Pilot Project

试点项目

• 批准号: 8326536
• 负责人: Rachel M. Ceballos
• 金额: $ 5.9万
• 依托单位: FRED HUTCHINSON CANCER RESEARCH CENTER
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/8326536
• 关键词: Academy; Acculturation; Address; Belief; Biological; Biological Markers; Cancer Survivor; Caring; Clinical; Communities; Coupled; Data; Development; Distress; Emotional; Evaluation; Exposure to; Failure; Family; Fatigue; Fright; Generations; Goals; Health; Health Promotion; Hispanics; Hydrocortisone; Institute of Medicine (U.S.); Investigation; Language; Life; Literature; Logistics; Malignant Neoplasms; Measures; Medical; National Research Council; Not Hispanic or Latino; Occupations; Outcome Measure; Pain; Personal Satisfaction; Physiological; Pilot Projects; Population; Process; Program Evaluation; Programming Languages; Proteins; Psyche structure; Qualitative Methods; Quality of life; Recurrence; Relative (related person); Resources; Risk; Rural Community; Salivary; Social support; Staging; Structure; Support Groups; Survival Rate; Survivors; Techniques; The Sun; Training; Woman; biobehavior; biopsychosocial; cancer education; cancer health disparity; cancer therapy; disorder risk; emotional distress; experience; health related quality of life; improved; intervention effect; medically underserved; men; programs; psychosocial; residence; survivorship; uptake

Prolonged exposure to cancer-related distress, can result in diminished physical and mental quality of life, as well as, physiological dysregulation of factors implicated in disease risk and as biomarkers of survivorship. Although social support programs have been shown to alleviate distress among cancer survivors, the availability and uptake of cancer survivor support resources by Hispanics are limited. As the risk for many cancers increases among Hispanics with years of U.S. residence and generational acculturation, and the population of U.S. Hispanics grows to a projected 25% ofthe U.S. population by 2050, so does the need to address the disparity in social support resources for Hispanic cancer sun/ivors. To address this, this pilot study proposes development of a culturally-appropriate Spanish language program for Hispanic cancer survivors. Thirty Hispanic men (n=15) and women (n=15), that are current residents ofthe Yakima Valley, and have completed primary treatment for any cancer will be eligible to participate. The study will be conducted in two stages. The first stage will utilize qualitative methods to probe needs, concerns, and beliefs of 16 (men=8, women=8) cancer sun/ivors living in a rural community. The goal will be to, togetherwith factors identified in the literature, contribute to the development of a culturally-appropriate support resource that will provide informational and socio-emotional support to Hispanic sun/ivors. During the second stage, a semi-structured Spanish-language support program will be develop and a preliminary evaluation of the program will be conducted using quantiative and qualitative methods. The program sessions will be led by a promotora, lay health worker, that have undergone training in conducting social support groups, cancer 101, and have extensive experience providing cancer education in the community. Outcome measures will include use of Spanish-language versions of the Emotional Distress Scale, Brief COPE, brief acculturation scale, FACIT-G, salivary Cortisol and c-reactive protein.

长期暴露于癌症相关的痛苦，可导致身体和精神生活质量下降，以及涉及疾病风险和生存生物标志物的因素的生理失调。虽然社会支持计划已被证明可以减轻癌症幸存者的痛苦，但西班牙裔美国人对癌症幸存者支持资源的可用性和吸收是有限的。随着许多癌症风险的增加， 在拥有多年美国居住经历和代际文化适应的西班牙裔中，预计到2050年，美国西班牙裔人口将增长到美国人口的25%，解决西班牙裔癌症社会支持资源差异的需要也是如此。阳光/象牙。为了解决这个问题，这项试点研究提出了一个适合西班牙裔癌症幸存者的文化西班牙语语言计划的发展。 30名西班牙裔男性（n=15）和女性（n=15），目前居住在亚基马山谷，并已完成任何癌症的初级治疗，将有资格参加。研究将分两个阶段进行。第一阶段将利用定性方法来探讨16名（男性=8，女性=8）生活在农村社区的癌症患者的需求，关注和信念。我们的目标将是，连同文献中确定的因素，有助于发展一个文化上适当的支持资源，将提供信息和社会情感支持西班牙裔太阳/ivors。在第二阶段，将制定半结构化的西班牙语支持计划，并对该计划进行初步评估 使用定量和定性的方法。该计划会议将由一名推广人，非专业卫生工作者领导，他们接受过开展社会支持团体，癌症101的培训，并在社区提供癌症教育方面拥有丰富的经验。结果测量将包括使用西班牙语版本的情绪困扰量表、简明科普、简明文化适应量表、FACIT-G、唾液皮质醇和C反应蛋白。