Data Sharing and Archiving for Demographic Research

项目摘要 大学间联合会的人口研究数据共享项目 政治与社会研究中心（ICPSR）通过以下方式支持人口科学及相关领域 使研究人员、政策制定者和其他人能够发现、访问和分析 相关的次要数据。获得关于人口的高质量、可概括的数据有助于 科学进步的速度是不可能的，当研究人员被限制在数据 他们自己生产的资源。具体来说，数据是可以找到的，可以访问的， 可互操作和可重复使用对于透明度和研究再现性至关重要， 使科学家能够将不同类型和不同来源的联合收割机数据结合起来， 对健康结果和行为的背景有更细致的理解。DSDR 为研究人员提供了查看可用数据范围的基础设施;访问 公共和限制使用数据，同时保护人类受试者;整合新兴数据类型 如生物标志物、基因组学和行政记录数据;并向其他人学习， 人口统计社区的数据和相关的分析技术。 DSDR利用ICPSR、社会研究所和 密歇根大学支持对孕产妇和儿童健康，生命过程， 健康差距，移民，关系的形成和解散，以及更多的在美国和 化国际大为了实现NICHD提出的目标，DSDR提出了五个主要目标： 维护和建立数据、文档和其他支持文件的集合，2）改进 数据的可扩展性和探索，3）扩大对限制使用数据的访问，4）启用 组合新类型的数据（例如，生物标志物、神经影像和管理记录） 5）提供培训并进行推广，以吸引人口 社区ICPSR的高质量的策展，创建标准化的信息描述 数据，分发完整的文件，包括代码簿和用户指南，以及 培训机会确保研究人员能够更容易地发现、评估和使用数据 收集其他人回答新的和创新的研究问题，同时坚持 受访者的隐私期望。

Project Summary The Data Sharing for Demographic Research (DSDR) project of the Inter-university Consortium for Political and Social Research (ICPSR) supports population science and related fields by making it possible for researchers, policy makers and others to discover, access, and analyze relevant secondary data. Access to high-quality, generalizable data about populations facilitates scientific advancements at a pace that is not possible when researchers are limited to the data resources they produce themselves. Specifically, data that are findable, accessible, interoperable, and reusable are critical to transparency and research reproducibility as well as making it feasible for scientists to combine data of different types and from different sources for a more nuanced understanding of the context of health outcomes and behaviors. DSDR provides the infrastructure for researchers to see the scope of available data; access both public- and restricted-use data while protecting human subjects; integrate emerging data types such as biomarkers, genomics, and administrative record data; and learn from others in the demographic community about the data and relevant analytic techniques. DSDR leverages the capabilities and capacities of ICPSR, the Institute for Social Research, and the University of Michigan to support research on maternal and child health, the lifecourse, health disparities, migration, relationship formation and dissolution, and more in the U.S. and internationally. To meet the aims set forth by NICHD, DSDR proposes five main objectives: 1) Sustain and build the collection of data, documentation, and other support files, 2) Improve discoverability and exploration of data, 3) Amplify access to restricted-use data, 4) Enable the combining of new types of data (e.g., biomarkers, neuroimages, and administrative records) with survey data, and 5) Offer training and perform outreach to engage the demographic community. ICPSR’s high-quality curation, creation of standardized information describing the data, dissemination of complete documentation including codebooks and user guides, and training opportunities ensures researchers can more easily find, evaluate, and use data collected by others to answer new and innovative research questions while upholding respondent privacy expectations.