Accessible Electronic Health Records: Defining a Research Agenda

用于存储、检索、共享和分析健康相关信息的电子解决方案正在迅速部署。解决方案可能是为医疗保健专业人员或消费者设计的。因此，个人可能不频繁或频繁地访问记录，他们可能反复访问单个记录（例如，消费者审查他们的记录）或偶尔访问许多不同的记录（例如，提供者准备与患者会面），或者他们可能需要比较记录之间的信息（例如，研究人员寻找模式）。个人可以输入或更新信息，或者他们可以简单地访问可能包含文本和图形组合的信息。安全必须得到维护，协作必须得到支持，隐私必须得到保障。虽然针对各利益攸关方要求迅速向前推进的压力提出了解决办法，但令人关切的是，残疾人获取电子医疗记录的问题尚未得到充分解决。这笔资金用于支持一个由大约15名研究人员组成的研讨会，以探索这些问题。讲习班将有三个相关目标：教育无障碍研究人员了解保健社区的关切和需求；就使残疾人能够获得相关信息方面的问题、挑战和现有解决方案，对保健社区进行教育；如果要在电子医疗记录的背景下有效地解决可访问性问题，确定需要由研究界解决的关键问题。研讨会将于2010年10月23日至24日在佛罗里达州奥兰多举行，并将与ACM关于计算机和可访问性的年度会议（ASSETS 2010）同时举行，希望借此增加关键的可访问性研究人员参与讨论的可能性。此外，倡议还将征求无障碍社区以外的意见并鼓励参与，以确保与会者了解医疗保健社区的需求和关切，并将其纳入讨论。更广泛的影响：本次研讨会将有助于确定重要的可访问性相关问题，这些问题可以通过未来的研究来解决，同时为来自医疗保健和可访问性社区的个人提供讨论共同兴趣、目标和关注点的机会。讲习班的成果将直接影响范围广泛的用户，包括来自代表性不足群体的个人，特别强调残疾人。该活动将促进新老研究人员之间的交流，特别是将为新研究人员提供机会，通过与更多具有相关兴趣的资深研究人员的互动，获得有关当前和未来研究计划的建设性反馈。

Electronic solutions for storing, retrieving, sharing, and analyzing health related information are being deployed rapidly. Solutions may be designed for healthcare professionals or consumers. As a result, individuals may access the records infrequently or frequently, they may access a single record repeatedly (i.e., consumers reviewing their record) or many different records occasionally (i.e., providers preparing to meet with patients), or they may need to compare information across records (i.e., researchers looking for patterns). Individuals may enter or update information, or they may simply access the information which is likely to include a combination of text and graphics. Security must be maintained, collaboration should be supported, and privacy must be ensured. While solutions are being proposed in response to pressure from various stakeholders to move forward rapidly, there is a concern that accessibility of electronic medical records by people with disabilities has not been adequately addressed.This is funding to support a workshop of approximately 15 researchers, to explore these issues. The workshop will have three related goals: to educate accessibility researchers with regard to the concerns and needs of the healthcare community; to educate the healthcare community with regard to issues, challenges, and existing solutions with regard to making relevant information accessible to individuals with disabilities; and to identify critical issues which need to be addressed by the research community if accessibility is to be effectively addressed in the context of electronic medical records. The workshop will take place in Orlando, Florida on October 23-24, 2010, and will be co-located with and on the days immediately preceding ACM's annual conference on computers and accessibility, ASSETS 2010, in the hope of thereby increasing the likelihood of engaging key accessibility researchers in the discussions. The PI will in addition solicit input and encourage participation from beyond the accessibility community, in order to ensure that the needs and concerns of the healthcare community are understood by attendees and integrated into the discussions.Broader Impacts: This workshop will help identify important accessibility-related issues that may be addressed through future research, while providing individuals from the healthcare and accessibility communities with the opportunity to discuss common interests, goals, and concerns. Workshop outcomes will directly affect a broad range of users, including individuals from under-represented groups with a particular emphasis on individuals with disabilities. The event will foster networking amng both new and experienced researchers, and in particular will provide opportunities for new researchers to receive constructive feedback on current and future research plans through interactions with more senior researchers with related interests.