Motivating parental support of youth skill-building during health care transition

在医疗保健转型期间激发家长对青少年技能建设的支持

• 批准号: 10432479
• 负责人: Lauren Elisabeth Wisk
• 金额: $ 9.36万
• 依托单位: UNIVERSITY OF CALIFORNIA LOS ANGELES
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-04-15 至 2024-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10432479
• 关键词: Address; Adolescence; Adolescent; Adolescent and Young Adult; Adoption; Adult; Age; Appointments and Schedules; Area; Award; Back; Behavior Therapy; Behavioral; Behavioral Sciences; Caregivers; Caring; Child; Childhood; Competence; Complex; Complications of Diabetes Mellitus; Conflict (Psychology); Data; Deterioration; Development; Diabetes Mellitus; Disease; Disease Management; Doctor of Philosophy; Economics; Educational process of instructing; Effectiveness; Equilibrium; Evaluation; Family; Foundations; Funding; Goals; Health; Health Promotion; Health Services; Healthcare; Healthcare Systems; Incidence; Insulin-Dependent Diabetes Mellitus; Intervention; Intervention Trial; K-Series Research Career Programs; Knowledge; Life Cycle Stages; Link; Longevity; Medical Care Team; Mentored Research Scientist Development Award; Mentors; Modeling; Motivation; National Institute of Diabetes and Digestive and Kidney Diseases; Outcome; Parents; Patients; Persons; Population; Positioning Attribute; Preparation; Prevalence; Principal Investigator; Process; Qualitative Methods; Randomized Controlled Trials; Regimen; Reporting; Research; Research Personnel; Resources; Risk; Role; Science; Self Care; Self Efficacy; Self-Direction; Service delivery model; Services; Structure; Supervision; Testing; Time; Training; Training Activity; Transferable Skills; Work; Youth; adolescent health outcomes; aged; arm; behavioral health; care fragmentation; career; cohort; comparative; design; dissemination research; evidence base; experience; family influence; glycemic control; health communication; implementation research; improved; insight; neglect; novel; parental involvement; patient engagement; patient oriented; pilot trial; prevent; programs; recruit; skills; social; therapy design; user centered design; young adult

PROJECT SUMMARY/ABSTRACT Adolescents and young adults (AYA) with Type 1 Diabetes (T1D) experience a peak in risk for poor glycemic control during the transition from pediatric- to adult-focused care, which in turn increases their risk for short- and long-term diabetes complications. These risks peak in part due to fragmentation of care and a shift in disease management responsibilities from being parent-directed to self-directed. AYA need support from their parents/caregivers and health care team in building knowledge regarding their own health and developing necessary skills for independently making health decisions and using health care, but many families lack an understanding of how to facilitate the gradual transfer of skills from parent to child and/or the motivation to do so in a timely and effective way. This award for Lauren Wisk, Ph.D., a pediatric health services researcher, will target this important area by building on prior research and skills supported by a mentored career development award (K01). In Aim 1, Dr. Wisk will develop summaries of population data and use qualitative methods to engage parents of AYA with T1D in evaluating those summaries for salience and acceptability for use in a family-centered, behavioral intervention. Dr. Wisk will incorporate her new skills in behavioral science and health communication as the foundation of this family-centered intervention design to improve parents' motivation to assist their child in developing transition preparation skills. In Aim 2, she will apply her training in implementation and improvement science in order to implement the intervention, assess its effectiveness for motivating adoption of evidence-based strategies for teaching transition preparation skills. Results from this study will perfectly supplement Dr. Wisk's K01 research to develop and implement a behavioral intervention trial to improve transition preparation for AYA with T1D in order to form the basis of a longitudinal, family- centered trial to be proposed in an R01 application. This award will further support Dr. Wisk as she seeks to become an independent investigator with comprehensive expertise in designing, implementing and disseminating interventions for AYA with T1D and their families during their health care and life-course transitions. This award builds logically on her career development award and accompanying training activities, and will demonstrate her ability to successfully apply her new skills on this related project. Dr. Wisk is uniquely positioned to use this award and the resources provided by her K01 to launch an independently-funded research career.

项目概要/摘要 患有 1 型糖尿病 (T1D) 的青少年和年轻人 (AYA) 血糖不良的风险达到峰值 从以儿科为重点的护理过渡到以成人为重点的护理期间的控制，这反过来又增加了他们的短期风险 和长期糖尿病并发症。这些风险达到顶峰的部分原因是护理的分散和护理方式的转变 疾病管理责任从父母指导转变为自我指导。 AYA需要他们的支持 父母/照顾者和医疗保健团队建立有关自身健康和发展的知识 独立做出健康决策和使用医疗保健的必要技能，但许多家庭缺乏 了解如何促进父母向孩子逐步转移技能和/或这样做的动机 以便及时有效地进行。该奖项授予儿科健康服务研究员 Lauren Wisk 博士， 通过在受指导的职业发展支持下的先前研究和技能的基础上瞄准这一重要领域 奖（K01）。在目标 1 中，Wisk 博士将总结人口数据并使用定性方法 让患有 T1D 的 AYA 家长参与评估这些摘要的显着性和可接受性，以用于 以家庭为中心的行为干预。 Wisk 博士将把她在行为科学方面的新技能与 健康沟通作为以家庭为中心的干预设计的基础，旨在改善父母的健康状况 帮助孩子发展过渡准备技能的动机。在目标 2 中，她将把所受的训练应用于 实施和改进科学，以实施干预措施，评估其有效性 鼓励采用基于证据的策略来教授过渡准备技能。结果由此 该研究将完美补充 Wisk 博士的 K01 研究，以开发和实施行为干预 旨在改善患有 T1D 的 AYA 过渡准备的试验，以便形成纵向、家庭- R01 申请中提出的集中试验。该奖项将进一步支持 Wisk 博士的努力 成为一名独立调查员，在设计、实施和实施方面拥有全面的专业知识 在 T1D 患者及其家人的医疗保健和生命历程中传播干预措施 过渡。该奖项逻辑上建立在她的职业发展奖和伴随的培训活动的基础上， 并将展示她在该相关项目中成功应用新技能的能力。威斯克博士是独一无二的 定位于利用这个奖项和她的K01提供的资源来启动一个独立资助的项目 研究生涯。