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OpenNeuro: An open archive for analysis and sharing of BRAIN Initiative data

OpenNeuro: An open archive for analysis and sharing of BRAIN Initiative data
OpenNeuro：用于分析和共享 BRAIN Initiative 数据的开放档案
批准号：
10365039
负责人：
Russell A Poldrack
金额：
$13.09万
依托单位：
STANFORD UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
项目状态：
已结题
起止时间：
2018-09-01 至 2023-05-31
来源：
https://reporter.nih.gov/project-details/10365039
关键词：
AddressAlgorithmic SoftwareArchivesBRAIN initiativeCommunitiesComplexDataData ProtectionEquilibriumEthicsFundingFunding AgencyGuidelinesHumanHuman Subject ResearchInvestmentsLightMeasuresParticipantPoliciesPolicy MakerPrivacyRegulationResearchResearch PersonnelResearch SubjectsRiskRisk AssessmentSchemeSoftware ToolsSystemTechniquesUnited StatesUnited States National Institutes of Healthdata privacydata repositorydata sharingdiverse datagenetic informationhuman subject protectionneuroethicsneuroimagingnovelopen datapreventprivacy protectionpublic trustresearch studysecondary analysissoundtool

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中文摘要
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英文摘要
PROJECT SUMMARY/ABSTRACT Data sharing is essential to maximize the contributions of research subjects and the public’s investment in scientific research, but human subjects research also requires strong protection of the privacy and confidentiality of research subjects. This supplement will support an expert in neuroethics to develop a guideline for sharing human neuroimaging data and a data sharing policy for the OpenNeuro project. It will also propose a regulatory safeguard to prevent misuse of data collected or disclosed as part of a research study. This research will promote more responsible sharing of neuroimaging data in the OpenNeuro project and chart a path to protect data privacy without unduly limiting open science practice.
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