Technology to Empower Changes in Health (TECH) Network Participant Technologies Center

摘要/项目摘要 我国数字基础设施的显著进步与爆炸性增长相结合 在无处不在的无线连接中创造了前所未有的潜力来改善我们的 健康和医疗保健的提供。除了它们的普遍可用性，智能手机和 支持它们的移动网络为健康相关数据提供了无与伦比的平台 收购和通信。远见卓识的精确医学倡议队列计划 (PMI-CP)之所以可能，在很大程度上要归功于这种数字基础设施的可用性。然而， 要将通过一百万人获得的大部分杂乱无章的庞大信息库 将纵向队列转化为有意义的、改变人生的医学知识需要发展 当今最先进的创新、以会员为中心、引人入胜的安全数字网络， 而且在设计上，在接下来的几年和几十年里都是可持续的。 为了确保PMI-CP实现其目标，即改造现有的医疗文化 通过增强患者、研究人员和提供者的合作能力进行实践和研究 同龄人需要许多具有不同专业知识的人的协作支持，但 注重以参与者为中心。参与者技术中心(PTC)是至关重要的 组件来实现这一点，并确保我们能够成功地满足 PMI指导委员会的需求，以及最重要的PMI参与者的需求，我们有 形成了一个网络或世界级合作伙伴，这些合作伙伴共同拥有资源、经验和 熟练应对已知和未知的 像PMI-CP那样具有变革性和远见的努力。增强能力的技术 由斯克里普斯翻译科学研究所和Sage领导的健康(技术)网络的变化 Bionetworks，包括PatientsLikeMe、高通、沃尔格林、Verizon、洛克希德-马丁、 和蓝十字蓝盾协会，汇集了前所未有的经验和 关于参与者参与度、数字安全和个人技术的知识。 尽管PTC旨在优化PMI-CP中技术的利用，但我们的 坚定不移的重点将放在PMI参与者以及如何最大限度地提高参与的好处上 对他们个人来说。我们将通过在个性化的基础上奠定基础来实现这一点 参与战略，对安全和隐私的坚定承诺，并确保 提供满足所有当前和未来数据所需的最先进技术 信息共享需求。 。

Abstract/Project Summary Remarkable advancements in our nation's digital infrastructure combined with explosive growth in pervasive wireless connectivity have created the unprecedented potential to improve both our health and the delivery of healthcare. Beyond their universal availability, smartphones and the mobile networks that support them offer an unparalleled platform for health-related data acquisition and communications. The visionary Precision Medicine Initiative Cohort Program (PMI-CP) is possible, in large part, due to the availability of this digital infrastructure. However, to convert the enormous pool of mostly disjointed information available through a million-person longitudinal cohort into meaningful, life-changing medical knowledge requires development of an innovative, member-centric, engaging, and secure digital network that is state-of-art today, and by design, sustainably so over ensuing years and decades. In order to assure that the PMI-CP achieves its goal to transform the existing culture of medical practice and research by empowering patients, researchers and providers to work together as peers requires the collaborative support of many people with diverse expertise but a singular focus on participant-centeredness. The Participant Technologies Center (PTC) is a critical component to making that happen, and to ensure that we are able to successfully meet the needs of the PMI Steering Committee, and most importantly, the PMI participants, we have formed a network or world-class partners that together have the resources, experience and capabilities necessary to expertly address the known and not-yet known challenges of an endeavor as transformational and far-sighted as the PMI-CP. The Technology to Empower Change in Health (TECH) network is led by Scripps Translational Science Institute and Sage Bionetworks, and includes PatientsLikeMe, Qualcomm, Walgreens, Verizon, Lockheed-Martin, and the Blue Cross Blue Shield Association, bringing together unprecedented experience and knowledge around participant engagement, digital security and personal technologies. Although the PTC is designed to optimize the utilization of technologies in the PMI-CP, our unwavering focus will be on the PMI participant and how to maximize the benefit of participation for them personally. We will accomplish this by laying a foundation built upon personalized engagement strategies, an resolute commitment to security and privacy, and assuring the availability of the state-of-the-art technology needed to meet all current and future data and information sharing needs. .