FASD and Socio-Cognitive Habilitation in the Community: The MILE Program

产前酒精暴露已被证明与一系列负面结果有关，现在， 描述为胎儿酒精谱系障碍（FASD），其中胎儿酒精综合征（FAS）仅是 最严重也最容易诊断尽管有终生的认知、功能和行为障碍， 与这些疾病相关，还没有经验验证的方法用于教育和 在社区和教育环境中使用的行为干预。提供更多 在这样的服务中，本申请提出将一种方法的临床试验的结果转化为 socio-cognitive认知habitation居住to community社区settings设置.发现该方案的两个组成部分 在最初的试验中有效，并将在更广泛的社区中独立评估其有效性 设置.这些是：照顾者教育/培训和MILE（数学互动学习体验） 程序.为了评估护理人员教育和培训的远程学习模式，我们将合作 与虚拟现实助手公司及其教育网站www.do2learn.com合作。两个看护人 模块，1）了解FASD和倡导您的孩子，和2）行为规范，以及 所有辅助性成果措施都将以远程学习的形式提供， 干预措施与标准护理和讲习班模式相比，在60个家庭中， 孩子的功能问题。为了评估MILE辅导计划的有效性，60个家庭 3至9岁的儿童将参加三个随机分配的条件之一，一个社区- 翻译的MILE程序和两个对照组，中心为基础，和家长教育。社区 已经招募了包括辅导服务、课后项目和娱乐项目在内的合作伙伴， 使MILE程序和辅助材料以及图表适应其设置。为施行 结果评价和参与协作数据库，所有儿童将被诊断为FAS 或pFAS，并由研究工作人员进行检测。社区咨询委员会将提供 支持调查人员将方法转化为社区现场，并设计和实施 为了使这项研究的成果得到广泛的应用，将在第四年实施一项培训-培训者计划 可用且易于获取。

Prenatal alcohol exposure has been demonstrated to be associated with a range of negative outcomes, now described as the fetal alcohol spectrum disorders (FASD) of which fetal alcohol syndrome (FAS) is only the most severe and easily diagnosed. Despite the life-long cognitive, functional, and behavioral disabilities associated with these disorders, there have been no empirically validated methods for educational and behavioral intervention available for use in community and educational settings. To increase the availability of such services, the current application proposes to translate the results of a clinical trial of a method for socio-cognitive habitationto community settings. Two components of this protocol were found to be efficacious in the initial trials and will be evaluated independently for effectiveness in the broader community setting. These are: Caregiver Education/Training and the MILE (Math Interactive Learning Experience) Program. To evaluate a distance learning model for caregiver education and training, we will collaborate with Virtual Reality Aides, Inc and their educational-oriented website, www.do2learn.com. Two Caregiver Modules, 1) Understanding FASD and Advocating for Your Child, and 2) Behavioral Regulation, as well as all supporting outcome measures will be made available in a distance-learning format and this method of intervention compared with standard care and a Workshop model in 60 families requesting information about their children's functional problems. To evaluate the effectiveness of the MILE tutoring program, 60 families with children 3 to 9 years will participate in one of three randomly-assigned conditions, a community- translation of the MILE program and two contrast groups, Center-based, and parent education. Community partners including tutoring services, after school programs and recreation programs have been recruited to adapt the MILE program and supporting materials and curriculm to their settings. For the purposes of outcome evaluation and participation in the Collaborative Database, all children will be diagnoses with FAS or pFAS in the FAS Center Clinic and tested by study staff. A Community Advisory Board will provide support to the investigators in translating methods to the community sites and in designing and implementing a Train-the Trainer program to be carried out in Year 4 in order to make the results of this research widely available and easily accessible.