Delivering contextualizing population data to patients to motivate health care transition preparation

向患者提供情境化人口数据，以促进医疗保健过渡做好准备

基本信息

批准号：
10888075
负责人：
Lauren Elisabeth Wisk
金额：
$ 2.26万
依托单位：
UNIVERSITY OF CALIFORNIA LOS ANGELES
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
起止时间：
2018-08-01 至 2023-09-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10888075
关键词：
Abnormal coordination Adolescence Adolescent and Young Adult Adoption Adult Age Area Award Behavior Behavior Therapy Behavioral Behavioral Research Behavioral Sciences Benchmarking Big Data Caregivers Caring Childhood Clinical Complex Complications of Diabetes Mellitus Data Development Diabetes Mellitus Disease Disease Management Doctor of Philosophy Economics Effectiveness Ensure Environment Face Foundations Funding Goals Head Health Health Insurance Health Promotion Health Services Health protection Healthcare Healthcare Systems Incidence Individual Inferior Institution Insulin-Dependent Diabetes Mellitus Interruption Intervention Intervention Trial K-Series Research Career Programs Knowledge Life Cycle Stages Link Longevity Measures Mentors Mentorship Modeling Motivation National Health Insurance National Institute of Diabetes and Digestive and Kidney Diseases Outcome Pathway interactions Patients Patterns of Care Population Positioning Attribute Preparation Process Provider Qualitative Methods Randomized Regimen Research Research Personnel Risk Science Self Care Self Efficacy Self Management Site Structure System Testing Time Training Training Activity Translating Work Youth adolescent health outcomes barrier to care behavioral health career career development clinical practice cohort comparative compare effectiveness design evidence base expectation glycemic control health care delivery health communication implementation science improved improved outcome individual patient insight multi-site trial novel online community patient engagement patient oriented practice setting prevent programs skills social therapy design trend user centered design

项目摘要

PROJECT SUMMARY/ABSTRACT Adolescents and young adults (AYA) with Type 1 Diabetes (T1D) are at risk for poor glycemic control, which in turn increases their risk for short- and long-term diabetes complications. These risks peak during the transition from pediatric- to adult-focused care, when care is subject to fragmentation and lack of coordination. AYA's risk of poor outcomes is simultaneously elevated by new expectations to independently manage their disease and treatment, but many lack the motivation to do so. This mentored career development award for Lauren Wisk, Ph.D., a pediatric health services researcher, will target this important area with the guidance of an outstanding mentoring team and with new knowledge obtained during targeted career development activities. In Aim 1, Dr. Wisk will use data from a large national health insurance plan (>45 million enrollees) to describe population- level utilization and outcome trends across the health care transition for AYA with T1D, and evaluate their determinants at individual and system levels; to achieve this aim she will gain new content knowledge of health care delivery systems and structures. In Aim 2, she will develop summaries of population data and use qualitative methods to engage AYA with T1D in evaluating those summaries for salience and acceptability for use in a patient-centered, behavioral intervention. Dr. Wisk will incorporate new skills in behavioral science and health communication as the foundation of this patient-centered intervention design to improve AYA's motivation to engage in transition preparation tasks. In Aim 3, she will undertake training in implementation and improvement science in order to implement the intervention, assess its effectiveness for motivating adoption of key transition preparation activities, and determine strategies to influence the full and effective use of the intervention in clinical practice settings. Dr. Wisk's K01 research to develop and implement a behavioral intervention trial to improve transition preparation for AYA with T1D will form the basis of a multi-site, longitudinal trial to be proposed in an R01 application submitted at the end of the K01 period. Dr. Wisk seeks to become an independent investigator with comprehensive expertise in designing, implementing and disseminating interventions for AYA with T1D during their health care and life-course transitions, with the additional long-term objective of translating these interventions into sustained improvements in self- management and health outcomes in T1D. Through the proposed career development award and accompanying training activities, she will integrate her training and research objectives to understand how AYA with T1D navigate the health care system during transition and what factors are most effective for motivating their continued health care engagement during that time, ensuring that she has the skills necessary to achieve her career goals. Dr. Wisk is uniquely positioned to use this award and the support of a highly skilled mentoring team and institutional environment to launch an independently-funded research career.

