Taskforce on Childhood Motor Disorders

儿童运动障碍特别工作组

• 批准号: 7629739
• 负责人: Terence D Sanger
• 金额: $ 6.5万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-09-30 至 2010-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7629739
• 关键词: Categories; Child; Childhood; Chorea; Clinic; Clinical Trials; Communication; Consensus; Development; Diagnosis; Disease; Dystonia; Effectiveness; Hyperactive behavior; Impairment; Measurement; Movement Disorders; Recommendation; Series; Technology; Treatment outcome; Tremor; Work; childhood motor disorders; choreoathetosis; improved; motor disorder; success; tool

DESCRIPTION (provided by applicant): We propose to organize a series of three yearly meetings devoted to definition and measurement of hyperkinetic movement disorders in childhood. The taskforce on childhood motor disorders has previously established consensus definitions and measurement technology recommendations for hypertonic disorders and negative signs. Hyperkinetic disorders represent the third major category of pediatric motor disorders. In the first of the three meetings, consensus definitions relevant to children will be established for the terms "chorea", "choreoathetosis", "hyperkinetic dystonia", and "tremor". In the second meeting, current scales and technology for diagnosis and quantification of these impairments will be discussed. In the third meeting, new scales and technology for diagnosis and quantification will be demonstrated. The result of this series of meetings will be a consensus statement on definitions, identification of gaps in current assessment tools, and specific recommendations for the development of new measurement tools. Definitions and measurement tools are essential for communication between clinicians, inclusion of children in clinical trials, and measurement of outcomes of treatment in the clinic and in clinical trials. This project will provide consensus definitions and work toward the development of measurement tools for children with hyperkinetic disorders. The result will be definitions and recommendations that will improve the effectiveness and success of clinical trials for children with disorders of movement.

描述（由申请人提供）：我们建议组织一系列的三年一次的会议，致力于定义和测量儿童多动症。儿童运动障碍特别工作组先前已经建立了高渗性疾病和阴性体征的共识定义和测量技术建议。多动障碍代表了儿科运动障碍的第三大类。在三次会议的第一次会议上，将为术语“舞蹈病”、“舞蹈手足徐动症”、“运动过度性肌张力障碍”和“震颤”确立与儿童相关的共识定义。在第二次会议上，将讨论目前的规模和技术，诊断和量化这些障碍。在第三次会议上，将展示用于诊断和量化的新尺度和技术。这一系列会议的结果将是就定义达成共识声明，查明目前评估工具中的差距，并就开发新的衡量工具提出具体建议。定义和测量工具对于临床医生之间的沟通、将儿童纳入临床试验以及测量临床和临床试验中的治疗结果至关重要。这个项目将提供共识的定义，并致力于发展的测量工具，为儿童多动症。其结果将是定义和建议，将提高运动障碍儿童临床试验的有效性和成功率。