Weston-super-Mare consortium: Harnessing community assets to tackle inequities and reduce social isolation in end-of-life care and bereavement

重病和丧亲影响着我们所有人，但我们对它们的经历是不同的。生活在英国最贫困地区的人如果得了重病或亲人去世，就不太可能得到他们所需的护理和支持。他们也更有可能在社会上孤立和孤独--严重的疾病或失去亲人会使情况变得更糟。这个项目的基础是北萨默塞特郡一个贫困的沿海小镇Weston-Super-Mare。它的九个社区属于全国最贫穷的10%。人口正在增长，变得越来越老龄化，生活在更加脆弱和长期复杂的健康状况下。还有很高水平的心理健康和成瘾问题。该项目团队将创建一个具有共同目标的强大团体(一个联盟)，将卫生和社会护理工作者、提供社区资产的人(个人和社区可获得的集体资源，例如艺术组织、慈善机构和社区团体)、学者以及有生活经验的人团结起来，共同努力减少韦斯顿-超级马雷和北萨默塞特地区的医疗不平等。我们的联盟将专注于与临终关怀、丧亲支持、社会孤立和孤独有关的不平等问题。在项目的9个月中，我们将举行3次联合体会议，共同努力：1.创建社区资产目录，并采访关键人物，了解医疗和社会关怀与社区资产如何最好地协同工作2。设计和评估将在临终问题意识周(DMAW，2023年5月)期间举行的创意和文化活动，并雇用公众成员作为共同研究员3。与当地团体(有毒瘾和酗酒问题的人、年轻人和老年男子)举行创造性的研讨会，促进关于悲伤和疾病的对话，提高对当地支持的认识，并帮助为我们的DMAW活动提供信息4。审查过去5年(2017-2022年)在Weston-Super-Mare工作的艺术/创意组织的现有评估数据，以确定哪些活动最能吸引社区并使其受益，并在设计DMAW活动时借鉴这一点5。绘制可用的健康和社会保健数据，并确定如何利用这些数据来帮助理解、衡量和减少不平等6。召开最后一次财团会议：审查我们的所有工作；考虑我们如何将我们的发现应用于其他贫困的沿海城镇；并就未来联合供资申请的研究问题和方法达成一致。该项目将受益：1)综合护理系统(ICS)，加强他们与威斯顿超级马里市的社区组织和公众的关系，并提供信息(社区资产目录、数据集地图)，以实现公平的临终关怀和丧亲支持；2)社区组织，通过(通过与ICS的链接)获得认可和资金，并帮助他们接触到更多的人(通过与财团的链接和在活动中提高认识)；3)创意和文化组织，使他们能够以循证的方式吸引当地社区成员并赋予他们权力，向艺术家提供培训，并增加与ICS和社区组织的联系；4)公众成员，他们将了解通过ICS和社区资产向他们提供的关怀和支持，并受益于在创意讲习班、参加免费活动、作为合作研究人员和财团会议表达他们的经验和社交的机会；5)学术研究人员，通过建立新的多学科、合作的方式来创建研究和建立关于社区资产如何有助于减少健康不平等的证据；6)政策制定者，就ICSS如何最好地利用社区资产提出建议。我们将通过财团会议、博客、项目网站、期刊文章、报告、在社区/ICS活动上的演示和政策简报来与这些团体接触。

Serious illness and bereavement affect us all, but our experiences of them are not equal. People living in the poorest areas of the UK are less likely to get the care and support they need if they become seriously ill or a loved one dies. They are also more likely to be socially isolated and lonely - which can be made even worse by serious illness or bereavement. This project is based in Weston-super-Mare, a deprived coastal town in North Somerset. Nine of its neighbourhoods are among the poorest 10% in the country. The population is growing, getting older and living with more frailty and long-term, complex health conditions. There are also high levels of mental health and addiction problems. The project team will create a strong group with a shared aim ('a consortium') that unites health and social care workers, people providing community assets (collective resources which are available to individuals and communities, e.g. arts organisations, charities and community groups), academics, and people with lived experience to work together to reduce health inequities in Weston-super-Mare and the North Somerset region. Our consortium will focus on inequities related to end-of-life care, bereavement support, social isolation and loneliness. During the 9 months of the project, we will hold 3 consortium meetings and work together to: 1. create a directory of community assets and interview key people to understand how health and social care and community assets can best work together2. design and evaluate creative and cultural activities to be held over Dying Matters Awareness Week (DMAW, May 2023), with members of the public employed as co-researchers3. hold creative workshops with local groups (people with drug and alcohol addiction problems, young people, and older men) to facilitate conversations about grief and illness, raise awareness of local support, and help inform our DMAW events4. review existing evaluation data from arts/creative organisations working in Weston-super-Mare over the last 5 years (2017-2022) to identify what activities have best engaged and benefitted the community, and draw on this in designing DMAW events5. map available health and social care data and determine how it can be used to help understand, measure and reduce inequities6. hold a final consortium meeting to: review all our work; consider how we can apply our findings in other deprived coastal towns; and agree research questions and methods for a future joint funding applicationThe project will benefit: 1) the Integrated Care System (ICS), strengthening their relationships with community organisations and the public in Weston-super-Mare and providing information (community asset directory, map of datasets) to enable equitable end-of-life care and bereavement support; 2) community organisations, by bringing recognition and funding (via linking with the ICS) and helping them reach more people (via linking with the consortium and awareness raising at events); 3) creative and cultural organisations, by enabling them to engage and empower local community members in an evidence-based way, providing training to artists and increasing links with the ICS and community organisations; 4) members of the public, who will learn about the care and support available to them via the ICS and community assets and benefit from opportunities to express their experiences and socialise in creative workshops, attend free events, participate as co-researchers and at consortium meetings; 5) academic researchers, by modelling new multidisciplinary, collaborative ways of creating research and building evidence about how community assets can help reduce health inequities; 6) policy makers, by making recommendations for how ICSs can best harness community assets. We will engage with these groups via consortium meetings, blogs, the project website, journal articles, reports, presentations at community/ICS events and a policy brief.