CHILDBEARING DECISIONS AND PARENTING AMONG PERSONS WITH RHEUMATIOD ARTHRITIS

养育子女是成年人的主要角色之一。患有类风湿关节炎的人可能是 不愿意生孩子，因为他们的治疗或要求 疾病。父母可能会发现养育行为改变或不改变 确认他们因移动性或能源限制而产生的期望。 因此，类风湿性关节炎对父母教养方式的影响是通过决定不 追求怀孕或对父母行为的影响可能会产生巨大的影响 对RA患者及其子女的影响。这项研究将检查 类风湿因子对生育决策、育儿行为的影响 结果。加州大学旧金山分校RA小组的成员将被问及 生育决定；那些有孩子的人将被问及 育儿行为与育儿角色颠覆。生育决定 将在另一组数据中进行检查，即加州大学旧金山分校哮喘小组，用于 与加州大学旧金山分校RA小组的数据进行比较。数据将从RA收集 小组成员通过年度电话采访。评估影响的项目 RAS对生育决定、育儿行为、应对行为的影响， 父母的角色调整，以及父母的心理调整会 添加了。将收集有关儿童心理社会适应的信息 来自家长和老师的分析将涉及三个主要方面：1) RA对生育决策的影响及其相关因素 决定，以及这些决定的心理影响；2) 类风湿因子对父母养育行为及其相关因素的影响 影响；以及3)RA对父母养育行为的限制的影响 父母角色困扰对父母和子女心理社会的影响 调整。这项研究的发现将有助于确定 RA对生育决策的影响，RA对父母行为的影响， 有效和无效的应对育儿行为的方法 由于RA造成的限制，以及生育决定和 父母教养方式对儿童心理调适的局限性 患有类风湿关节炎的父母及其子女。这些数据将提供有价值的 为临床医生、咨询师和教育工作者提供的信息，以提高他们的 与RA患者接触，提供受孕前咨询，以及 协助适应为人父母的身份和生育方面的挑战。 这个项目的数据将极大地提高人们的生活质量 类风湿性关节炎患者及其家人。

Parenting is one of the major adult roles. Individuals with RA may be reluctant to have children because of treatments or demands of the disease. Parents may find that parenting behaviors change or do not confirm to their expectations because of mobility or energy limitations. Thus, effects of RA on parenting on parenting through decisions not to pursue pregnancy or effects on parenting behaviors may have a tremendous effect on individuals with RA and their children. This study will examine the impact of RA on childbearing decision, parenting behavior, and outcomes. Members of the UCSF RA Panel will be questioned about childbearing decisions; those who have had children will be asked bout parenting behaviors and parenting role disruption. Childbearing decisions will be examined in an additional data set, the UCSF Asthma Panel, for comparison to data from the UCSF RA Panel. Data will be collected from RA Panel members via annual telephone interviews. Items to assess the impact of RAS on childbearing decisions, parenting behavior, coping behaviors, parental role adjustment, and parents' psychological adjustment will be added. Information on children's psychosocial adjustment will be collected from parents and teachers, Analyses will address thre major areas: 1) the impact of RA on childbearing decisions, factors associated with those decisions, and the psychological effects of those decisions; 2) the effects of RA on parenting behavior and factors associated with those effects; and 3) the impact of limitations on parenting behavior due to RA and parental role distress on parents' and children's psychosocial adjustment. The findings from this study will help to define the impact of RA on childbearing decisions, the impact of RA on parenting behaviors, effective and ineffective ways of coping with parenting behavior limitations due to RA, and the effect of childbearing decisions and limitations in parenting behavior on the psychological adjustment of parents with RA and their children. These data will provide valuable information for clinicians, counselors, and educators to enhance their contacts with individuals with RA, provide pre-conception counseling, and assist with adaptation to parenthood and the challenges of childbearing. The data from this project will greatly enhance the quality of life of individuals with RA and their families.