Area of Interest 3: Engage Tribal Nations and Urban and Non-Tribal Land Based AI/AN Populations in Wisconsin

感兴趣领域 3:威斯康星州部落民族以及城市和非部落陆地 AI/AN 人群的参与

基本信息

项目摘要

Background: The Investigators and research staff of the of the All of Us Wisconsin Consortium (AoUWI) recognize the land we currently live and work is the ancestral homes of many other nations who were forcibly displaced by white settlers. Wisconsin has one of the largest concentrations of Native American Tribes east of the Mississippi River, and each has a distinct culture and rich heritage. Of the 12 Tribes in Wisconsin, 11 are federally recognized. The history of colonization informs our work. We recognize the need to engage indigenous people that live in both urban centers and rural reservation lands to develop a vision and process for future individual and collective AoU engagement with these Nations. The overarching goal of this program is to facilitate as much diversity of American Indian and Alaska Native (AI/AN) populations in the AoU precision medicine research program as possible by partnering with Wisconsin tribes and organizations with urban Indian expertise The aims and work plan presented in this application support an inclusive engagement process, educational programs and research infrastructure development to be determined and directed by representatives of Tribal Nations and the non-reservationbased AI/AN community to ensure that the project will be conducted in a manner that is respectful of applicable tribal customs, culture, and laws. We will leverage the established relationships and resources afforded by the Marshfield Clinic Research Institute, University of Wisconsin Madison and the Medical College of Wisconsin. Each AoU-WI Consortium partners has research and institutional programs supporting AI/AN students, investigators, health and education programs with Tribal Nations and urban Indigenous communities. The AoU-WI program will work closely with our Community Co-Investigator (CCI) Elaina Seep and Aniwahya Consulting Services to create an overall engagement program and research infrastructure in conjunction with representatives of the Great Lakes Inter- Tribal Epidemiology Center (GLITEC), the Great Lakes Inter-Tribal Council, and Native American leaders of community health and social service organizations. Methods: We are proposing the following Aims to meet the goals of the AoU Native American Engagement Program: Aim 1: Co-design a multilevel outreach and engagement program with representatives of tribal organizations, Indigenous governance groups and agencies of AI/AN Indigenous communities and non-reservation based representatives. Aim 2: Promote the training and career enhancement of student and/or faculty research scientists interested in precision medicine to address health equity issues within Tribal Nations and urban AI/AN communities. Aim 3: Support the expansion of AI/AN led precision health and medicine research infrastructure within AI/AN and Indigenous communities ensuring sustainability of precision medicine research. Aim 4: Create and evaluate culturally appropriate and locally vetted education materials and engagement assets and resources for Wisconsin AI/AN and Urban Indigenous populations and partners. Outcome: Successful achievement of these aims will provide a firm foundation for AoU research through individually designed programs that reflect the unique goals and priorities of each Tribal Organization.
背景:美国威斯康星州联合会(AoU)的研究者和研究人员我们认识到,我们目前生活和工作的土地是许多其他国家的祖先的家园, 被白色定居者强行驱逐威斯康星州是美洲原住民最集中的地区之一 密西西比河以东的部落,每个部落都有独特的文化和丰富的遗产。在12个部落中, 威斯康星州,11是联邦政府承认。殖民化的历史贯穿我们的工作。我们认识到 需要让居住在城市中心和农村保留地的土著人民参与发展一个 未来个别和集体与这些国家接触的愿景和进程。的 该计划的首要目标是促进美洲印第安人和阿拉斯加原住民的多样性 (AI/AN)人口在AoU精准医学研究计划尽可能通过合作与 威斯康星州部落和组织与城市印第安人的专业知识的目标和工作计划提出了这一点 应用程序支持包容性的参与过程,教育计划和研究基础设施 发展由部落民族的代表决定和指导,基于AI/AN社区,以确保项目将以尊重 适用的部落习俗、文化和法律。我们将利用现有的关系和资源 由威斯康星州麦迪逊大学马什菲尔德临床研究所和医学中心提供。 威斯康星州学院。每个AoU-WI联盟合作伙伴都有研究和机构计划 支持AI/AN学生,调查人员,与部落民族和城市的健康和教育计划 土著社区。AoU-WI计划将与我们的社区合作研究员密切合作 (CCI)Elaina Seep和Aniwahya咨询服务,以创建一个整体的参与计划, 与五大湖部落间流行病学的代表一起建立研究基础设施 中心、五大湖部落间理事会和美洲土著社区领袖 卫生和社会服务组织。方法:我们提出以下目标,以实现目标 AoU美洲原住民参与计划:目标1:共同设计一个多层次的外展和 与部落组织、土著治理团体和 印第安人/印第安纳州土著社区机构和非保留地代表。目标2:促进 对精确感兴趣的学生和/或教师研究科学家的培训和职业发展 医学解决部落民族和城市AI/AN社区内的健康公平问题。目标3: 支持在AI/AN内扩展AI/AN主导的精准健康和医学研究基础设施 和土著社区,确保精准医学研究的可持续性。目标4:创造和 评估文化上适当的、经过当地审查的教育材料和参与资产, 为威斯康星州人工智能/人工智能和城市土著人口和合作伙伴提供资源。结果:成功 这些目标的实现将为AoU研究提供坚实的基础, 反映每个部落组织的独特目标和优先事项的计划。

