Educational program for the families of children with facial disfigurement

1. 2.研究对象为71名唇腭裂患儿的母亲。他们的平均年龄为32.0岁（SD=4.6）。首先以半结构化的方式对受试者进行约30分钟的访谈，以获得有关家庭支持、社会支持网络、母亲适应和社会功能的信息。结果（1）10%左右的母亲离婚，其中10%的母亲离婚后，母亲的生活质量下降。（2）50%的人在出生后的几个月内经历了严重的抑郁症。（3）15%的人被贝克抑郁量表诊断为抑郁症（Beck et al.，1979年，出生后几年。（4）家庭支持、社会支持网络和对未来经济状况的不确定性对母亲适应有显著的预测作用。提示唇腭裂患儿家庭存在一定的心理社会冲突。与此同时，大约一半的母亲有心理适应问题的风险。这些结果显示了对面部缺陷儿童家庭进行早期干预的必要性和重要性。

1.ObjectiveThis study examined the psychosocial adaptation of the families of children with facial disfigurement.2.MethodThe subjects were 71 mothers of children with cleft lip and/or palate. Their mean age was 32.0 (SD=4.6). The subject was first interviewed in a semi-structured way for approximately 30 minutes to obtain information about family support, social support network, maternal adaptation and social functioning. Two instruments were then administered in a fixed order to the mother.3.Results(1)About 10 percent of the mothers divorced.(2)Fifty percent experienced heavy depression for a period of several months from birth.(3)Fifteen percent were diagnosed as a depressive disorder by the Beck Depression Inventory (Beck et al.,1979) even after a lapse of several years from birth.(4)Maternal adaptation could be significantly predicted by several factors such as family support, social support network and uncertainty about their economic future.4.ConclusionsThe divorce rate in our subjects was very high. It suggests that the families of children with cleft lip and/pr palate have some sort of psychosocial conflict. At the same time, about half the mothers were at risk for psychological adjustment problems. These results show the necessity and importance of early interventions for the families of children with facial disfigurement.