Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers

扩大 CAARN，与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究

• 批准号: 10348205
• 负责人: Dorothy Farrar Edwards
• 金额: $ 60.55万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-15 至 2024-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10348205
• 关键词: Address; Adoption; Affect; African American; African American population; Age; Aging; Allied Health Profession; Behavior Therapy; Caring; Chronic; Clinic; Collaborations; Communication; Communities; Community Healthcare; Consult; County; Development; Dissemination and Implementation; Effectiveness; Elderly; Elements; Ensure; Epidemic; Extramural Activities; Funding; Goals; Grant; Health; Health Care Costs; Health Personnel; Health system; Healthcare; Healthcare Systems; Infrastructure; Insurance; Interdisciplinary Study; Intervention; Knowledge; Lead; Longevity; Network Infrastructure; Outcome; Patients; Phase; Policy Maker; Population; Program Development; Provider; Quality of life; Research; Research Infrastructure; Research Personnel; Research Training; Rural; Rural Community; Self Management; Social Work; Testing; Time; Training; Tribes; Trust; Underserved Population; United States National Institutes of Health; Wisconsin; behavior change; care outcomes; care providers; clinical care; community based participatory research; design; dissemination science; empowered; feasibility testing; health care service utilization; health disparity; health equity; health literacy; implementation science; improved; multidisciplinary; multiple chronic conditions; novel; novel strategies; older patient; program dissemination; programs; rural African American; rural underserved; self-management program; service providers; shared decision making; skills; success; underserved community

Project Summary/Abstract Three out of four older adults live with multiple chronic conditions (MCCs) that worsen health, shorten life span, and increase healthcare costs; this burden disproportionally affects African Americans. Despite the critical need for interventions to help older patients with MCCs improve self-management, existing programs have limited reach and effectiveness in underserved communities. Our long term goal is to increase the number and reach of self-management interventions available to improve the health of older adults with MCCs. The objective of this proposal is to create a mature and sustainable infrastructure that facilitates the formation and collaboration of research teams focused on the development and dissemination of effective new self-management interventions for older adults from African American and rural communities with MCCs. To achieve this goal, we will expand the Community-Academic Aging Research Network (CAARN), originally created in 2010 with NIH funding to facilitate development, testing, and/or dissemination of behavioral interventions to improve the health of older adults. To date, CAARN has facilitated community-research partnerships between 46 investigators and social services providers in 52 counties and 1 tribe. We propose to expand CAARN’s infrastructure from its primarily rural focus, to increase partnerships with health systems and African American communities, by providing: 1) trained research liaisons from partnering organizations representing health systems and African-American stakeholders; 2) training for researchers on building trust with African- American communities; 3) multidisciplinary experts who will consult during the design phase of interventions. These additions create a mature, sustainable CAARN infrastructure to accomplish our aims: Aim 1: Facilitate research to develop and test the feasibility of new multi-morbidity self-management programs for older adults that focus on activating patients towards self-management and empowering them to continuously engage in goal-setting and shared decision-making with their provider(s) to maximize behavior change; Aim 2: Demonstrate the effectiveness of new self-management programs for older adults with MCCs in improving quality of life, with a concentrated focus on rural and African-American older adults; Aim 3: Facilitate research to maximize dissemination, implementation, and reach of effective multi-morbidity self- management programs, particularly in rural and African-American populations. Using principles of community- based participatory research, CAARN will engage stakeholders from health systems, rural, and African- American communities on multidisciplinary research teams to develop, test, and research how best to disseminate interventions to reduce the substantial burden of MCCs. This should increase the availability of, and decrease the time to dissemination of, effective, practical interventions that are tailored to these communities and integrated into health systems to improve communications, clinical care, and health equity.

项目总结/摘要 四分之三的老年人患有多种慢性病（MCC），这些慢性病使健康状况恶化，缩短寿命 跨度，并增加医疗保健费用;这种负担严重影响非洲裔美国人。尽管 迫切需要干预措施，以帮助老年MCC患者改善自我管理，现有计划 在服务不足的社区，覆盖面和效力有限。我们的长期目标是增加 可用于改善老年人健康的自我管理干预措施的数量和范围， MCC。这项建议的目的是建立一个成熟和可持续的基础设施， 成立和合作研究小组，重点是制定和传播有效的 新的自我管理干预措施，为老年人从非洲裔美国人和农村社区与MCC。 为了实现这一目标，我们将扩大社区学术老龄化研究网络（CAARN），最初 2010年在NIH资助下创建，以促进行为基因的开发、测试和/或传播。 改善老年人健康的干预措施。到目前为止，CAARN促进了社区研究， 52个州和1个部落的46名调查员和社会服务提供者之间的伙伴关系。我们提出 扩大CAARN的基础设施，从其主要的农村重点，以增加与卫生系统的伙伴关系 和非洲裔美国人社区，提供：1）来自合作组织的训练有素的研究联络员 代表卫生系统和非裔美国人利益攸关方; 2）培训研究人员建立信任 与非洲裔美国人社区; 3）多学科专家谁将在设计阶段咨询， 干预措施。这些新增功能创建了一个成熟的、可持续的CAARN基础设施，以实现我们的目标： 目标1：促进研究，以开发和测试新的多种疾病自我管理计划的可行性 针对老年人，重点是激活患者自我管理，并赋予他们权力， 持续参与目标设定和与供应商共同决策，以最大限度地提高行为 目标2：证明新的自我管理计划对患有MCC的老年人的有效性 提高生活质量，重点关注农村和非洲裔美国老年人;目标3： 促进研究，以最大限度地传播，实施，并达到有效的多发病自我- 管理计划，特别是在农村和非洲裔美国人的人口。利用社区的原则- 基于参与性研究，CAARN将吸引来自卫生系统，农村和非洲的利益相关者， 美国社区的多学科研究小组，以开发，测试和研究如何最好地 传播干预措施，以减轻监控化学品的沉重负担。这将增加可用性， 并减少传播针对这些人的有效、实用干预措施的时间 社区，并纳入卫生系统，以改善沟通，临床护理和健康公平。