SELF MANAGEMENT OF CHRONIC ILLNESS

慢性病的自我管理

• 批准号: 6016915
• 负责人: Gerardine Wurzburg
• 金额: $ 43.21万
• 依托单位: STATE OF THE ART, INC.
• 依托单位国家: 美国
• 财政年份: 1998
• 资助国家: 美国
• 起止时间: 1998-07-01 至 2001-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6016915
• 关键词: Internet; chronic disease /disorder; education evaluation /planning; human subject; interactive multimedia; medical records; neoplasm /cancer education; patient care management; personal log /diary; quality of life; self care; self help; therapy compliance; videotape /videodisc

The proposed project will develop and produce three educational tools - a videotape, a patient organizer, and a web content module to educate cancer patients and their families on current techniques and trends in cancer self-management. The proposed project utilizes cumulative research from Phase I, and the comments and suggestions of the focus groups as a guide to content. In a near-finished state, these materials will be reviewed by our Board of Advisors to ensure factual accuracy and attentiveness to current trends in cancer self-management research. The three products will then be tested through focus groups to ensure that the profiles, structure, and content of the media materials are effective communication tools. The final research in Phase ll will be the quantitative testing of the finished materials to determine to what extent the videotape, patient organizer, and web content module have improved the understanding and behavioral outcomes of cancer patients and their caregivers with respect to self-management. This series will meet critical social and medical needs, as well as offering commercially viable products. PROPOSED COMMERCIAL APPLICATIONS: The complete educational packages will be marketed to individuals and families through cancer service organizations, clinics, mental health professionals, and video distributors who specialize in cancer self- management media. State of the Art has successfully marketed several other videotape/print packages to this market and already has contacts and established relationships to assist in the marketing.

拟议的项目将开发和制作三种教育工具--录像带、患者组织者和网络内容模块，以教育癌症患者及其家人了解癌症自我管理的当前技术和趋势。拟议的项目利用第一阶段的累积研究以及重点小组的意见和建议作为内容指南。在接近完成的状态下，这些材料将由我们的顾问委员会进行审查，以确保事实的准确性和对癌症自我管理研究当前趋势的关注。然后将通过焦点小组对这三个产品进行测试，以确保媒体材料的简介、结构和内容是有效的传播工具。第二阶段的最后一项研究将是对完成的材料进行定量测试，以确定录像带、患者组织者和网络内容模块在多大程度上改善了癌症患者及其护理人员对自我管理的理解和行为结果。该系列将满足关键的社会和医疗需求，并提供商业上可行的产品。拟议的商业应用：完整的教育包将通过癌症服务组织、诊所、心理健康专业人员和专门从事癌症自我管理媒体的视频分销商向个人和家庭营销。最先进的国家已成功地销售了其他几个录像带/打印包到这个市场，并已接触和建立关系，以协助营销。