Motivating parental support of youth skill-building during health care transition

项目摘要/摘要 患有1型糖尿病(T1D)的青少年和青壮年(Aya)患低血糖的风险最高 从儿科向成人重点护理过渡期间的控制，这反过来又增加了他们在短期内的风险- 以及长期的糖尿病并发症。这些风险达到峰值的部分原因是医疗保健的碎片化和 疾病管理责任从父母指导到自我指导。阿亚需要他们的支持 父母/照顾者和卫生保健团队建立关于自己健康和发展的知识 独立做出健康决策和使用医疗保健的必要技能，但许多家庭缺乏 了解如何促进技能从父母逐渐传授给孩子和/或有这样做的动机 因此，以一种及时有效的方式。这一奖项授予儿科卫生服务研究员Lauren Wisk博士，她将 在有指导的职业发展的支持下，以先前的研究和技能为基础，瞄准这一重要领域 奖项(K01)。在目标1中，威斯克博士将总结人口数据，并使用定性方法 让Aya的父母与T1D一起评估这些摘要的重要性和可接受性，以便在 以家庭为中心的行为干预。威斯克博士将把她的新技能融入行为科学和 健康沟通为基础的以家庭为中心的干预设计，以提高父母的 帮助他们的孩子发展过渡准备技能的动机。在目标2中，她将把她的训练应用于 实施和改进科学，以实施干预措施，评估其有效性 鼓励采用循证策略来教授过渡准备技能。由此产生的结果 这项研究将完美地补充Wisk博士的K01研究，以开发和实施行为干预 尝试用T1D改善Aya的过渡准备，以形成一个纵向的家庭- 中心试验将在R01申请中提出。这一奖项将进一步支持威斯克博士，因为她寻求 成为一名独立的调查员，拥有全面的设计、实施和 在T1D患者及其家人的保健和生命过程中传播对他们的干预措施 过渡。这个奖项建立在她的职业发展奖和伴随的培训活动的基础上， 并将展示她在这个相关项目中成功应用她的新技能的能力。威斯克博士是唯一一位 利用这一奖项和Her K01提供的资源，推出一项独立资助的 研究生涯。

PROJECT SUMMARY/ABSTRACT Adolescents and young adults (AYA) with Type 1 Diabetes (T1D) experience a peak in risk for poor glycemic control during the transition from pediatric- to adult-focused care, which in turn increases their risk for short- and long-term diabetes complications. These risks peak in part due to fragmentation of care and a shift in disease management responsibilities from being parent-directed to self-directed. AYA need support from their parents/caregivers and health care team in building knowledge regarding their own health and developing necessary skills for independently making health decisions and using health care, but many families lack an understanding of how to facilitate the gradual transfer of skills from parent to child and/or the motivation to do so in a timely and effective way. This award for Lauren Wisk, Ph.D., a pediatric health services researcher, will target this important area by building on prior research and skills supported by a mentored career development award (K01). In Aim 1, Dr. Wisk will develop summaries of population data and use qualitative methods to engage parents of AYA with T1D in evaluating those summaries for salience and acceptability for use in a family-centered, behavioral intervention. Dr. Wisk will incorporate her new skills in behavioral science and health communication as the foundation of this family-centered intervention design to improve parents' motivation to assist their child in developing transition preparation skills. In Aim 2, she will apply her training in implementation and improvement science in order to implement the intervention, assess its effectiveness for motivating adoption of evidence-based strategies for teaching transition preparation skills. Results from this study will perfectly supplement Dr. Wisk's K01 research to develop and implement a behavioral intervention trial to improve transition preparation for AYA with T1D in order to form the basis of a longitudinal, family- centered trial to be proposed in an R01 application. This award will further support Dr. Wisk as she seeks to become an independent investigator with comprehensive expertise in designing, implementing and disseminating interventions for AYA with T1D and their families during their health care and life-course transitions. This award builds logically on her career development award and accompanying training activities, and will demonstrate her ability to successfully apply her new skills on this related project. Dr. Wisk is uniquely positioned to use this award and the resources provided by her K01 to launch an independently-funded research career.