Enhancing Participation of Underrepresented Groups in Biomarker Studies

加强代表性不足的群体对生物标志物研究的参与

基本信息

  • 批准号:
    7753415
  • 负责人:
  • 金额:
    $ 20.94万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2009
  • 资助国家:
    美国
  • 起止时间:
    2009-07-23 至 2014-05-31
  • 项目状态:
    已结题

项目摘要

A growing body of literature addresses the problems of recruitment and retention of minority participants in health related research programs.2 Historically, African Americans and other underrepresented groups have very low rates of participation in biomedical research.3"5 The results of both qualitative and quantitative studies have identified many common barriers to participation, as well as issues unique to each community. The majority of these studies have focused on African Americans, with fewer publications describing the attitudes and beliefs of Latinos and American Indians; however, the same themes consistently emerge across the groups. These six common factors include: 1) fear and mistrust based on episodes of unethical treatment by medical investigators or discrimination associated with government sponsored programs;6 2) low health literacy and lack of information about common health practices and chronic disease; 3) structural limitations in access to health for underrepresented populations; 4) sociocultural reliance on family and community for guidance and normative behaviors; 5) logistical barriers including the location of studies, transportation costs, time demands and study inclusion and exclusion criteria that may unintentionally limit enrollment of otherwise willing participants; and 6) perceived lack of cultural awareness and cultural competence on the part of many investigators and research staff.7
越来越多的文献论述了少数群体参与者的征聘和留用问题, 健康相关的研究计划。2历史上,非洲裔美国人和其他代表性不足的群体, 生物医学研究的参与率非常低。3“5定性和定量研究的结果 已经确定了许多共同的参与障碍,以及每个社区特有的问题。的 这些研究大多集中在非裔美国人身上,描述这种态度的出版物较少 拉丁美洲人和美洲印第安人的信仰;然而,同样的主题始终出现在整个 组这六个共同因素包括:1)基于不道德待遇事件的恐惧和不信任, 与政府资助项目相关的医学调查或歧视;6 2)健康状况不佳 识字和缺乏关于常见保健做法和慢性病的信息; 3) 为代表性不足的人口提供保健服务; 4)社会文化上依赖家庭和社区, 指导和规范行为; 5)后勤障碍,包括研究地点,交通费用, 时间要求和研究入选和排除标准,可能会无意中限制入组 愿意参与; 6)许多人认为缺乏文化意识和文化能力 调查员和研究人员。

项目成果

期刊论文数量(0)
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科研奖励数量(0)
会议论文数量(0)
专利数量(0)

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Dorothy Farrar Edwards其他文献

Poster 29 Very Early Constraint-Induced Movement Therapy (VECTORS): Effects of Timing or Dose on Upper Extremity Function
  • DOI:
    10.1016/j.apmr.2011.07.052
  • 发表时间:
    2011-10-01
  • 期刊:
  • 影响因子:
  • 作者:
    Hui-Chun Chen;Alexander W. Dromerick;Dorothy Farrar Edwards
  • 通讯作者:
    Dorothy Farrar Edwards
Identifying Behavioral Facilitators to Weight Loss after Bariatric Surgery: Are There Differences Between Medicaid and Non-Medicaid Patients?
  • DOI:
    10.1016/j.jamcollsurg.2021.07.007
  • 发表时间:
    2021-11-01
  • 期刊:
  • 影响因子:
  • 作者:
    Jacqueline A. Murtha;Esra Alagoz;Catherine R. Breuer;Bhabna Pati;Corrine I. Voils;Dorothy Farrar Edwards;Luke M. Funk
  • 通讯作者:
    Luke M. Funk

Dorothy Farrar Edwards的其他文献

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{{ truncateString('Dorothy Farrar Edwards', 18)}}的其他基金

Area of Interest 3: Engage Tribal Nations and Urban and Non-Tribal Land Based AI/AN Populations in Wisconsin
感兴趣领域 3:威斯康星州部落民族以及城市和非部落陆地 AI/AN 人群的参与
  • 批准号:
    10879980
  • 财政年份:
    2023
  • 资助金额:
    $ 20.94万
  • 项目类别:
Outreach, Recruitment & Engagement Core
外展、招聘
  • 批准号:
    10385834
  • 财政年份:
    2019
  • 资助金额:
    $ 20.94万
  • 项目类别:
Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers
扩大 CAARN,与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究
  • 批准号:
    9977111
  • 财政年份:
    2019
  • 资助金额:
    $ 20.94万
  • 项目类别:
Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers
扩大 CAARN,与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究
  • 批准号:
    10348205
  • 财政年份:
    2019
  • 资助金额:
    $ 20.94万
  • 项目类别:
Outreach, Recruitment & Engagement Core
外展、招聘
  • 批准号:
    10601063
  • 财政年份:
    2019
  • 资助金额:
    $ 20.94万
  • 项目类别:
Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers
扩大 CAARN,与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究
  • 批准号:
    10590643
  • 财政年份:
    2019
  • 资助金额:
    $ 20.94万
  • 项目类别:
Research Training and Education Core
研究培训和教育核心
  • 批准号:
    7753417
  • 财政年份:
    2009
  • 资助金额:
    $ 20.94万
  • 项目类别:
PATIENT ACCESS, OUTCOMES, AND COMMUNITY FOLLOW-UP
患者就诊、结果和社区随访
  • 批准号:
    7329751
  • 财政年份:
    2007
  • 资助金额:
    $ 20.94万
  • 项目类别:
MEASURING PERFORMANCE AND PARTICIPATION OF CHILDREN WITH SICKLE CELL DISEASE
衡量镰状细胞病儿童的表现和参与度
  • 批准号:
    7377281
  • 财政年份:
    2006
  • 资助金额:
    $ 20.94万
  • 项目类别:
PATIENT ACCESS, OUTCOMES, AND COMMUNITY FOLLOW-UP
患者就诊、结果和社区随访
  • 批准号:
    8328666
  • 财政年份:
  • 资助金额:
    $ 20.94万
  • 项目类别:

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一种神经影像学方法,可促进对年轻非洲裔美国电子烟使用者烟草使用升级风险的机制理解
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A neuroimaging approach to advance mechanistic understanding of tobacco use escalation risk among young adult African American vapers
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Impact of Adult Day Services on Psychosocial and Physiological Measures of Stress among African American Dementia Family Caregivers
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Development, Implementation, and Evaluation of a Smoking Cessation Intervention Tailored to Rural Young Adult African American Men: Toward Scalability
针对农村年轻非裔美国男性的戒烟干预措施的制定、实施和评估:走向可扩展性
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