Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers

扩大 CAARN，与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究

• 批准号: 10348205
• 负责人: Dorothy Farrar Edwards
• 金额: $ 60.55万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-15 至 2024-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10348205
• 关键词: Address; Adoption; Affect; African American; African American population; Age; Aging; Allied Health Profession; Behavior Therapy; Caring; Chronic; Clinic; Collaborations; Communication; Communities; Community Healthcare; Consult; County; Development; Dissemination and Implementation; Effectiveness; Elderly; Elements; Ensure; Epidemic; Extramural Activities; Funding; Goals; Grant; Health; Health Care Costs; Health Personnel; Health system; Healthcare; Healthcare Systems; Infrastructure; Insurance; Interdisciplinary Study; Intervention; Knowledge; Lead; Longevity; Network Infrastructure; Outcome; Patients; Phase; Policy Maker; Population; Program Development; Provider; Quality of life; Research; Research Infrastructure; Research Personnel; Research Training; Rural; Rural Community; Self Management; Social Work; Testing; Time; Training; Tribes; Trust; Underserved Population; United States National Institutes of Health; Wisconsin; behavior change; care outcomes; care providers; clinical care; community based participatory research; design; dissemination science; empowered; feasibility testing; health care service utilization; health disparity; health equity; health literacy; implementation science; improved; multidisciplinary; multiple chronic conditions; novel; novel strategies; older patient; program dissemination; programs; rural African American; rural underserved; self-management program; service providers; shared decision making; skills; success; underserved community

Project Summary/Abstract Three out of four older adults live with multiple chronic conditions (MCCs) that worsen health, shorten life span, and increase healthcare costs; this burden disproportionally affects African Americans. Despite the critical need for interventions to help older patients with MCCs improve self-management, existing programs have limited reach and effectiveness in underserved communities. Our long term goal is to increase the number and reach of self-management interventions available to improve the health of older adults with MCCs. The objective of this proposal is to create a mature and sustainable infrastructure that facilitates the formation and collaboration of research teams focused on the development and dissemination of effective new self-management interventions for older adults from African American and rural communities with MCCs. To achieve this goal, we will expand the Community-Academic Aging Research Network (CAARN), originally created in 2010 with NIH funding to facilitate development, testing, and/or dissemination of behavioral interventions to improve the health of older adults. To date, CAARN has facilitated community-research partnerships between 46 investigators and social services providers in 52 counties and 1 tribe. We propose to expand CAARN’s infrastructure from its primarily rural focus, to increase partnerships with health systems and African American communities, by providing: 1) trained research liaisons from partnering organizations representing health systems and African-American stakeholders; 2) training for researchers on building trust with African- American communities; 3) multidisciplinary experts who will consult during the design phase of interventions. These additions create a mature, sustainable CAARN infrastructure to accomplish our aims: Aim 1: Facilitate research to develop and test the feasibility of new multi-morbidity self-management programs for older adults that focus on activating patients towards self-management and empowering them to continuously engage in goal-setting and shared decision-making with their provider(s) to maximize behavior change; Aim 2: Demonstrate the effectiveness of new self-management programs for older adults with MCCs in improving quality of life, with a concentrated focus on rural and African-American older adults; Aim 3: Facilitate research to maximize dissemination, implementation, and reach of effective multi-morbidity self- management programs, particularly in rural and African-American populations. Using principles of community- based participatory research, CAARN will engage stakeholders from health systems, rural, and African- American communities on multidisciplinary research teams to develop, test, and research how best to disseminate interventions to reduce the substantial burden of MCCs. This should increase the availability of, and decrease the time to dissemination of, effective, practical interventions that are tailored to these communities and integrated into health systems to improve communications, clinical care, and health equity.

项目摘要/摘要 四分之三的老年人生活具有多种慢性病（MCC），健康状况较差，寿命缩短 跨度并增加医疗费用；这个伯宁对非裔美国人的影响不成比例。尽管有 批判性需要干预措施，以帮助老年患者改善自我管理，现有计划 在服务不足的社区中的影响力和有效性有限。我们的长期目标是增加 可用于改善老年人健康的自我管理干预措施的数量和范围 MCC。该提案的目的是建立一个成熟且可持续的基础设施，以促进 研究团队的成立和协作，专注于开发和传播有效 来自非裔美国人和农村社区的新老年人的新自我管理干预措施。 为了实现这一目标，我们将扩大最初的社区学术老龄化研究网络（CAARN） 由NIH资金创建于2010年，以促进行为的发展，测试和/或传播 改善老年人健康的干预措施。迄今为止，Caarn已经准备了社区研究 在52个县和1个部落中的46位调查人员与社会服务提供商之间的合作伙伴关系。我们建议 将Caarn的基础设施从其主要的重点扩大，以增加与卫生系统的伙伴关系 和非裔美国人社区，提供：1）培训的研究联络员 代表卫生系统和非裔美国利益相关者； 2）研究人员建立信任的培训 与非裔美国社区； 3）将在设计阶段进行咨询的多学科专家 干预措施。这些增加创造了一个成熟，可持续的CAARN基础设施来实现我们的目标： 目的1：促进研究和测试新的多元车自大自我管理计划的可行性 对于专注于激活患者进行自我管理并授权他们的老年人 与他们的提供商不断进行目标制定和共同决策，以最大化行为 改变; AIM 2：证明对MCC的老年人的新自我管理计划的有效性 在改善生活质量方面，集中精力集中在粗糙和非裔美国人的老年人上；目标3： 促进研究以最大程度地传播，实施和达到有效多种自身自身自身的自身 管理计划，特别是在粗糙和非裔美国人的人口中。使用社区原则 - CAARN基于参与研究，将吸引来自卫生系统，粗糙和非洲的利益相关者 在多学科研究团队的美国社区开发，测试和研究如何最好的 传播干预措施，以减少MCC的大量燃烧。这应该增加可用性 并减少为这些量身定制的有效，实用干预措施的时间 社区并纳入卫生系统，以改善沟通，临床护理和卫生公平。