Taskforce on Childhood Motor Disorders

儿童运动障碍特别工作组

• 批准号: 7407598
• 负责人: Terence D Sanger
• 金额: $ 6.5万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-09-30 至 2010-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7407598
• 关键词: Categories; Child; Childhood; Chorea; Clinic; Clinical Trials; Communication; Consensus; Development; Diagnosis; Disease; Dystonia; Effectiveness; Hyperactive behavior; Impairment; Measurement; Movement Disorders; Recommendation; Series; Technology; Treatment outcome; Tremor; Work; childhood motor disorders; choreoathetosis; improved; motor disorder; success; tool

DESCRIPTION (provided by applicant): We propose to organize a series of three yearly meetings devoted to definition and measurement of hyperkinetic movement disorders in childhood. The taskforce on childhood motor disorders has previously established consensus definitions and measurement technology recommendations for hypertonic disorders and negative signs. Hyperkinetic disorders represent the third major category of pediatric motor disorders. In the first of the three meetings, consensus definitions relevant to children will be established for the terms "chorea", "choreoathetosis", "hyperkinetic dystonia", and "tremor". In the second meeting, current scales and technology for diagnosis and quantification of these impairments will be discussed. In the third meeting, new scales and technology for diagnosis and quantification will be demonstrated. The result of this series of meetings will be a consensus statement on definitions, identification of gaps in current assessment tools, and specific recommendations for the development of new measurement tools. Definitions and measurement tools are essential for communication between clinicians, inclusion of children in clinical trials, and measurement of outcomes of treatment in the clinic and in clinical trials. This project will provide consensus definitions and work toward the development of measurement tools for children with hyperkinetic disorders. The result will be definitions and recommendations that will improve the effectiveness and success of clinical trials for children with disorders of movement.

描述（由申请人提供）：我们建议组织一系列每年三年的会议，专门讨论儿童多动性运动障碍的定义和测量。儿童运动障碍工作组此前已就高渗障碍和阴性体征建立了共识定义和测量技术建议。多动障碍是儿科运动障碍的第三大类。在这三次会议中的第一次会议上，将为术语“舞蹈症”、“舞蹈手足徐动症”、“多动性肌张力障碍”和“震颤”建立与儿童相关的共识定义。在第二次会议上，将讨论当前诊断和量化这些损伤的尺度和技术。在第三次会议上，将展示用于诊断和量化的新尺度和技术。这一系列会议的结果将是就定义、确定当前评估工具的差距以及开发新衡量工具的具体建议达成共识声明。定义和测量工具对于临床医生之间的沟通、将儿童纳入临床试验以及测量诊所和临床试验中的治疗结果至关重要。该项目将提供共识定义，并致力于开发多动症儿童的测量工具。其结果将是定义和建议，以提高针对运动障碍儿童的临床试验的有效性和成功率。