Caregiver burden among family caregivers of patients with presenile dementia

在我们研究的第一年，我们比较了额颞叶变性（FTLD）的老年前期患者与阿尔茨海默病患者。因此，我们需要了解他们在家中生活时所遇到的问题。我们的研究结果表明，FTLD患者提出了特殊的家庭问题，由于“走我的路”的行为，不持久，冲动。另一方面，AD患者对如何进行ADL感到困惑，拒绝合作，因此需要更多的护理。因此，从家庭护理的角度来看，建议的问题不同的类型dementions.In 2003年，一个更详细的调查表明，FTLD患者表现出不合作的态度，他们的ADL护理。此外，患者的异常饮食行为，刻板行为和抑制解除使家庭护理更加困难。因此，我们认为，对照顾者来说，充分了解老年痴呆症的各种信息，并得到社会的理解和支持是至关重要的。2004年，我们对早老性痴呆症患者、老年痴呆症患者及其照顾者的生活状况进行了比较调查。与老年组相比，老年前期组从卫生专业人员那里得到的情感支持更少，使用的护理服务也更少。在研究的最后一年，我们发现老年组的照顾者负担与许多变量有关，包括患者的疾病或生活状况，而老年前期组的照顾负担与照顾者的健康问题有很强的相关性。根据上述情况，本研究建议应改善照顾服务，提供更多有关早老性痴呆的资讯，同时减轻照顾负担，让照顾者更容易获得直接的身心照顾。

In the first year of our study, we compared presenile patients with frontotemporal lobar degeneration (FTLD) to patients with Alzheimer's. disease (AD) in order to understand their problems in relation to caregiving at home. Our results showed that the FTLD patients presented special home caregiving problems due to "going my way" behavior, impersistence, and impulsivity. The AD patients, on the other hand, were confused regarding how to go about their ADL and refused to cooperate, thus necessitating more care. Therefore, the problems from a home care standpoint were suggested to differ in terms of the type of dementia.In 2003,a more detailed investigation indicated that FTLD patients showed uncooperative attitudes regarding their ADL care. Also, the patients' abnormal eating behavior, stereotypic behavior, and disinhibition made home care more difficult. We, therefore, consider it crucial for caregivers to have thorough access to a wide range of symptom-specific information and to have the understanding and support of society as a whole.In 2004, we undertook a comparative survey of the caregiving situation of presenile dementia patients, senile dementia patients, and their respective caregivers. Compared to the senile group, the presenile group tended to receive less emotional support from health professionals and use fewer care services.In the final year of our study, we found that the caregiver burden for the senile group had associations with many variables involving the patients' illness or caregiving situation, while the care burden for the presenile group had a strong correlation with caregiver health issues.In light of the foregoing, the present study suggested the need for improving care services and providing the public with more information on presenile dementia, and at the same time lessening care burden by making direct physical and psychological care more avilable to caregivers.