UNIVERSAL DATA AND SERUM SPECIMEN COLLECTION SYSTEM FOR HEMOPHILIA

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目和 研究者（PI）可能从另一个NIH来源获得了主要资金， 因此可以在其他CRISP条目中表示。所列机构为 研究中心，而研究中心不一定是研究者所在的机构。 具体目的/目标： 通用数据和血清标本收集系统将通过协助分析血友病治疗中心（HTC）常规收集的统一临床数据集，扩大CDC与HTC的合作。 这些数据用于监测美国先天性出血性疾病并发症的程度。将分析特定测量值以评价关节疾病的程度。 此外，疾病预防及控制中心会提供免费化验服务，每年从在健康中心接受护理的人士身上收集血清样本，以确定是否有血液传播的病原体，协助健康中心监察有关的感染情况。 在测试后，每个血清样本的剩余部分将由疾病预防控制中心用于建立血清库，以便将来可能用于评估这些人使用的血液制品的安全性。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. Specific Aims /Objectives: The Universal Data and Serum Specimen Collection System will extend CDC's collaboration with the Hemophilia Treatment Centers (HTC) by assisting with the analysis of a uniform set of clinical data routinely collected by HTCs. These data are used to monitor the extent of complications of congenital bleeding disorders in the U.S. Specific measurements will be analyzed to evaluate the degree of joint disease. In addition, free testing of serum specimens collected annually from persons receiving care in the HTCs for the presence of blood borne pathogens will be offered by CDC to assist HTCs in monitoring related infections. After testing, the remainder of each serum specimen will be used by the CDC to establish a serum bank for possible future use in evaluating the safety of blood products used by these persons.