Outreach, Recruitment and Education Core

项目摘要/摘要 外联、征聘和教育核心 阿尔茨海默病S病(AD)影响着560万美国人，不分种族和民族。今天，超过38个 有数百万美国人年龄在65岁或以上；这一数字预计在未来25年内将翻一番。年龄最大的老人 85岁以上的人构成了美国人口中增长最快的部分。目前约有400万 人们，到2050年，这一人口可能会超过1900万。老年人口的种族和民族构成是 预计也将变得更加多样化。2006年，65岁以上的成年人中有81%是高加索人；到2050年 据估计，这一比例将降至61%-40%，约1400万西班牙裔，860万非裔美国人， 来自其他种族和民族的580万老年人。收入、教育、卫生服务方面的不平等 可获得性，以及对知识、信仰和态度中特定文化差异的缺乏理解，可能 在健康结果和生活质量方面造成显著差异。这不仅包括在以下方面的差异 症状表现，而是对疾病和护理的看法。如果我们要真正了解临床前AD及其 无数的陈述、风险因素和潜在的治疗选择，然后是我们参与的队列 观察性研究、临床试验、生物标记物研究和心理社会研究必须反映出 美国人口的变化。的外展、招聘和教育核心(OREC)的总体目标 纽约大学ADC将通过社区参与提供渠道；与纽约大学其他中心合作， 发展数据中心和科学界；以及增加招聘和留住 参与年度纵向评估、生物标记物研究和 尸检研究。我们提出4个具体目标：(1)促进招聘和留住艺发局的参与者 纵向研究和临床试验，特别强调代表不足的少数群体(URG)； 开展外展活动，告知和提高对业外人士的认识，重点是URG 关于大脑老化；记忆力丧失；早期检测；生物标志物；诊断、治疗和护理选择；以及 促进对研究参与的良好态度；(3)保持和发展教育倡议和 培训机会；(4)评估我们的招聘、外展、培训和教育的有效性 活动。核心协调为所有ADC利益相关者提供的教育服务，包括我们的研究参与者 以及他们的家人、医科学生、住院医生和通过ADC轮换的研究员、教职员工和 大学的工作人员，以及社区和其他地方的普通公众和医疗保健专业人员 随着越来越多的外国访问学者。

PROJECT SUMMARY/ABSTRACT OUTREACH, RECRUITMENT AND EDUCATION CORE Alzheimer s disease (AD) affects 5.6 million Americans regardless of race or ethnicity. Today, more than 38 million Americans are age 65 or older; this number is expected to double in the next 25 years. The oldest old people age 85+ constitute the fastest growing segment of the U.S. population. Currently about four million people, this population could top 19 million by 2050. The racial and ethnic makeup of the older population is also expected to become significantly more diverse. In 2006, 81% of adults age 65+ were Caucasian; by 2050 this is estimated to decrease to 61%40 with approximately 14 million Hispanics, 8.6 million African Americans, and 5.8 million older adults from other racial and ethnic groups. Inequities in income, education, health services availability, and a lack of understanding of specific cultural differences in knowledge, beliefs, and attitudes may contribute to significant disparities in health outcomes and quality of life. This includes not only differences in symptom presentation, but perceptions of disease and care. If we are to truly understand preclinical AD and its myriad to presentations, risk factors, and potential treatment options, then our cohorts that participate in observational studies, clinical trials, biomarker studies, and psychosocial research has to reflect the growing changes in the US population. The overall goal of Outreach, Recruitment, and Education Core (OREC) of the NYU ADC is to provide conduits through community engagement; collaborative efforts with other NYU Centers, ADCs, and the scientific community; and novel approaches to increase the recruitment and retention of culturally diverse research population engaged in annual longitudinal assessments, biomarker research, and autopsy studies. We propose 4 Specific Aims: (1) Facilitate recruitment and retention of participants in ADC longitudinal studies and clinical trials with special emphasis on underrepresented minority groups (URG); (2) Perform outreach activities to inform and raise awareness of lay individuals, with an emphasis on URG concerning brain aging; memory loss; early detection; biomarkers; diagnostic, treatment and care options; and promote favorable attitudes towards research participation; (3) Maintain and grow educational initiatives and training opportunities; (4) Evaluate the effectiveness of our recruitment, outreach, training and educational activities. The Core coordinates educational offerings for all ADC stakeholders, from our research participants and their family members, to medical students, residents and fellows rotating through the ADC, to faculty and staff of the University, to the general public and healthcare professionals in our community and beyond, as well as an increasing number of visiting foreign scholars.