Accessible Electronic Health Records: Defining a Research Agenda

用于存储、检索、共享和分析健康相关信息的电子解决方案正在迅速部署。 解决方案可以为医疗保健专业人员或消费者设计。 结果，个人可能不经常或频繁地访问记录，他们可能重复地访问单个记录（即，消费者查看他们的记录）或偶尔查看许多不同的记录（即，提供者准备会见患者），或者他们可能需要比较记录间的信息（即，研究人员寻找模式）。 个人可以输入或更新信息，或者他们可以简单地访问可能包括文本和图形组合的信息。必须维护安全性，支持协作，确保隐私。虽然在各利益攸关方的压力下提出了解决方案，要求迅速向前推进，但令人关切的是，残疾人无障碍使用电子病历的问题尚未得到充分解决，这笔资金将用于支持一个约有15名研究人员参加的研讨会，以探讨这些问题。 该研讨会将有三个相关的目标：教育无障碍研究人员关于医疗保健界的关注和需求;教育医疗保健界关于问题，挑战和现有的解决方案，使残疾人获得相关信息;并确定研究界需要解决的关键问题，以便在电子医疗记录的背景下有效解决无障碍问题。 该研讨会将于2010年10月23日至24日在佛罗里达奥兰多举行，并将与ACM计算机和无障碍环境年度会议“2010年资产”在同一地点举行，并在会议召开前几天举行，希望借此增加关键的无障碍环境研究人员参与讨论的可能性。 此外，PI还将征求意见，并鼓励无障碍社区以外的人士参与，以确保与会者理解医疗保健社区的需求和关注，并将其纳入讨论。该研讨会将有助于确定可通过今后的研究加以解决的与无障碍有关的重要问题，同时为来自医疗保健和无障碍社区的个人提供讨论共同利益、目标和关注点的机会。讲习班的成果将直接影响到广泛的用户，包括代表性不足群体的个人，特别是残疾人。 该活动将促进新的和有经验的研究人员之间的网络，特别是将为新的研究人员提供机会，通过与具有相关兴趣的资深研究人员的互动，获得对当前和未来研究计划的建设性反馈。

Electronic solutions for storing, retrieving, sharing, and analyzing health related information are being deployed rapidly. Solutions may be designed for healthcare professionals or consumers. As a result, individuals may access the records infrequently or frequently, they may access a single record repeatedly (i.e., consumers reviewing their record) or many different records occasionally (i.e., providers preparing to meet with patients), or they may need to compare information across records (i.e., researchers looking for patterns). Individuals may enter or update information, or they may simply access the information which is likely to include a combination of text and graphics. Security must be maintained, collaboration should be supported, and privacy must be ensured. While solutions are being proposed in response to pressure from various stakeholders to move forward rapidly, there is a concern that accessibility of electronic medical records by people with disabilities has not been adequately addressed.This is funding to support a workshop of approximately 15 researchers, to explore these issues. The workshop will have three related goals: to educate accessibility researchers with regard to the concerns and needs of the healthcare community; to educate the healthcare community with regard to issues, challenges, and existing solutions with regard to making relevant information accessible to individuals with disabilities; and to identify critical issues which need to be addressed by the research community if accessibility is to be effectively addressed in the context of electronic medical records. The workshop will take place in Orlando, Florida on October 23-24, 2010, and will be co-located with and on the days immediately preceding ACM's annual conference on computers and accessibility, ASSETS 2010, in the hope of thereby increasing the likelihood of engaging key accessibility researchers in the discussions. The PI will in addition solicit input and encourage participation from beyond the accessibility community, in order to ensure that the needs and concerns of the healthcare community are understood by attendees and integrated into the discussions.Broader Impacts: This workshop will help identify important accessibility-related issues that may be addressed through future research, while providing individuals from the healthcare and accessibility communities with the opportunity to discuss common interests, goals, and concerns. Workshop outcomes will directly affect a broad range of users, including individuals from under-represented groups with a particular emphasis on individuals with disabilities. The event will foster networking amng both new and experienced researchers, and in particular will provide opportunities for new researchers to receive constructive feedback on current and future research plans through interactions with more senior researchers with related interests.