MEASURING PERFORMANCE AND PARTICIPATION OF CHILDREN WITH SICKLE CELL DISEASE

本子项目是利用由NIH/NCRR资助的中心赠款提供的资源的众多研究子项目之一。子项目和研究者（PI）可能已经从另一个NIH来源获得了主要资金，因此可以在其他CRISP条目中表示。列出的机构是中心的，不一定是研究者的机构。这项研究的目的是双重的。第一个目标是验证基于8至12岁儿童执行功能的表现测量。第二个目的是比较患有镰状细胞病的儿童与年龄和性别匹配的对照组的表现。SCD的症状可能会影响儿童的表现和参与日常活动。然而，关于SCD儿童的表现和参与日常活动的经验证据很少。文献中唯一涉及SCD儿童日常功能的领域是学业成就和成就。这项研究将讨论乐器和休闲活动以及学习成绩。这项研究的结果将有助于描述SCD对儿童日常生活的影响，并将有助于指导为这一人群开发更有效的职业治疗方法。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is twofold. The first aim is to validate a performance based measure of executive function for children 8 to 12 years of age. The second aim is to compare the performance of children with Sickle Cell Disease to that of age and gender matched controls. The symptoms of SCD may have an impact on children's performance and participation in their daily activities. However, there has been little empirical evidence about the performance and participation in daily activities of children with SCD. The only area of daily functioning of children with SCD addressed in the literature is in the area of academic attainment and achievement. This study will address instrumental and leisure activities as well as academic performance. The results of this study will help to describe the effects of SCD on the everyday life of children and will help guide the development of more effective occupational therapy treatments for this population.