Patient Awareness and Consumer Education Research Cente*

患者意识和消费者教育研究中心*

• 批准号: 7799255
• 负责人: Maria E Suarez-Almazor
• 金额: $ 78.95万
• 依托单位: UNIVERSITY OF TX MD ANDERSON CAN CTR
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-04-14 至 2012-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7799255
• 关键词: Patient; Awareness; Consumer; Education; Research

Consumers' knowledge, values, and preferences are being recognized as drivers of health care utilization. With the therapeutic advances in the last decades, there are usually multiple options for a given clinical problem with different risk-benefit ratios; yet, patients spend less and less time with their physicians, and often get information from alternate sources, such as the media or direct-to-consumer advertising. We propose the creation of a comprehensive interdisciplinary Patient Awareness and Consumer Education Research Center with an overarching vision of supporting and empowering consumers of healthcare through informed decision-making. The mission of the RC will be to develop a program of excellence to improve consumers' awareness of the benefits and risks of therapeutics through research, education, and dissemination, targeting consumers and their providers. Our strategic plan for the next five years has the following specific aims: Aim 1 To establish the infrastructure for an interdisciplinary RC of excellence to conduct and support research and educational initiatives related to health communication for patients and consumers. Aim 2 To develop a comprehensive research program to evaluate methods, application and outcomes of health communication strategies. This aim will be achieved by: (i) Developing the methodological infrastructure to support investigator-initiated efforts in these areas (e.g. assistancewith grant proposals, collaborative efforts, contribution of resources); (ii) Conducting four demonstration projects Aim 3 To establish a Consumer Health Advisory Information Network (CHAIN) to deploy a system for rapid response to emerging therapeutic issues. Aim 4 To disseminate and implement the information developed by the RC. These operationalaims will be achieved through the creation of three cores within the RC: (i) Research and Training Core; (ii) Methods Core; and (iii) Education and Dissemination Core (including CHAIN). We have identified four major themes which will guide our strategic research, education and dissemination plan: (i) Health communication and consumer education; (ii)Clinician-patient interactions; (iii) Health decision-making; and (iv) Patient adherence to therapeutic recommendations.

消费者的知识、价值观和偏好被认为是医疗保健利用的驱动因素。 随着近几十年来治疗的进步，对于给定的临床治疗通常有多种选择。 不同的风险收益比的问题;然而，患者花在医生身上的时间越来越少， 通常从其他来源获得信息，如媒体或直接面向消费者的广告。 我们 建议建立一个全面的跨学科的病人意识和消费者教育 研究中心的总体愿景是通过以下方式为医疗保健消费者提供支持和支持 知情决策。驻地协调员的使命是制定一项卓越计划， 消费者通过研究、教育和 传播，针对消费者及其供应商。我们未来五年的战略计划包括： 具体目标如下： 目标1：为优秀的跨学科驻地协调员建立基础设施， 与患者和消费者健康沟通相关的研究和教育举措。 目的2制定一个全面的研究计划，以评估方法，应用和成果， 卫生宣传战略。这一目标将通过以下方式实现： 基础设施，以支持赞助商在这些领域发起的努力（例如，援助赠款提案， （二）开展四个示范项目 目标3建立消费者健康咨询信息网络，部署一个系统， 应对新出现的治疗问题。 目标4：传播和执行驻地协调员编制的资料。 这些业务目标将通过在驻地协调员内设立三个核心来实现： 培训核心;（二）方法核心;和（三）教育和传播核心（包括链）。 我们确定了四大主题，将指导我们的战略研究、教育和宣传 计划：（i）健康沟通和消费者教育;（ii）临床医生-患者互动;（iii）健康 决策;（iv）患者对治疗建议的依从性。

项目成果

High burden of rheumatic disease in Mexico: a comprehensive community-based epidemiological study.

墨西哥风湿病的高负担：一项基于社区的综合流行病学研究。

• DOI: 10.3899/jrheum.101211
• 发表时间: 2011
• 期刊: The Journal of rheumatology
• 作者: Suarez-Almazor,MariaE

Effect of a clinic-wide social marketing campaign to improve adherence to antiretroviral therapy for HIV infection.

• DOI: 10.1007/s10461-012-0295-x
• 发表时间: 2013-01
• 期刊: AIDS AND BEHAVIOR
• 影响因子: 4.4
• 作者: Giordano, Thomas P.;Rodriguez, Sonia;Zhang, Hong;Kallen, Michael A.;Jibaja-Weiss, Maria;Buscher, April L.;Arya, Monisha;Suarez-Almazor, Maria E.;Ross, Michael
• 通讯作者: Ross, Michael

Problems in transition and quality of care: perspectives of breast cancer survivors.

• DOI: 10.1007/s00520-010-1031-6
• 发表时间: 2011-12
• 期刊: SUPPORTIVE CARE IN CANCER
• 影响因子: 3.1
• 作者: Roundtree, Aimee Kendall;Giordano, Sharon H.;Price, Andrea;Suarez-Almazor, Maria E.
• 通讯作者: Suarez-Almazor, Maria E.

Promoting knowledge of statins in patients with low health literacy using an audio booklet.

• DOI: 10.2147/ppa.s19995
• 发表时间: 2011
• 期刊: Patient preference and adherence
• 影响因子: 2.2
• 作者: Gossey JT;Whitney SN;Crouch MA;Jibaja-Weiss ML;Zhang H;Volk RJ
• 通讯作者: Volk RJ

Multiple hepatic artery aneurysms in a patient with systemic lupus erythematosus.

系统性红斑狼疮患者的多发性肝动脉瘤。

• DOI: 10.1177/0961203309345721
• 发表时间: 2010
• 期刊: Lupus
• 影响因子: 2.6
• 作者: Pollono,EN;Madoff,DC;Spence,SC;Suarez-Almazor,ME
• 通讯作者: Suarez-Almazor,ME