Addressing Sexual and Reproductive Health Care Disparities and Barriers among Adolescents and Young Adults with Disabilities

解决残疾青少年和年轻人之间的性和生殖保健差异和障碍

• 批准号: 10598412
• 负责人: Willi HORNER-JOHNSON
• 金额: $ 85.84万
• 依托单位: BRANDEIS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-02-10 至 2028-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10598412
• 关键词: Address; Adolescence; Adolescent and Young Adult; Adult; Age; Appointment; Caregivers; Caring; Clinical; Clinical Trials; Collaborations; Communication; Consent; Data; Development; Developmental Disabilities; Dimensions; Disabled Persons; Disparity; Education; Educational Curriculum; Educational Materials; Family; Female; Foundations; Future; Gender; Growth; Health; Health Priorities; Health Resources; Health Services; Health education; Healthcare; Intellectual functioning disability; Intervention; Interview; Knowledge; Literature; Methods; Multimedia; Outcome; Parents; Patients; Persons; Population; Population Heterogeneity; Provider; Reproductive Health; Reproductive Health Services; Research; Resources; Risk; Sampling; Services; Sexual Health; Surveys; Target Populations; Teenagers; Testing; United States; United States National Institutes of Health; Woman; Writing; Youth; aged; care outcomes; disability; efficacy testing; evidence base; experience; health care disparity; health care service; health care service utilization; health knowledge; health service use; improved; innovation; male; member; patient-clinician communication; peer; pilot test; population based; preference; provider communication; response; service utilization; sexually active; tool; women with disabilities; young adult; young man; young woman

PROJECT SUMMARY Studies to date suggest that the sexual and reproductive health (SRH) care needs of adolescents and young adults (AYA) with disabilities are not well met, despite the fact that this population is as likely to be sexually active as their peers without disabilities. However, research on SRH and receipt of SRH-related health care among AYA with disabilities remains limited. Scant evidence informs our understanding of the reproductive healthcare needs of both young women and men with disabilities by disability type and there is no research on reproductive healthcare service utilization across the breadth of this diverse population. Further, there are few resources to help AYA with disabilities navigate barriers to SRH care and obtain needed services. This mixed- methods study will examine SRH and healthcare utilization and SRH-related unmet needs among transition age adolescents and young adults with disabilities overall and by disability type in the United States. We will triangulate information from national survey data, interviews with AYA with disabilities, and interviews with parents of AYA with disabilities. Our analyses will address three fundamental questions that will establish a foundation for development and pilot testing of a tailored intervention to improve SRH care and outcomes for AYA with disabilities, ages 15-26: 1) What disparities exist in reproductive health care service utilization by gender and type of disability; 2) What are the barriers to SRH care for AYA with disabilities and how are these similar or different by gender and disability type?; and 3) What SRH information and resources would enhance knowledge, participation in care, and communication with providers for AYA with disabilities? Building on this foundation, we will collaborate with AYA with disabilities to develop an intervention to address the identified barriers and unmet needs. Our project directly addresses unmet needs for SRH care identified by the National Institutes of Health, including (1) investigating barriers to reproductive health care for AYA with disabilities, and (2) developing reproductive health education materials for use by AYA with disabilities. This project builds on the research team’s prior research on reproductive health of teens and women with disabilities, experience in developing health education curricula and sexual health resources for people with developmental disabilities, and clinical expertise in provision of care to people with disabilities transitioning from adolescence to adulthood. The expected outcome of this project is an innovative, accessible, multi-media educational toolkit to improve SRH knowledge and activation and provider communication. Our pilot testing will provide initial evidence on the utility of the toolkit for our target population, establishing a foundation for future efficacy testing in a clinical trial. This project will break new ground by providing a foundation of evidence on SRH health and healthcare outcomes, and will develop an innovative SRH educational toolkit to address barriers and disparities among AYA with disabilities.

项目摘要 迄今为止的研究表明，青少年和年轻人的性健康和生殖健康（SRH）护理需求 成年人（AYA）患有疾病的人无法得到很好的满足，这一事实是该人群有可能是性行为的 活跃于没有残疾的同伴。但是，关于SRH和SRH相关医疗保健的研究 在残疾AYA中，仍然有限。很少的证据证明了我们对生殖的理解 通过残疾类型的年轻男性和残疾男性的医疗保健需求，没有关于 该潜水员人口的广度上的生殖医疗服务利用。此外，很少 帮助AYA残疾的资源导致SRH护理的障碍并获得所需的服务。这个混合 方法研究将检查SRH和医疗保健利用和与SRH相关的未满足需求 在美国，年龄的青少年和残疾人的年轻人和残疾人类型。我们将 来自国家调查数据中的三角信息，与残疾AYA的访谈以及对 残疾人的父母。我们的分析将解决三个基本问题，这些问题将建立一个 量身定制干预措施的开发和试点测试基础，以改善SRH护理和结果 15-26岁的残疾人aya，生殖保健服务利用中存在哪些分布 性别和残疾类型； 2）SRH护理残疾的障碍是什么？ 性别和残疾类型相似或不同？ 3）什么SRH信息和资源将增强 知识，参与护理以及与残疾AYA提供者的沟通？基于此 基金会，我们将与残疾人的AYA合作开发干预措施以解决已确定的 障碍和未满足的需求。我们的项目直接解决了国家国家确定的未满足的SRH护理需求 卫生研究院，包括（1）调查残疾AYA生殖医疗保健的障碍，以及 （2）开发生殖健康教育材料，以供残疾人AYA使用。这个项目以 研究团队先前关于残疾妇女生殖健康的先前研究，经验 为发育障碍患者开发健康教育课程和性健康资源， 以及向残疾人提供护理的临床专业知识，从青少年过渡到 成年。该项目的预期结果是一种创新的，可访问的，多媒体的教育工具包 改善SRH知识和激活和提供商的沟通。我们的飞行员测试将提供初始 有关该工具包为目标人群的效用的证据，为未来效率测试建立了基础 在临床试验中。该项目将通过提供有关SRH Health和 医疗保健成果，并将开发创新的SRH教育工具包，以解决障碍和 AYA残疾人的差异。