SELF MANAGEMENT OF CHRONIC ILLNESS

慢性病的自我管理

• 批准号: 2651916
• 负责人: Gerardine Wurzburg
• 金额: $ 10万
• 依托单位: STATE OF THE ART, INC.
• 依托单位国家: 美国
• 财政年份: 1998
• 资助国家: 美国
• 起止时间: 1998-07-01 至 1998-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2651916
• 关键词: Internet; behavioral /social science research tag; chronic disease /disorder; education evaluation /planning; handbook; health education; interactive multimedia; mass information media; neoplasm /cancer education; patient care management; quality of life; self care; self help; therapy compliance; videotape /videodisc

DESCRIPTION: The proposed project is an educational campaign for patients and families about how they can most effectively self-manage aspects of chronic illness to improve quality of life and contain healthcare costs. The first illness we will address in the campaign is cancer. In Phase I, the creative plans for the educational materials will be developed and researched for effectiveness. Phase II products will include: a videotape, patient organizer, and a web content module. All three products will present models of successful self-management and will show strong professional/patient relationships. The package will be carefully researched and then reviewed by health care professionals. Development of the Phase I creative plans will involve interviewing professionals, individuals and family members to learn which self-management techniques and supports have proved most effective. From these interviews, we will generate three creative plans to present the narrative, characters, and topics of the final videotape, organizer, and web content module. These creative plans will be reviewed first by the Board of Advisors and then in the research phase of the project by focus groups. The three creative plans will be quantitatively and qualitatively tested to ensure that each product meets the informational as well as the supportive needs of individuals with cancer. In Phase II the creative plans drafted and evaluated in Phase I will be used to develop a broadcast-quality videotape, print patient organizer, and an interactive web content module based on the concepts validated in Phase I research.

描述：拟议的项目是一项针对患者和家属的教育活动，教他们如何最有效地自我管理慢性病的各个方面，以提高生活质量和控制医疗成本。我们将在竞选活动中解决的第一种疾病是癌症。在第一阶段，将开发和研究教育材料的创造性计划，以确保其有效性。第二阶段的产品将包括：录像带、患者组织者和网络内容模块。所有这三种产品都将展示成功的自我管理模式，并将展示强大的专业/患者关系。该一揽子计划将经过仔细研究，然后由医疗保健专业人员进行审查。第一阶段创意计划的制定将涉及与专业人员、个人和家庭成员面谈，以了解哪些自我管理技巧和支助被证明是最有效的。从这些访谈中，我们将生成三个创造性的计划，以呈现最终录像带、组织者和网络内容模块的叙事、角色和主题。这些创造性的计划将首先由顾问委员会审查，然后在项目的研究阶段由重点小组审查。这三个创造性的计划将进行定量和定性的测试，以确保每种产品都满足癌症患者的信息和支持需求。在第二阶段，第一阶段起草和评估的创意计划将用于开发广播质量的录像带、打印患者组织者和基于第一阶段研究验证的概念的互动网络内容模块。