Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE) in Alzheimer’s Disease and Related Dementias.

亚裔美国人和太平洋岛民在阿尔茨海默病和相关痴呆症方面的研究和教育 (CARE) 合作方法。

• 批准号: 10161698
• 负责人: Van My Ta Park
• 金额: $ 108.42万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10161698
• 关键词: Address; Age; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Alzheimer' s disease risk; American; Area; Asian Americans; Asian Indian; California; Caregivers; Cause of Death; Chinese People; Clinical Research; Clinical Trials; Communities; County; Data; Drama; Education; Effectiveness; English Language; Enrollment; Ensure; Evaluation; Filipino; Focus Groups; Funding; Future; Goals; Home; Institutes; Knowledge; Koreans; Language; Linguistics; Los Angeles; Marketing; Mental Depression; Methods; Minority; Modeling; Not Hispanic or Latino; Oranges; Pacific Island Americans; Participant; Persons; Population; Population Heterogeneity; Process; Provider; Race; Records; Registries; Research; Research Methodology; Research Personnel; Resources; Samoan; San Francisco; Science; Site; Source; Trust; Underserved Population; Universities; Variant; base; collaborative approach; community based participatory research; disparity reduction; education research; effectiveness evaluation; ethnic diversity; ethnic minority population; expectation; experience; experimental study; health disparity; improved; innovation; insight; interest; member; online registry; patient population; physical conditioning; preference; programs; racial and ethnic; recruit; research study; socioeconomics; stakeholder perspectives; study population; tool; underserved community

Project Abstract/Summary of CARE Alzheimer's disease is the fourth leading cause of death in California compared to sixth in the U.S., and the number of Americans living with Alzheimer's Disease and Related Dementias (ADRD) is expected to increase from 5.7 to 14 million by 2050. It is important to ensure that underserved communities, such as Asian Americans and Pacific Islanders (AAPI), are engaged and educated on ADRD as disparities exist in knowledge about ADRD among AAPI and Asian American caregivers experience disparities in depression, burden, and physical health compared to non-Hispanic White caregivers even though AAPI are the most rapidly growing racial group of older Americans at risk for ADRD. Research participation from AAPI are limited and the sparse research suggests that AAPI are interested in being engaged, but that various concerns (e.g. lack of cultural/linguistic information and mistrust) need to be addressed in order to improve participation in ADRD research, including clinical trials participation. To overcome these barriers to ADRD clinical research participation, we will implement culturally appropriate and innovative recruitment strategies from a collaborative team of trusted sources of information (e.g. community partners). The ultimate goal of the proposed project, Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE) in Alzheimer's Disease and Related Dementias, is to address the gap and reduce disparities in ADRD research participation among AAPI through the creation of a registry of AAPI who are interested in participating in various types of ADRD research. CARE will be conducted in five languages (English, Mandarin, Cantonese, Vietnamese, Korean) across four sites in California (San Francisco Bay Area, Sacramento County, Los Angeles County, and Orange County). CARE is critical to ensure that AAPI, an underserved population, are meaningfully included in ADRD research. CARE will accomplish the following: a) Develop a registry that will facilitate future ADRD research with AAPI; b) Serve as a recruitment model for other populations; c) Increase the capacity of AD Centers/Institutes at and develop a new collaborative team across five universities; and, d) Develop a robust approach and add to the science of recruiting and retaining minorities in research with the overall goal of reducing ADRD disparities. CARE addresses Goal F.3. of NIA's Strategic Directions for Research on Aging: "develop and implement strategies to increase inclusion of diverse populations in research."

CARE项目摘要/总结