Measuring Gender in the Healthy Oregon Project

健康俄勒冈项目中的性别衡量

• 批准号: 10794845
• 负责人: JACKILEN SHANNON
• 金额: $ 16.16万
• 依托单位: OREGON HEALTH & SCIENCE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-13 至 2025-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10794845
• 关键词: Address; Administrative Supplement; Attention; Behavior; Cancer Burden; Cancer Survivor; Caring; Categories; Clinical Research; Cohort Studies; Collection; Communities; Consultations; Continuity of Patient Care; Data; Data Collection; Discrimination; Disparity; Enrollment; Ensure; Equity; Ethnic Origin; Evaluation; Exclusion; Face; Feedback; Feeling; Focus Groups; Fright; Future; Gender; Gender Identity; Goals; Guidelines; Health; Health behavior; Hereditary Breast and Ovarian Cancer Syndrome; Hereditary Nonpolyposis Colorectal Neoplasms; Individual; Inequity; Interview; Language; Lesbian Gay Bisexual Transgender Queer; Malignant Neoplasms; Measurement; Measures; Medical; Methods; Monitor; Mutation; National Comprehensive Cancer Network; Oregon; Outcome; Parents; Participant; Persons; Police; Population; Population Study; Prevention; Process; Race; Recommendation; Reporting; Research; Rural; Screening for cancer; Sex Orientation; Sexual and Gender Minorities; Signal Transduction; Subgroup; Surveys; Telephone; Terminology; Testing; United States National Institutes of Health; Work; age group; anticancer research; cancer care; cancer health disparity; cisgender; cognitive interview; cohort; community engagement; cultural competence; effectiveness study; evidence base; fluidity; gender diversity; gender fluid; gender minority community; gender minority health; genetic testing; health care settings; health disparity; health equity; improved; intersectionality; marginalized population; mortality; novel; outcome disparities; parent grant; pilot test; population based; recruit; response; satisfaction; screening; sex assigned at birth; social; transgender; urban dwelling

PROJECT SUMMARY The sexual and gender minority (SGM) community (i.e., LGBTQ+) is vastly underrepresented in cancer research. As such, there are limited data on cancer-related health outcomes and inequities, and a lack of evidence-based approaches to improve health equity. Importantly, the SGM umbrella term encompasses a heterogenous population, but much work to date has either combined subgroups or failed to disaggregate transgender and gender diverse (TGD) individuals. As such, there is an even greater need to include TGD individuals in research, and to include meaningful and accurate assessment of gender identity in that research. The NIH has developed recommendations for improvements in clinical research to improve SGM health. These include improved and expanded collection of gender identity and sexual orientation data, attention to intersectionality, and community engagement to ensure cultural competence/humility. The proposed administrative supplement project follows these recommendations by engaging TGD participants in the process of creating gender measurement items, testing the new measures in a large existing cohort, and conducting descriptive analyses to inform future research. The primary aim of this project is to conduct a mixed-methods study to guide decisions about terminology used for assessing gender within the Healthy Oregon Project (HOP). Much progress has been made toward improvement in and implementation of gender measurement, but persistent challenges remain. More specifically, current recommendations for language/terminology and response options used may not adequately and inclusively capture gender or the fluidity of gender identity. Such issues can lead to systemic gender miscategorization and low response rates in research, as well as contribute to discomfort and feelings of exclusion among TGD individuals. With the goal of improved and inclusive gender measurement, we propose to identify and test assessment items through an iterative process of individual interviews, focus groups, survey implementation in a large community cohort, and consultation with community stakeholders regarding results and recommendations. This work will add novel data to the extensive data already collected through HOP on health behaviors and cancer screening. In addition, the proposed supplement will facilitate improved data collection across the parent study cohorts that are recruited through HOP and provide a valuable opportunity to address important future questions regarding possible differences in follow on screening and prevention behaviors among TGD individuals who carry an HBOC or Lynch mutation. More broadly, the results will contribute to the expanded collection of valid gender identity data, the inclusion of TGD-specific data in research, and the improved assessment of cancer outcomes and health disparities for TGD communities.

项目摘要 性和性别少数群体（SGM）社区（即，LGBTQ+）在癌症中的代表性大大不足 research.因此，关于癌症相关健康结果和不平等的数据有限， 以证据为基础的方法来改善卫生公平。重要的是，SGM总括术语包括 异质人口，但迄今为止的许多工作要么结合了亚组，要么未能分解 跨性别和性别多样性（TGD）个体。因此，更有必要将TGD包括在内 研究中的个人，并在该研究中包括对性别认同的有意义和准确的评估。 美国国立卫生研究院已经制定了改善临床研究的建议，以改善SGM的健康。这些 包括改进和扩大性别认同和性取向数据收集，注意 交叉性和社区参与，以确保文化能力/谦逊。拟议 行政补充项目遵循这些建议， 创建性别计量项目的过程，在现有的大型群组中测试新的计量方法，以及 进行描述性分析，为未来的研究提供信息。该项目的主要目的是开展一项 混合方法研究，以指导决定用于评估卫生保健系统内性别问题的术语 俄勒冈州项目。在改善和执行性别平等方面取得了很大进展， 衡量，但持续的挑战仍然存在。更具体地说， 使用的语言/术语和回答选项可能无法充分和全面地反映性别或 性别认同的流动性。这些问题可能导致系统性的性别错误分类和低答复率 在研究中，以及有助于TGD个体之间的不适和排斥感。目标 为了改进和包容性的性别衡量，我们建议通过一个 个人访谈、焦点小组、在大型社区队列中实施调查的迭代过程， 并就结果和建议与社区利益攸关方进行磋商。这项工作将增加 新的数据已经通过HOP收集了大量关于健康行为和癌症筛查的数据。在 此外，拟议补充材料将有助于改善母研究队列的数据收集， 通过HOP招募，并提供了一个宝贵的机会，以解决未来的重要问题， TGD患者中携带TGD基因的个体在后续筛查和预防行为方面可能存在差异， HBOC或林奇突变。更广泛地说，这些结果将有助于扩大有效性别的收集， 身份数据，在研究中纳入TGD特异性数据，以及改善癌症结局评估 以及TGD社区的健康差异。