality of life; Questionnaires; Rate; Recommendation; Research; Research Methodology; Resources; Risk; Sampling; Schedule; Schools; Secure; Self Management; Services; Severities; Signal Transduction; Sleep; Social Marketing; Standards of Weights and Measures; Stimulus; Structure; Supervision; Symptoms; Techniques; Technology; Teenagers; Telephone; Text; Time; Training; Treatment Protocols; United States; Urination; Wireless Technology; Work; Youth; base; behavior change; commercial application; comparison group; concept; day; disability; dosage; experience; improved; interactive multimedia; multidisciplinary; practical application; preference; prevent; respiratory; response; skills; technological innovation; theories; tool; treatment planning; trend

DESCRIPTION (provided by applicant): Although most adverse outcomes due to asthma can be prevented through appropriate medical care and disease management, adolescents continue to be at high risk for negative consequences of uncontrolled asthma. Two contributing factors are 1) Failure of adolescents to understand Asthma as a chronic illness requiring scheduled medication rather than episodic responses to symptoms; 2) Failure of parents to transfer responsibility and skills for disciplined self-management when children transition into adolescence. When responsibility for decision-making and health is being turned over from parents to their children, adolescents have an opportunity to learn and practice the self-management skills necessary to maintain their health throughout their lifetime. Through the "Self-Management Technology for Asthmatic Teens (STAT)" project, State of the Art, Inc. proposes the development of a coordinated multimedia resource that uses "teen friendly", familiar and widely accessible video-, web-, and mobile phone-based components to provide adolescents with the knowledge and tools necessary to self-manage their asthma. Utilizing these familiar, interactive technologies enables delivery of a critical asthma self-management message into a realm of adolescent comfort, ownership and control. STAT materials will take full advantage of the stimulus of interactivity inherent and alluring to youth in these multiple and complementary technological platforms. Adolescents will be able to tailor these interactive tools to their preferences and specific needs through the resource's website, including message platform (email, SMS/text messaging, instant messaging), frequency of reminder messages, and types of information and self-management tools needed. This resource strives to increase asthma control by helping adolescents take responsibility for their health and learn to self-manage their asthma employing technologies with which they are familiar and comfortable. To accomplish this long- term objective, the STAT resource aims to increase self-management practices, improve quality of life, and decrease asthma-related symptoms and severity among adolescents ages 12-17. In Phase I, State of the Art, Inc. will conduct research with multidisciplinary professionals who work in adolescent health and asthma and respiratory conditions as well as with adolescents and parents. This research will be used to a) conceptualize the structure and content of the resource, b) develop "teen friendly" sample messages and in-depth plans for materials, and c) examine the feasibility and validity of these messages and proposed features. Initially, key informant interviews with professionals, adolescents, and parents will be conducted to 1) examine the lessons learned from research- and community-based efforts, 2) determine what practical applications of research and intervention best practices can be applied to STAT, 3) learn about parents' current experience of helping an adolescent manage their asthma, 4) learn about adolescents' current experience in managing their own asthma, and 5) learn what current resources are being used to aid in adolescent asthma self-management. Sample messages and in-depth plans for materials (concept and creative plans) will be developed based on the knowledge gained from these culturally diverse key informant interviews and from advisor guidance. Once these plans are developed, focus groups with adolescents will help ensure that the planned materials and messages match the values and needs of the target audience and their caregivers. Groups will be conducted by trained moderators using standard focus group methods and cross-group comparisons will be made among groups. Concept and creative plans will be revised incorporating recommendations from the focus groups prior to submission of a Phase II application that will outline the development and evaluation of the full-scale STAT resource. Public Health Relevance: Asthma is one of the more pervasive and costly chronic childhood diseases in the United States and a major cause of childhood disability. It is also a disease that is manageable with disciplined and proper use of medications of proven efficacy. In childhood, parents provide much of this disease management discipline. In adolescence, as children spend less time under their parents' supervision, management of asthma transitions from parents to their affected children. Many adolescents are unprepared for this shift, placing a huge burden on both adolescents and their families; limiting their abilities to sleep, learn, and accomplish other undertakings. Poor self-management also may require the use of complex and expensive emergency medical treatments that result in other unnecessary direct and indirect costs from missed school and work days. While many asthma-related problems could be averted through control and self-management strategies, low rates of adherence to these techniques is common, especially among adolescents. By empowering adolescents to self- manage and control their asthma, "Self-Management Technology for Asthmatic Teens (STAT)" research and resources have the potential to help adolescents take responsibility for their health and prevent potentially life- threatening asthma-related outcomes; thereby reducing the severity of asthma, related comorbidities, and associated healthcare costs throughout their lives.