项目摘要/摘要患有1型糖尿病（T1D）的青少年和年轻人（AYA）有差血糖控制的风险，这在转弯会增加其短期和长期糖尿病并发症的风险。这些风险在过渡期间达到顶峰从小儿到以成人为中心的护理，当护理受到分裂和缺乏协调性的影响时。 aya的风险不良结果的不良结果也随着新的期望而升高，以独立管理其疾病和治疗，但许多人缺乏这样做的动力。这项指导的职业发展奖曾是劳伦·韦斯克（Lauren Wisk）儿科健康服务研究人员博士将在杰出的指导下针对这一重要领域指导团队以及在目标职业发展活动中获得的新知识。在AIM 1中，博士 Wisk将使用来自大型国家健康保险计划（> 4500万名）的数据来描述人口 - 使用T1D的AYA的整个医疗保健过渡的水平利用和结果趋势，并评估其个人和系统级别的决定因素；为了实现这一目标，她将获得健康的新内容知识护理输送系统和结构。在AIM 2中，她将制定人口数据的摘要并使用定性方法与AYA与T1D互动，以评估这些摘要的显着性和可接受性用于以患者为中心的行为干预。 Wisk博士将纳入行为科学领域的新技能，健康沟通是这种以患者为中心的干预设计的基础，以改善AYA 进行过渡准备任务的动机。在AIM 3中，她将接受实施和改进科学以实施干预，评估其激励采用的有效性关键的过渡准备活动，并确定策略的全面有效使用干预临床实践环境。 Wisk博士的K01研究旨在开发和实施行为干预试验以改善用T1D为AYA的过渡准备，将构成多站点的基础，纵向试验将在K01期末提交的R01申请中提出。 Wisk博士寻求成为具有全面设计，实施和在医疗保健和生命过程中，将AYA的干预措施传播给T1D的干预措施，将这些干预措施转化为自我的持续改进的其他长期目标 T1D的管理和健康成果。通过拟议的职业发展奖和伴随培训活动，她将整合培训和研究目标，以了解Aya如何随着T1D在过渡期间导航医疗系统，哪些因素最有效地激励在此期间，他们持续的医疗保健参与度确保她具有实现的必要技能她的职业目标。 Wisk博士在使用该奖项和高技能指导的支持下独特地定位团队和机构环境启动了独立资助的研究职业。

项目成果

期刊论文数量（9）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Changes in Self-Reported Adult Health and Household Food Security With the 2021 Expanded Child Tax Credit Monthly Payments.

DOI：
10.1001/jamahealthforum.2023.1672
发表时间：
2023-06-02
期刊：
JAMA HEALTH FORUM
影响因子：
0
作者：
Rook, Jordan M.;Yama, Cecile L.;Schickedanz, Adam B.;Feuerbach, Alec M.;Lee, Steven L.;Wisk, Lauren E.
通讯作者：
Wisk, Lauren E.

Specialist use among privately insured children with disabilities.

私人保险残疾儿童的专业使用。

DOI：
10.1111/1475-6773.14199
发表时间：
2023
期刊：
Health services research
影响因子：
3.4
作者：
Chien,AlynaT;Wisk,LaurenE;Beaulieu,Nancy;Houtrow,AmyJ;VanCleave,Jeanne;Fu,Christina;Cutler,David;Landrum,MaryBeth
通讯作者：
Landrum,MaryBeth

Diabetes-Focused Health Care Utilization Among Adolescents and Young Adults With Type 1 Diabetes.

患有 1 型糖尿病的青少年和年轻人以糖尿病为重点的医疗保健利用。

DOI：
10.1016/j.acap.2023.05.001
发表时间：
2024
期刊：
Academic pediatrics
影响因子：
3.1
作者：
Wisk,LaurenE;Garvey,KatharineC;Fu,Christina;Landrum,MaryBeth;Beaulieu,NancyD;Chien,AlynaT
通讯作者：
Chien,AlynaT

Clinical Trial Recruitment and Retention of College Students with Type 1 Diabetes via Social Media: An Implementation Case Study.

通过社交媒体招募和保留 1 型糖尿病大学生的临床试验：实施案例研究。