项目成果

期刊论文数量(0)
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Dorothy Farrar Edwards其他文献

Poster 29 Very Early Constraint-Induced Movement Therapy (VECTORS): Effects of Timing or Dose on Upper Extremity Function
  • DOI:
    10.1016/j.apmr.2011.07.052
  • 发表时间:
    2011-10-01
  • 期刊:
  • 影响因子:
  • 作者:
    Hui-Chun Chen;Alexander W. Dromerick;Dorothy Farrar Edwards
  • 通讯作者:
    Dorothy Farrar Edwards
Identifying Behavioral Facilitators to Weight Loss after Bariatric Surgery: Are There Differences Between Medicaid and Non-Medicaid Patients?
  • DOI:
    10.1016/j.jamcollsurg.2021.07.007
  • 发表时间:
    2021-11-01
  • 期刊:
  • 影响因子:
  • 作者:
    Jacqueline A. Murtha;Esra Alagoz;Catherine R. Breuer;Bhabna Pati;Corrine I. Voils;Dorothy Farrar Edwards;Luke M. Funk
  • 通讯作者:
    Luke M. Funk

Dorothy Farrar Edwards的其他文献

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{{ truncateString('Dorothy Farrar Edwards', 18)}}的其他基金

Outreach, Recruitment & Engagement Core
外展、招聘
  • 批准号:
    10385834
  • 财政年份:
    2019
  • 资助金额:
    $ 70万
  • 项目类别:
Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers
扩大 CAARN,与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究
  • 批准号:
    9977111
  • 财政年份:
    2019
  • 资助金额:
    $ 70万
  • 项目类别:
Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers
扩大 CAARN,与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究
  • 批准号:
    10348205
  • 财政年份:
    2019
  • 资助金额:
    $ 70万
  • 项目类别:
Outreach, Recruitment & Engagement Core
外展、招聘
  • 批准号:
    10601063
  • 财政年份:
    2019
  • 资助金额:
    $ 70万
  • 项目类别:
Expanding the CAARN to accelerate research on multiple chronic conditions with rural and African-American communities and health-care providers
扩大 CAARN,与农村和非裔美国人社区以及医疗保健提供者一起加速对多种慢性病的研究
  • 批准号:
    10590643
  • 财政年份:
    2019
  • 资助金额:
    $ 70万
  • 项目类别:
Research Training and Education Core
研究培训和教育核心
  • 批准号:
    7753417
  • 财政年份:
    2009
  • 资助金额:
    $ 70万
  • 项目类别:
Enhancing Participation of Underrepresented Groups in Biomarker Studies
加强代表性不足的群体对生物标志物研究的参与
  • 批准号:
    7753415
  • 财政年份:
    2009
  • 资助金额:
    $ 70万
  • 项目类别:
PATIENT ACCESS, OUTCOMES, AND COMMUNITY FOLLOW-UP
患者就诊、结果和社区随访
  • 批准号:
    7329751
  • 财政年份:
    2007
  • 资助金额:
    $ 70万
  • 项目类别:
MEASURING PERFORMANCE AND PARTICIPATION OF CHILDREN WITH SICKLE CELL DISEASE
衡量镰状细胞病儿童的表现和参与度
  • 批准号:
    7377281
  • 财政年份:
    2006
  • 资助金额:
    $ 70万
  • 项目类别:
Minority Recruitment Satellite Program
少数族裔招募卫星计划
  • 批准号:
    8248235
  • 财政年份:
  • 资助金额:
    $ 70万
  • 项目类别:

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