Patient Awareness and Consumer Education Research Cente*

描述(由申请人提供)：消费者的知识、价值观和偏好被认为是医疗保健利用的驱动因素。随着过去几十年的治疗进展，对于给定的临床问题，通常有多种选择，具有不同的风险-收益比；然而，患者与医生相处的时间越来越少，而且经常从替代来源获得信息，如媒体或直接面向消费者的广告。我们建议建立一个综合性的跨学科患者意识和消费者教育研究中心，其总体愿景是通过知情的决策来支持和增强医疗保健消费者的能力。RC的使命将是制定一个卓越的计划，通过研究、教育和传播提高消费者对疗法的好处和风险的认识，以消费者及其提供者为目标。我们今后五年的战略部署有以下具体目标： 目标1为建立一个跨学科的卓越研究中心建立基础设施，以开展和支持与患者和消费者的健康交流有关的研究和教育倡议。 目的2制定一项综合性的研究计划，以评估健康传播策略的方法、应用和结果。这一目标将通过以下方式实现：(I)发展方法基础设施，以支持研究人员在这些领域发起的努力(例如，援助赠款提案、合作努力、资源贡献)；(Ii)开展四个示范项目。 目的3建立消费者健康咨询信息网(CHAIN)，以部署对新出现的治疗问题作出快速反应的系统。 目的4传播和实施中心制定的信息。 这些业务目标将通过在中心内建立三个核心来实现：(I)研究和培训核心；(Ii)方法核心；和(Iii)教育和传播核心(包括外链)。我们确定了将指导我们的战略研究、教育和传播计划的四个主要主题：(I)健康沟通和消费者教育；(Ii)临床医生与患者的互动；(Iii)健康决策；以及(Iv)患者对治疗建议的坚持。

DESCRIPTION (Provided by the Applicant): Consumers' knowledge, values, and preferences are being recognized as drivers of health care utilization. With the therapeutic advances in the last decades, there are usually multiple options for a given clinical problem with different risk-benefit ratios; yet, patients spend less and less time with their physicians, and often get information from alternate sources, such as the media or direct-to-consumer advertising. We propose the creation of a comprehensive interdisciplinary Patient Awareness and Consumer Education Research Center with an overarching vision of supporting and empowering consumers of healthcare through informed decision-making. The mission of the RC will be to develop a program of excellence to improve consumers' awareness of the benefits and risks of therapeutics through research, education, and dissemination, targeting consumers and their providers. Our strategic plan for the next five years has the following specific aims: Aim 1 To establish the infrastructure for an interdisciplinary RC of excellence to conduct and support research and educational initiatives related to health communication for patients and consumers. Aim 2 To develop a comprehensive research program to evaluate methods, application and outcomes of health communication strategies. This aim will be achieved by: (i) Developing the methodological infrastructure to support investigator-initiated efforts in these areas (e.g. assistance with grant proposals, collaborative efforts, contribution of resources); (ii) Conducting four demonstration projects. Aim 3 To establish a Consumer Health Advisory Information Network (CHAIN) to deploy a system for rapid response to emerging therapeutic issues. Aim 4 To disseminate and implement the information developed by the RC. These operational aims will be achieved through the creation of three cores within the RC: (i) Research and Training Core; (ii) Methods Core; and (iii) Education and Dissemination Core (including CHAIN). We have identified four major themes which will guide our strategic research, education and dissemination plan: (i) Health communication and consumer education; (ii) Clinician-patient interactions; (iii) Health decision-making; and (iv) Patient adherence to therapeutic recommendations.