描述（由申请人提供）：尽管可以通过适当的医疗护理和疾病管理来预防哮喘引起的大多数不良后果，但青少年仍然面临因哮喘不受控制而产生负面后果的高风险。两个影响因素是： 1) 青少年未能理解哮喘是一种慢性疾病，需要定期用药，而不是对症状做出间歇性反应； 2）当孩子进入青春期时，父母未能转移有纪律的自我管理的责任和技能。当决策和健康的责任从父母移交给孩子时，青少年就有机会学习和练习在一生中保持健康所必需的自我管理技能。通过“哮喘青少年自我管理技术 (STAT)”项目，State of the Art, Inc. 建议开发一种协调的多媒体资源，该资源使用“青少年友好”、熟悉且可广泛访问的基于视频、网络和移动电话的组件，为青少年提供自我管理哮喘所需的知识和工具。利用这些熟悉的交互式技术，可以将重要的哮喘自我管理信息传递到青少年舒适、拥有和控制的领域。 STAT 材料将充分利用这些多重互补的技术平台中固有的互动性和对年轻人的吸引力。青少年将能够通过资源网站根据自己的喜好和特定需求定制这些互动工具，包括消息平台（电子邮件、短信/文本消息、即时消息）、提醒消息的频率以及所需的信息类型和自我管理工具。该资源致力于通过帮助青少年对自己的健康负责并学习使用他们熟悉和舒适的技术自我管理哮喘来加强哮喘控制。为了实现这一长期目标，STAT 资源旨在加强 12-17 岁青少年的自我管理实践、提高生活质量并减少哮喘相关症状和严重程度。在第一阶段，State of the Art, Inc.将与从事青少年健康、哮喘和呼吸系统疾病工作的多学科专业人士以及青少年和家长一起进行研究。这项研究将用于 a) 概念化资源的结构和内容，b) 开发“青少年友好”的示例消息和深入的材料计划，以及 c) 检查这些消息和提出的功能的可行性和有效性。首先，将与专业人士、青少年和家长进行关键信息访谈，目的是 1) 检查从研究和社区工作中汲取的经验教训，2) 确定研究和干预最佳实践的哪些实际应用可应用于 STAT，3) 了解家长当前帮助青少年管理哮喘的经验，4) 了解青少年目前管理自己哮喘的经验，5) 了解当前正在使用哪些资源来帮助青少年 哮喘自我管理。样本信息和深入的材料计划（概念和创意计划）将根据从这些不同文化的关键知情人访谈和顾问指导中获得的知识来制定。一旦制定了这些计划，青少年焦点小组将帮助确保计划的材料和信息符合目标受众及其照顾者的价值观和需求。小组将由经过培训的主持人使用标准焦点小组方法进行分组，并在小组之间进行跨组比较。在提交第二阶段申请之前，概念和创意计划将纳入焦点小组的建议进行修订，该申请将概述全面 STAT 资源的开发和评估。公共卫生相关性：哮喘是美国最普遍且代价高昂的慢性儿童疾病之一，也是导致儿童残疾的主要原因。它也是一种可以通过严格、正确使用已证明有效的药物来控制的疾病。在童年时期，父母提供了很多这种疾病管理纪律。在青春期，由于孩子在父母监督下的时间减少，哮喘的治疗从父母转移到受影响的孩子身上。许多青少年对这种转变没有做好准备，这给青少年及其家庭带来了巨大的负担；限制他们的睡眠、学习和完成其他任务的能力。不良的自我管理还可能需要使用复杂且昂贵的紧急医疗治疗，从而导致因缺课和缺勤而产生其他不必要的直接和间接费用。虽然许多与哮喘相关的问题可以通过控制和自我管理策略来避免，但对这些技术的坚持率较低是很常见的，尤其是在青少年中。通过赋予青少年自我管理和控制哮喘的能力，“哮喘青少年自我管理技术（STAT）”研究和资源有可能帮助青少年对自己的健康负责，并预防可能危及生命的哮喘相关后果；从而降低哮喘的严重程度、相关合并症以及终生相关的医疗费用。