Accessible Electronic Health Records: Defining a Research Agenda

可访问的电子健康记录：定义研究议程

• 批准号: 1047616
• 负责人: Andrew Sears
• 金额: $ 2.47万
• 依托单位: University of Maryland Baltimore County
• 依托单位国家: 美国
• 项目类别: Standard Grant
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-01 至 2011-08-31
• 项目状态: 已结题
• 来源: https://www.nsf.gov/awardsearch/showAward?AWD_ID=1047616&HistoricalAwards=false
• 关键词: Accessible; Electronic; Health; Records; Defining

Electronic solutions for storing, retrieving, sharing, and analyzing health related information are being deployed rapidly. Solutions may be designed for healthcare professionals or consumers. As a result, individuals may access the records infrequently or frequently, they may access a single record repeatedly (i.e., consumers reviewing their record) or many different records occasionally (i.e., providers preparing to meet with patients), or they may need to compare information across records (i.e., researchers looking for patterns). Individuals may enter or update information, or they may simply access the information which is likely to include a combination of text and graphics. Security must be maintained, collaboration should be supported, and privacy must be ensured. While solutions are being proposed in response to pressure from various stakeholders to move forward rapidly, there is a concern that accessibility of electronic medical records by people with disabilities has not been adequately addressed.This is funding to support a workshop of approximately 15 researchers, to explore these issues. The workshop will have three related goals: to educate accessibility researchers with regard to the concerns and needs of the healthcare community; to educate the healthcare community with regard to issues, challenges, and existing solutions with regard to making relevant information accessible to individuals with disabilities; and to identify critical issues which need to be addressed by the research community if accessibility is to be effectively addressed in the context of electronic medical records. The workshop will take place in Orlando, Florida on October 23-24, 2010, and will be co-located with and on the days immediately preceding ACM's annual conference on computers and accessibility, ASSETS 2010, in the hope of thereby increasing the likelihood of engaging key accessibility researchers in the discussions. The PI will in addition solicit input and encourage participation from beyond the accessibility community, in order to ensure that the needs and concerns of the healthcare community are understood by attendees and integrated into the discussions.Broader Impacts: This workshop will help identify important accessibility-related issues that may be addressed through future research, while providing individuals from the healthcare and accessibility communities with the opportunity to discuss common interests, goals, and concerns. Workshop outcomes will directly affect a broad range of users, including individuals from under-represented groups with a particular emphasis on individuals with disabilities. The event will foster networking amng both new and experienced researchers, and in particular will provide opportunities for new researchers to receive constructive feedback on current and future research plans through interactions with more senior researchers with related interests.

用于存储、检索、共享和分析健康相关信息的电子解决方案正在迅速部署。 解决方案可能是为医疗保健专业人员或消费者设计的。 因此，个人可能很少或频繁访问记录，他们可能会重复访问单个记录（即，消费者查看其记录）或偶尔访问许多不同的记录（即，提供者准备与患者会面），或者他们可能需要比较记录之间的信息（即，研究人员寻找模式）。 个人可以输入或更新信息，或者他们可以简单地访问可能包括文本和图形组合的信息。必须维护安全、支持协作并确保隐私。虽然针对各利益相关方要求快速推进的压力提出了解决方案，但人们担心残疾人对电子病历的可访问性尚未得到充分解决。这笔资金用于支持由约 15 名研究人员组成的研讨会，以探讨这些问题。 该研讨会将有三个相关的目标： 教育无障碍研究人员了解医疗保健界的担忧和需求；就向残疾人士提供相关信息的问题、挑战和现有解决方案向医疗保健界进行教育；并确定研究界需要解决的关键问题，以便在电子病历方面有效解决可访问性问题。 该研讨会将于 2010 年 10 月 23 日至 24 日在佛罗里达州奥兰多举行，并将与 ACM 计算机和无障碍年度会议 ASSETS 2010 同一地点举行，希望借此增加主要无障碍研究人员参与讨论的可能性。 此外，PI还将征求无障碍社区之外的意见并鼓励参与，以确保与会者理解医疗保健社区的需求和担忧，并将其纳入讨论中。更广泛的影响：本次研讨会将帮助确定可能通过未来研究解决的重要的与无障碍相关的问题，同时为来自医疗保健和无障碍社区的个人提供讨论共同兴趣、目标和担忧的机会。研讨会的成果将直接影响广泛的用户，包括来自代表性不足群体的个人，特别是残疾人。 该活动将促进新研究人员和经验丰富的研究人员之间的联系，特别是为新研究人员提供机会，通过与具有相关兴趣的更资深研究人员的互动，获得有关当前和未来研究计划的建设性反馈。