Training Parents to Advocate for Students with TBI

描述（由申请人提供）：每年约有30，000名儿童因创伤性脑损伤（TBI）而在社会，行为，身体和认知功能方面发生重大变化。有效的家长宣传服务，以解决创伤性脑损伤的影响，导致成功的学校经验和成果。然而，这些家长往往没有能力为子女争取适当的教育服务，导致教育需求得不到满足。拟议的方案将培训父母4项关键的宣传技能：（a）有效沟通;（B）查明/总结问题;（c）设定目标和确定优先次序;（d）评估进展。此外，拟议的方案将提供5个基本信息模块：（a）记录保存;（B）IEP/504计划;（c）高中后过渡;（d）获得社会支持;（e）获得法律的支持。第一阶段的原型成功地开发了一个互动的多媒体光盘与TBI的学生家长，重点是有效的沟通技巧，用于倡导关注社会行为在小学学龄儿童TBI。第二阶段的发展将扩大内容，以包括：（a）3个额外的宣传技能，（B）额外的关注领域（即，身体/医疗问题、学术、组织技能和社会融合），（c）根据学生年龄定制信息的能力（例如，小学或中学），以及（d）信息模块。此外，基于网络的公告板将为在自己学校应用宣传技能的家长提供社会支持。

DESCRIPTION (provided by applicant): Each year, approximately 30,000 children are left with significant alterations in social, behavioral, physical, and cognitive functioning as a result of traumatic brain injury (TBI). Effective parental advocacy for services to address the effects of TBI leads to successful school experiences and outcomes. However, these parents are often ill equipped to advocate for appropriate educational services for their child, resulting in educational needs being unmet. The proposed program will train parents in 4 critical advocacy skills: (a) effective communication; (b) identifying/summarizing the problem; (c) goal setting and prioritizing; and (d) evaluating progress. In addition, the proposed program will provide access to 5 essential information modules: (a) record keeping; (b) IEP/504 plans; (c) post high school transition; (d) accessing social support; and (e) accessing legal support. The Phase I prototype successfully developed an interactive multimedia CD-ROM for parents of students with TBI, focusing on effective communication skills used to advocate for concerns regarding social behavior in elementary school-aged children with TBI. Phase II development will expand content to include (a) the 3 additional advocacy skills, (b) additional areas of concern (i.e., physical/medical issues, academics, organizational skills, and social integration), (c) the ability to tailor information by student age (e.g., elementary or secondary), and (d) the information modules. In addition, a web-based bulletin board will provide social support to parents applying the advocacy skills in their own schools.