OpenNeuro: An open archive for analysis and sharing of BRAIN Initiative data

OpenNeuro：用于分析和共享 BRAIN Initiative 数据的开放档案

• 批准号: 10365039
• 负责人: Russell A Poldrack
• 金额: $ 13.09万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-01 至 2023-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10365039
• 关键词: Address; Algorithmic Software; Archives; BRAIN initiative; Communities; Complex; Data; Data Protection; Equilibrium; Ethics; Funding; Funding Agency; Guidelines; Human; Human Subject Research; Investments; Light; Measures; Participant; Policies; Policy Maker; Privacy; Regulation; Research; Research Personnel; Research Subjects; Risk; Risk Assessment; Scheme; Software Tools; System; Techniques; United States; United States National Institutes of Health; data privacy; data repository; data sharing; diverse data; genetic information; human subject protection; neuroethics; neuroimaging; novel; open data; prevent; privacy protection; public trust; research study; secondary analysis; sound; tool

PROJECT SUMMARY/ABSTRACT Data sharing is essential to maximize the contributions of research subjects and the public’s investment in scientific research, but human subjects research also requires strong protection of the privacy and confidentiality of research subjects. This supplement will support an expert in neuroethics to develop a guideline for sharing human neuroimaging data and a data sharing policy for the OpenNeuro project. It will also propose a regulatory safeguard to prevent misuse of data collected or disclosed as part of a research study. This research will promote more responsible sharing of neuroimaging data in the OpenNeuro project and chart a path to protect data privacy without unduly limiting open science practice.

项目摘要/摘要 数据共享对于最大化研究对象的贡献和公众的投资至关重要 在科学研究中，但人类受试者的研究也需要强有力的隐私保护和 研究对象的机密性。本补充资料将支持神经伦理学专家制定 共享人类神经成像数据的指南和OpenNeuro项目的数据共享政策。它 还将提出监管保障措施，以防止滥用收集或披露的数据作为 研究性学习。这项研究将促进更负责任的神经成像数据共享 OpenNeuro项目并绘制了一条保护数据隐私而不过度限制开放科学的道路 练习一下。