Community Engagement Core

项目总结 墨西哥裔美国人是美国增长最快的少数族裔群体，他们经历了 健康差距。然而，墨西哥裔美国人在生物医学研究中的代表性不足，而且 人口几乎没有从基因和基因组研究的指数增长中受益 在最近几十年中排名第一。提高基因组素养和参与基因组研究至关重要的是，如果 墨西哥裔美国人将受益于基因组学和精确医学最近和未来的进步。 UTRGV基因组多样性研究中心的社区参与核心(CEC)旨在 与社区成员和社区建立新的关系并扩展现有关系 组织，以1)解决社区范围的健康问题，2)促进参与基因组 研究，以及3)传播基因组研究成果。CEC将与彼此密切合作 中心的组成部分，以最大限度地增加与社区接触的机会。CEC将建立 关于当地社区中建立的互动和信任网络，这些网络已经发展了很多年 多年来，中心调查人员通过研究和医疗保健提供努力。通过一系列 活动，核心将通过改善墨西哥裔美国人的参与和留住来增强研究能力 在基因组研究项目中。核心将解决四个具体目标：1)评估南得克萨斯州社区 通过焦点小组对生物医学和基因组研究的需求、优先事项、障碍和兴趣 讨论、深入访谈和调查；2)建立社区联系网络并加强 社区与该中心的参与，以改善伙伴关系并支持招募墨西哥人 美国研究参与者；3)促进沟通，以加强研究的传播和吸收 结果；以及4)评估核心的成功，并根据需要进行调整，以满足社区和 研究需求。

PROJECT SUMMARY The Mexican American population is the fastest growing minority group in the US and experiences significant health disparities. However, Mexican Americans are underrepresented in biomedical research, and the population has barely benefited from the exponential growth of genetic and genomic research that has taken place in recent decades. It is critical that genomic literacy and participation in genomic research improve if the Mexican American population is to benefit from recent and future advances in genomics and precision medicine. The Community Engagement Core (CEC) of the UTRGV Diversity Center for Genome Research is designed to establish new relationships and extend existing relationships with community members and community-based organizations in order to 1) address community-wide health concerns, 2) promote participation in genomic research, and 3) disseminate genomic research findings. The CEC will work closely with each of the other components of the Center to maximize opportunities for engagement with the community. The CEC will build on established networks of interaction and trust in the local community that have been developed over many years by Center investigators through both research and health care delivery efforts. Through a range of activities, the Core will enhance research capacity by improving participation and retention of Mexican Americans in genomic research projects. The Core will address four Specific Aims: 1) to assess the south Texas community needs for, priorities for, barriers to, and interest in biomedical and genomic research through focus group discussions, in-depth interviews, and surveys; 2) to build a network of community contacts and enhance community involvement with the Center to improve partnerships and support the recruitment of Mexican American study participants; 3) to foster communication to enhance dissemination and uptake of research results; and 4) to evaluate the success of the Core, and make adjustments as required to meet community and research needs.