A project of improve nursing practice abilities for people who have a genetic disease.

本研究旨在提高遗传疾病患者的护理实践能力。我们建立了一个网页，并开发了一个电子学习材料。我们在照顾遗传病患者（客户）及其父母的护士之间建立了一个网络。我们也在研讨会上分享信息。我们对以前没有研究过的罕见遗传病进行了一些调查，并公布了结果。通过邀请研究人员和对外国的访问，有可能将遗传疾病护理的国际观点纳入其中。

The studies were conducted for the purpose of improve nursing practice abilities for people who have a genetic disease. We set up a Web page, and developed an e-learning materials. We built a network among nurses who were doing care for patients (clients) with a genetic disease and their parents. We also share information in the workshop. We conducted some surveys about rare genetic diseases that haven’t been done research before, and announced results. It was possible through the invitation of researchers and visits to foreign countries, to incorporate an international perspective on nursing to genetic disease.