OUTCOMES OF EDUCATION AND COUNSELING FOR BRCA1/2 TESTING

这项研究的目标是：1)确定家庭 显著的特征、人格特征和信念 影响有关BRCA1测试的个人决定，例如， 宗教和精神信仰以及以前与 癌症；2)描述负面与正面的影响 BRCA1对家庭关系和心理状况的测试结果； 3)预测对有关风险状况的特定咨询的反应 基于个人的个性特征；4)预测谁在 在关闭时遇到负面影响的最大风险 人际关系；5)评估对测试的期望以及如何 这些因素会影响人们对风险的认知和对风险的反应 通知；6)评估风险通知对 监测和预防活动的频率；以及7)至 将客户驱动的预测会话与顾问驱动的测试前会话进行比较， 解决问题的方法。到目前为止，来自11个国家的556人 已经联系了大家庭。256 (46%)参与了研究，220人(86%)参与了研究 接受咨询)选择接受基因检测。一百 73个人已经收到了他们的检测结果。预测者 测试决策，包括社会人口统计学和个性 对其性状进行了分析。年龄、婚姻状况、家庭凝聚力和 乐观情绪预示着这一决定将受到考验。这些基线 目前正在提交结果以供公布。

The objectives of the study are; 1) to identify family characteristics and personality traits and beliefs that significantly effect individual decisions regarding BRCA1 testing such as, religious and spiritual beliefs and previous direct experience with cancer; 2) to characterize the impact of negative vs. positive BRCA1 testresults on family relationships and psychological status; 3) to predict responses to specific counseling regarding risk status based on individual personality profiles; 4) to predict who is at greatest risk for experiencing negative effects on close relationships; 5) to assess expectations regarding testing and how these influence perceptions of risks and responses to risk notification; 6) to evaluate the impact of risk notification on the frequency of surveillance and prevention activities; and 7) to compare a client-driven pre-test session to a counselor-driven, problem- solving approach. To date, 556 individuals from eleven extended families have been contacted. Two hundred fifty six (46%) have participated in the study and 220 (86% of those counseled) have chosen to undergo genetic testing. One hundred seventy three individuals have received their test results. Predictors of testing decisions including, sociodemographics and personality traits have been analyzed. Age, marital status, family cohesion and optimism are predictive of the decision to be tested. These baseline results currently are being submitted for publication.